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Submitted by Comments:
Name: Sally Tre-Vett
From: England
E-mail: sallytv@btinternet.com
Your story touched my heart, your birthday is the same as my son. Keep smiling young man!! xx
Added: August 3, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Debby St. Onge
From: Swan Lake, MT
E-mail: debbystonge@gmail.com
Hi Charlie and family,
Sounds like you are keeping very busy. Your summer is going to fly by just like ours is! It's going to be time for birthdays and then school very soon! Hope all is well. It was great seeing some of you in KC! We decided we are coming back next year cause we had too much fun and there's lots we didn't get to do so we'll see you then!
Debby & Veronica
Added: July 23, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Nana Barb
Website: http://www.drewbie.info
Hi,
I have enjoyed reading Charlie's story and looking at all the pictures. My grandson, Drew, also has SMA. Like Charlie, he has a full and wonderful life. I wish your family a wonderful summer! I'll be checking back regularly for updates.
Nana Barb
Added: July 18, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Jana and Kyle Gundy
From: Oklahoma
Website: http://www.oursmaangels.com/kyle
E-mail: jana.kylesmom@gmail.com
Hey Charlie! we can't wait to see you all again! plus, we get to meet emma for the first time, what fun! Tyler is SO into spongebob now, it was only a matter of time! He's even getting some spongebob crocs this weekend. Barring anything else happening, we're coming next week. I can't wait!
Added: June 19, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Amy Weindel
From: Omaha, NE
E-mail: amyweindel@cox.net
Hi Sykoras -

I hope that Charlie's surgery went well. He has been in my prayers. Love the pictures of Emma - she is an absolute doll (like all of your kids)!

Hope your summer is full of fun!
Amy Weindel
Added: May 29, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Jeanna and Lizzy
Hey there just been thinking about you all day Big guy!! We are hoping you are doing well. Lizzy says you are still her boy friend and she loves you and and and..... she hope you dont hurt too bad. She says you need Motrin and and and you are in her prayers
Added: May 27, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: MJ
From: Ohio
Website: http://www.our-sma-angels.com/Margaret
E-mail: b4sma_kids@yahoo.com
Thanks for the picture of you in your Wright T-shirt. You are getting too grown up! I love you!
EEEEEEEEEEEEEEEEEEEEEEEEEEEhugs
Added: May 9, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Denise Orloff
From: Lawrence, KS
E-mail: dorloff@kumc.edu
It's so exciting that you got to go to Disney World! I've always wanted to go but I still haven't. Maybe someday.
Added: May 7, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Debby St. Onge
E-mail: debbystonge@gmail.com
Hi Charlie and family!
Hope all is going well for you, haven't heard from your mom in a while. We are looking forward to seeing you this summer.
Debby & Veronica
Added: April 25, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: michael zolezzi
From: California
E-mail: michael.zolezzi@cowen.com
Good morning Charlie,
I am so glad your mom and dad show us your photos. Wow are you growing ! You mom must be a good cook. Sadly I stopped growing a long time ago. I bet you are happy the cold weather is over and now you can go outside without a jacket. I think my favorite part of the summer is the ice cream. My favorite flavor is definately strawberry. What is your favorite flavor ? Isaw those photos of you at Disneyworld in Florida. I don 't know if you have been to the Disneyland in California but it certainly is a fun place. You could come out to California to see Disneyland in Los Angeles and then come up to San Francisco and see my family. I met your mom once in Sausalito for dinner.
Keep growing and smiling.
Best,
Michael
Added: April 14, 2008 Delete this entry  Reply to entry  View IP address  

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