notes from friends & family...
Read Entries from October 2005 - February 2007 HERE
Name: Diana Lee TodayHi Suzanna and Erinne! The pictures of Erinne are beautiful! What a sparkle I see in her eyes! I hope that your campaign for the van is going well and thanks Suzanne, for being such a great support to us SMA families. Emily is recovering well, Yippee! I pray and hope that this winter is sickness free and filled with fun surprises! Love, Diana Lee Name: charlies mom TodayHoping you are all getting healthy! I hate to hear that you guys are sick! Hope 2008 brings health, a new van and more Love Charlie, Lily, Kim & John Name: Elizabeth TodayMerry Christmas and Happy Healthy New Year! www.our-sma-angels.com/elizabeth Name: Wendy Persinger TodayGreat article! Loved the pictures. We hope you're feeling better, and that you (and your mom) get some wonderful and well-deserved gifts from Santa!!! Many hugs, Wendy and Autumn Name: Duncan Jones TodayI heard your new bi-pap is there. That's great! I'm pullin' for you. Name: Amanda TodayI have been wondering how things were going after the tests and it wasnt till just now that I got smart enough to check the site! Anyhow, I am keeping you in my thoughts! I axiously await the next update! Take it easy both of you! Name: Beth Pruitt TodayErinne: We are so glad you got to go to the U of M hockey game, sounds like great fun!!!! We are sorry to hear they haven't figured stuff out yet. We have been wondering how you are doing and finally checked your web site. Prayers for you and your family to figure out what's up and to have a peaceful holiday season. Dani & Beth Pruitt Name: stacey TodayHi Suzanne, Erinne, I'm so sorry to hear what u guys are going through. Hopefully Erinne will be feeling better soon.... Name: Andrea Smith TodayJust stopping by to let you know that we're thinking of Erinne down here in Greenville! Looks like Steve is going to the auto show again this coming year, so I'll be in your neck of the woods. Hopefully we can get together. (((HUGS))) Name: Kristy & Jessica TodayHello Williams Family - Our prayers our with you this week. Jessica is looking forward to the following week (only because Erinne and Latte will be with her :) ) - So we are saying extra prayers that everything goes well at UOM - and we will be together for those wonderful extension surgeries!! :) Hang in there and try to let mom get some sleep as we know both of you need it so much. Jessica talks so much about you Erinne - you are a great inspiration for her - THANK YOU! Suzanne - PLEASE try and get some rest this weekend as we know next week will not bring many ZZZZZ's to you - The Hetzels Name: stacey TodayErinne, I read that u will be in the hospital next week... I hope that they can make you feel better soon.... Name: barb TodayoHi Erinne and Suzanne. it's really cool that you have this page. you are inspiring! Name: Andrea Smith TodayMuch love to all of you! Feel better soon, Miss Erinne! Your Red Wings are kicking butt again this year - that's something to smile about! (((HUGS))) Name: Astrid TodayHi Erinne and Suzanne. Came here from the SMA angels homepage after visitng the page for another SMA angel I know from an E-mail list. I don't know much about SMA as I have no offline relatives who have it, but I don't think that matters. You have a wonderful webpage. And you do so well Erinne. Great how yo do in school. And I'm so happy for you that you got a service dog. Will check back when I can find the time. I hope you'll be doing as well as possible. Name: Tracey Downey TodayHi Erinne, I was one of your nurses at CHM when you were in the PICU for a very long time. I think you were around 2 years old. I often think about you and this week I was watching the TV program HOUSE and they had a patient with SMA. So of course I thought of you and decided to go on the computer to check on you. I remembered from before that your mom had a website for you. I am so happy see you are doing well-- I see you have had some bumps in the road--but wow! do you have a BEAUTIFUL smile!! Your dog is very cute!! I am sure you don't remember me, but one of the things I have ALWAYS remembered about you and your mom--is how hard your mom fought for you!! (Also, I remembered your long curls! =) ) You were having alot of respiratory issues when you were in PICU and your mom refused to give up--She was right--look at you now, what a pretty girl. I would like to send a donation to help with your van. Where should I send it? Hope you are enjoying the sunshine, it is a beautiful day today!! God Bless you Erinne, Tracey Name: Misty Partee TodayMommy to Tori Nicole SMA type I/II. Such a nice web page!!! Oh, and GOOOOOO Red Wings! hahaha Name: Debbie Koehler TodayHello, I am a friend and neighbor of Lucy French. She sent me your wreath order form and I would like to order a Victorian wreath. I will get the check to her this week. I wanted to let you know that Chris Osgood lives on Penniman between Sheldon & Harvey on the south side of the street in a newly built home. His wife owns a bead shop in downtown Northville. I'm sorry that I don't know her name or the name of her shop but I can get it for you. I have a friend who makes jewelry and knows her well. Take care! Debbie Koehler Name: Peg Bailey TodayErinne, You are in my thoughts & prayers. I hope you feel better very soon. Love and Hugs ~Peg Name: Amy and Evan Brickner TodayHi Erinne and Suzanne: I've been following your journal and see that you've had a busy and somewhat eventful summer! I hope that Erinne, you're off to a GREAT school year and that Suzanne, you're feeling better after your recent surgery. I think of you often....Evan just turned 12 can u believe? I will always be "indebted" to all of the support and advise and love you showed toward us in the early days at BGH. Stay Well....would love to chat sometime. luv Amy and Evan Drew Brickner Name: Stacy Saville TodayHi Erinne! I hope that you all are doing great ~ and that your mom is doing well after her surgery! We love you all! XOXOXOXOXOXOX Name: jessie Todayhi Erinne this is jessie. i miss you alot!!!!!!!! well talik to you lATER BY Name: Kaitlin Nichols TodayHey, What's up Erinne. It's me Kaitlin. I hope you are glad summer is over. I sure am. You know,you are right now over the summer a 5th grader. The 5th grade teachers are Miss Peltier Mr.Anderson and Mrs. Palmer. I hope you get Mrs.Palmer because she is the nicest teacher and i also had her. But i won't be here because i'll be a 6th grader at Central middle school. Well have a great summer!!! Name: Kelly.s Todayhi erinne!!!!!!!!!!!!!!!!!!!!! Name: Kelly Todayschool is almost over erinne!!!!!!!!!!!!!!!!! Name: Kelly TodayErinne you are smart and nice I hope to see you at school. I hope you pass fourth grade erinne. Name: Kelly Todayhave a good day!!!!!!!! Name: Aaron Miller TodayHi Erinne I hope you have a great summer. Thats all I really wanted to say. But this is my first time visiting your web site. Bye see you tomrow in school Name: Kelly Todayerinne i hope to see you at school! have a great summer break! Name: Kelly Todayerinne I hope you have a great summer. Name: Kelly TodayHi erinne hope you are doing good. Name: Denise TodayHello Erinne and Suzanne, I was so excited when I received your email!I hope Erinne is feeling well.Im so happy to hear little Ozzie has fit in so well with your family,and that he and Erinne have fast become friends.These little birds are capable of so much.I think he was waiting for Erinne to come take him home even before you two came to the store.I hope he makes her smile and gives her the love she deserves.Well I cant wait to see you guys this week!!!Enjoy the weekend Your friend Denise
Name: Emma TodayThis is for Erinne i am 14 and although i dont know anyone who has sma i was on your site you amaze me if you would take time to email me i would love to take an inside look at your life emma_4893@yahoo.com i am not some criminal i am a 14 year old girl from utah Emma Name: Traci Zuzelski TodayHI Erinne! :) I can't believe how much you have grown and changed since I last saw you!! :) I am sure you probably don't remember me, but your mom might:) I used to work at Children's and met you there several years ago now. Ralph (a PT) and I (OT) met you and got to know you when you were 4!! -now you are 10!! Happy Birthday! :) I saw a picture of you on Malorie Fox's website and saw the spelling of your name and thought- I bet that is Erinne Williams! ... and sure enough- it's you! :) You look so great! I still remember how your mom had to cut your hair once because it had gotten tangled up pretty good when you were staying at Children's! I was just reading a journal update on Malorie's sight and Michelle had your link on there, so I just had to click in and say "hi!" :) I will keep you in my prayers as you recover from your spinal surgery. You and Malorie sure are VERY strong and tough girls:) It's great to see your picture. When I met Malorie over 3 years ago when we moved to Grand Rapids, I wondered if maybe you girls would get in touch some day, I'm glad you are:) Say "hi" to your mom:) Traci Zuzelski Name: Stacey TodayHi Erinne, I'm glad your surgery went well. I hope you are in no pain... Happy Belated Birthday. Take Care Name: Claire Nelson TodayHappy belated birthday Rosie! Steve & I miss you and hope you got our card. I'm glad your surgery went well. Give me a call sometime so we can see you! Love you & miss you. xoxo Sissy Name: Kristy Hetzel TodayHAPPY HAPPY 10TH BIRTHDAY ERINNE - We hope you have a wonderful day!!!! Enjoy your visit with your friends. Kristy, Eric, Zachary & Jessica Hetzel
Name: Amy and Evan Brickner TodayErinne; Evan and I have been reading your journal and keeping up with everything you're going through. We're SO HAPPY that the surgery is now behind you and you are on the road to recovery!!! We also want to wish you the BEST BIRTHDAY ever!! I remember when you were born!!!! We love you and your mom and would love to see you all (including Latte) sometime! It would be fun...Take Care and keep on keepin on!! Name: Brandy D. Shifflett TodayI hope you have the best birthday ever. Wow... you are one decade old! You go girl! XOX & Kisses, Brandy & Emma(3 years old, SMA type II) Name: TodayDear Erinne, I am so happy that your surgery went well--God has been listening to our prayers. I also wanted to wish you a very happy 10th birthday. Stay sweet! Love, Mrs. Strang Name: Karla C. Hopkins TodayWay to go Erinne! I am so happy that you are at home now. Stay safe and enjoy your birthday. Suzanne, I know that you need lots of rest yourself. Take care and I will continue to pray for your all. Karla Name: Martha Slay TodayI loved reading that everything went so well. Hooray, you get to go home tomorrow!!!! That's wonderful. Keep smiling Erinne. Love from all of us. And, Suzanne - enjoy a long hot shower:) Name: Carolyn TodayHi Erinne, Glad to hear your surgery went well & you are on a good start to your recuperation! I so understand about Latte missing you while you were in surgery--I have a dog, Snickers, who will be 15 tomorrow! She has been with me through all of my ups and downs and truly knows my moods---it's so wonderful to enjoy the love & companionship of a best, furry friend. I'm looking out at this nice sunshiny day hoping you will be able to enjoy the weather outside the hospital soon! I hope, also, that your nom is taping the Redwings' games to watch when you are feeling better....this has been some exciting playoff hockey! You're in my thoughts! hugs, Carolyn (PT--CHM Novi) Name: Jim Johnson TodayHowdy Erinne and welcome home! I hope that all is well and that you will be home today as your journal said. Do know that you have been in our thoughts and prayers for a successful surgery and a speedy recovery. We miss you!!! All the best, Mr. Johnson P.S. Give Latte' a scratch on the head for me.
Name: DIANA ADAIR TodayHI ERINNE, HOPEFULLY YOU ARE HOME FROM THE HOSPITAL TODAY AND FEELING MUCH BETTER. I HAD NEVER READ THE JOURNAL BEFORE TODAY DAH. I'LL ADMIT I HAD TO CRY WHEN I READ ABOUT THE REUNION AFTER SURGERY WITH YOU AND LATTE. ERINNE IS SUCH A BRAVE AND SWEET LITTE ( I GUESS I SHOULD SAY BIG GIRL). DIANA ADAIR
Name: Mrs. Mulvihill TodayHey Erinne! I missed your smiling face rolling in this morning. I hope you are feeling a little bit better this morning after the long weekend. You are a very strong and courageous individual! Just wanted to drop a line to say that I was thinking of you! Get better and come back to school soon!
Name: Kristy Hetzel TodayYeah Erinne - I am so happy you will get to be home for your 10th birthday!!!! Keep up the hard work - I hope you start to feel better soon. Kristy Hetzel Name: Mrs. P. (Anthony's Mom) TodayHi Erinne, I was sure happy to hear that your surgery went well. I know your mom and Latte are glad it is over, too! You just keep hanging in there, girl! I can't wait to see your smiling face back at school. Have a great 10th birthday!Wish your mom a "Happy Mother's Day" from me.See you soon I hope. Take Care, Mrs. P. Name: Ian (and Liz) Zurawski TodayHi, Erinne. My mommy's helping me write this to you since I'm only 18 months old. We read the postings about your surgery and are glad to hear it was a success. Sorry that your tummy hurts but we bet you feel lots better with Latte back at your side. I hope you feel better soon and have a happy birthday! Ian (and Liz) Zurawski. Name: Sarah Schulte TodayHey Erinne!!! I'm glad to hear that your surgery went as well as could be expected. I had no doubts considering how tough you are! I miss you and can't wait to see you (and how much you have grown)at camp! I bet you're taller than I am now (5'4'' on a good day)... oh no! Hope your mom is holding up as well as you are! My thoughts and prayers are with you both, and Latte too! :-) Sarah Name: Ashley TodayHi Erinne, I am praying for a quick recovery. You are an inspiration to us all and a special gift from god! Suzanne, I hope you have a most special Mother's Day and god be with you all.
Name: Charlie, Lily, John & Kim TodayErinne -- We are sending BIG hugs your way. We need you to get better soon so we can see that BIG BEAUTIFUL smile again. Hugs from the Sykora's
Name: Melanie TodayHi Erinne! Just a quick note to you and your mom to let you know that my family and I are thinking about you. I plan to come up and visit you when your feeling a little bit better. Tyler, Hannah, and Gracie all say Hi! Melanie Name: Beth Pruitt TodayErinne: Sorry to hear your tummy is acting up. You continue to be in our thoughts and prayers. Get well soon! Dani, Beth and Frank Pruitt Name: The Truesdails TodayDear Erinne, My goodness girl, I thought you were cute before but you seem to be getting more and more beautiful with every photo I see. Suzanne you will be in big trouble when she gets to her teens!!! I prayed for you both yesterday morning as I do now that everything turns out fine and that God takes away any pain. I always think of that movie The Green Mile, wouldn't it be nice if there was someone that could just take all the pain out of you. Moms have that knack I suppose. Hugs and kisses can do a lot for "boo-boos" around here anyway. Take care of each other, know that you are always in my thoughts. Call if you need anything. I am sending you both a big "virual" HUG right now. Keep as posted on your progress. Love you all, Abeer, Doug, Hady, Halima, and Gabriel Truesdail
Name: Chris & Cynthia TodayYYYYYEEEAAAAHHHHHHH, hopefully the worse is behind you. So glad the surgery went well, now just to get her extubated and to stay extubated. Isn't it awesome when the docs actually listen to us??? Poor Latte, seems like this is roughest on her... hope you get some sleep Suzanne or I will send the sedation fairy to stalk you!!! Hmmmm, I'm sure Miss Erinne is the tallest of our girls now!! Love, C& C Name: Sallie Capen TodayJust wanted you to know that we are keeping our prayerful attention on Miss Erinne and her tired mom. We are so glad to hear things have gone well so far. Much love, Grandma Sallie Name: Judy Nichols TodayOur prayers are with you for a speedy recovery! God Bless! The Nichols Name: Barb Ulewicz TodayHi Suzanne, I was so happy to read that Erinne's surgery went so well. I was thinking of her throughout the day. It's so neat that Latte is able to be with her too. I'm sure she's such a great source of comfort to Erinne and you, like having an extra member of your family there to share all your emotions with, and to give Erinne that extra reassurance that her best friend is close by. We have 3 dogs ourselves -Brandi, Romeo, and Gracie (I'm her Granny actually! When our daughter gets married next July, Gracie goes with her. She's still a puppy (a toy fox terrier). But I know with our son, Brian, "the poochies" are his entertainment and so much happiness (not to mention, never a dull moment!) Alot of people are surprised that we'd have 3 dogs with also having a handicapped child, but we wouldn't have it any other way! But back to Erinne - I found her journal and the whole website so fascinating. You sure can tell how much she's loved, and what an exciting life she's experiencing! Brian also is a big Red Wing's fan (also the Pistons!). Steve Yzerman called our house when Brian was around 10 years old and invited him, and my husband Ron, and our older son, Ronnie, to come and watch the Wings at practice and to visit with them in their locker room. This was arranged through MDA (Bev Weingarten, from the East office). And this was when Scotty Bowman was coach. They gave him alot of autographed items too, like I'm sure Erinne received. So, when Brian joined the WCHL back in 1998, there was maybe only 15 players, and no one picked #19, so Brian did! We also showed up at the Southfield Civic Arena (in '98) to see what this hockey league was all about. I remember a flyer was sent to us from MDA because the league (at that time mostly just a small group getting together to play hockey) was going to be featured on the Telethon that year. I talked Ron into going and the rest is history - Brian joined within a couple of weeks after and the number of players grew too. And when we showed up that first day, Brian also was just recovering from scoliosis surgery. He had the surgery in July, and still had a special padding for his back, and when they asked him if he wanted to try it out there on the ice, he said ok. And he was hooked on playing hockey from that day on! So, tell Erinne to hang in there and keep strong! We wish her a steady and healthy recovery. If she's able, it would be great for her to come and watch the playoffs. Brian in all his years of playing, has only been on one winning team to win the cup. That was in 2005 with the Hornets, and right on his 21st birthday! What a birthday present that was!! So, take care and hope to see you both soon! Barb Name: Julie, David's Mom TodayHi, My name is Julie, and I'm mom to David. He has been gone for six years now, but I think of him every day. He went through this surgery, too, and came through surprisingly well and fast. I will remember and pray for you tomorrow and in the days following! Name: Karla Hopkins TodayI am so happy that Erinne's surgery went well. I will continue to keep her in my thoughts and prayers. Thank you for keeping me on the list to receive information. My prayers are with you all, Karla Name: The Saville Family TodayHi Erinne! I'm so glad to hear that your surgery went well! We'll be praying for a speedy recovery, and I hope you are home by your birthday! We love you! XOXOXOXOXOXOXOXOXOXOXOXOXOX Name: Olivia Werstein & Family TodayHi Erinne - Hope you are feeling better. We hope to talk to you soon. Hope to see you before camp. Olivia Name: Mrs Derkos' Class TodayHi there Erinne! We were so happy to hear the great news about your surgery! We are so proud of you and how brave you were throughout this tough time. We wanted you to know that we were all thinking of you. Here is a message from everybody that was here today. The absent people will send you a message when they return. We hope you enjoy reading each one and that they bring a smile to your beautiful face! Hang in there and be strong! We miss you and can't wait to see your smiling face again soon! Happy Birthday!!!!!! Love, Mrs. Derkos hi erinne i hope your surgery went pretty well and i wonder if your okay i was wondering if you coming back my nick accout itis 1 young ag pass carlock 4sincerly adonis carlock therdoor rayfield juner Dear Erinne I hope you are doing well because your my friend. do you like the room you are in. see you in a little bit bye.McKenzie. Dear Erinne how are you doing.How does it feel to be aimost 10 years old .How do fell.Did your surgary go.Hurry back.Love Gabby Hi Erinne I hope you get better soon. I want you come back soon. I loved your cookies you gave us. I wish you best of luck in recovering. from Sara Findsen How are you doing Erinne I wish I was herethe day you were here. You have the best time recovering. Hope you get better because you are the best! your the best and your friend, Samantha Howell Dear Erinne, get well soon and i hope you can come to school really really soon.HAPPY EARLY BIRTHDAY hope you can meet us at school before your birthday. YOUR FRIEND, AMMEN HUSSAIN Dear, Erinne I hope you recover from your back surgery soon because I will be waiting for you as soon as you come back I already miss you so I hope you recover soon. Yours sincerley, Abpreet Kaur Dear, Erinne I heard your surgery went well so I wanted to congraglate you and wonder that if you need anything I will be there for you. Yours Truly ,Dejion Jones Dear Erinne, I am glad your surgery went well. I miss you I can't wait until you get back!!! Good luck recovering! Your friend , Leah Hi Erinne , I miss you so much!!!! I hope you recover fast, it's lonly at our table with out you . Best wishes Kahrlee hey Erinne! I'm really happy that your surgery was fine! I miss you a lot!!! I hope you come back to school soon. It's really fun when you come over my house!!! I hope you get well soon! Your Friend, Melissa Hi Erinne, I hope you did good with surgery. I will miss you the time you recover. From: Jared Dear Erinne I'm glad your surgery went well. Have a good weekend. See you on Monday or later. Aaron Howdy Erinne! How Did it go I hope your ok! I really care for you and I mean it! Were you scared at first? I would be freaked out! I hope you like the message!!! Joe Dear Erinne Good luck with your surgery I hope you recover from your surgery tell us when your coming back P.S. It will be the best day ever! Jaykeb Hi Erinne Happy Bithbay I hope it is not your bithday yat But if your not there on Wednesday I jast wan to say it agin Love Anthony Hi Erinne,i just was wondering if your surgery went good.if you want to talk,just message me at meatpuppet1996@yahoo.com Daniel. Dear Erinne I hope you feel A lot better. I heard your surgery went very well. Your friend Ryan Hi Erinne I hope your doing well also hope you come Back soon. from Hunter Dear Erinne, I am so happy your surgery went by good and I can't wait until you recover and come back to school so hi and I will miss you Taylor Williams Name: Tonya and William TodayErinne! So glad to hear that your out of surgery and everything went well. I know Latte is so glad to be back by your side. We know you'll be back up and running soon. Take a few days to recover, okay? Your mom and Latte need it, even if you don't. You're always in our thoughts! Love, Tonya and William Name: Kim Burger TodayI am so glad the surgery went well. We will be praying for a quick recovery so that you can be home on your birthday. I'm sure your little companion will be barking up a storm when you wake up. nonnakim
Name: Beth Pruitt TodayErinne: So glad to hear your surgery went well. You have been in our thoughts and prayers today. Keep up the good work and hope you get home for your birthday! Dani, Beth and Frank Pruitt Name: martha slay TodayErinne, I love these pretty pictures of you. We are praying for you and trust God to give you the strength and the grace to move through every stage of your time in the hosptial. We think you are a very brave and wonderful girl Love From all of FightSMA Name: Andrea Smith TodayBy this time, you're probably almost done with your surgery, but I want to wish you good luck anyway. Don't pick up any bugs in the hospital, stay well and get home soon! I'll be watching the Red Wings game for you tonight! (((HUGS))) Name: TodayHi Suzanne and Erinne - we are thinking of you today and praying. We hope all is going well this morning and you get home before your birthday!!!! Kristy Hetzel Name: Laura TodayErinne, we're thinking of you today! ((Hugs!))
Name: Jeni & Annah Today
We're thinking about you this morning and can't wait to hear that your surgery is done and you are officially taller than me!!!!!!! Name: Charlie's mom Today
Thinking of you RIGHT now as you go into your surgery. Charlie says that he'll want to know how the first lengthening goes :0)
Name: Deb Postma Today
Hi Erinne,
Just wanted to let you know we will be praying for a successful surgery today. Stay strong girl! Name: Kaitlin Nichols Today
Hey Eirinne,
What's up? Congratulations for meeting your red wings players again. I hope you took lots of pictures. Name: melissa Today
hey Erinne!!!!!
i hope to see you at school mon. how was Washington? Did you meet the president? (I'm just joking.) Name: Visha Today
Erinne - You are BEAUTIFUL. I just looked at you in the pictures of your sisters wedding, and you are just gorgeous! Name: Jenna Today
Hi Erinne,
My name is Jenna and I came across your site. I absolutely love hockey! My friend Reid Jorgensen went to
Name: jessie!!! Todaysup erinne goi just wanted to say hi see u at school tell lata i said hi
Name: melissa & jessie Todayhey
erinne! I hope your next sugerey turns out fine. i love petting
latte! it's good that your mom's ankle is turning out ok. Name: Julie RN TodayHello, sorry to hear that the surgery was cancelled, Erinne will be in my prayers.
Name: Casey McAdams TodayHi I am happy to be signing your guestbook. :) Hi
Erinne. :) I wish you luck on your surgery. I'm sorry you have to
have it.:(
Name:
Anthony Przytulski Today Hi
Erinne, I just wanted to say thanks for the Red Wings poster you
gave me. I hung it up on my bedroom wall. Name: Mrs. Mulvihill Today
Hey kiddo, I just signed on hoping for
an update on your surgery but read that it was cancelled. I know you
must be
Name: Debbie Landon TodayErinne and Suzanne, You are both in my prayers. Thank you for keeping me up to date on Erinne. Best Regards Debbie
Name: stacey
Email: millerstacey@verizon.net Date: Wednesday, April 04, 2007 TodayHi Erinne, I hope your surgery goes very well, also you have
a speedy recovery... Take care.
Name: The
Saville Family
Date: Monday, March 05, 2007 TodayWe are thinking of and praying for Erinne. I know that the
next two months will be difficult. |