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Submitted by Comments:
Name: Erinne & Suzanne
From: Canton, MI
E-mail: Erinnesmom@gmail.com
Devon, We will NEVER forget. Happy 13th Birthday, Buddy. We love you -- and your Mom, Dad and Sister. xoxoxox
Added: May 16, 2011 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Antonio
From: Redding,Ca
E-mail: nortebrown4life@live.com
Your story of your son Devon touched my heart. I'am a father of a child diagnosed with SMA from birth and am still in the fight to prolong the time we have with him. I am sure that your son was so precious to your entire family. And nothing could ever replace the emptiness in your lives where Devon once stood. It kills me inside to know many other families have these kind of hardships to go thru.I feel all the pain you've gone thru and Hope with the lords help,that I to may find peace. You are an inspiration to many. With your help we may shed enough light about SMA to bring forth a new line of treatments and or cure. Our children will laugh and play together in the presence of our Lord.Thank you so much for sharing the story of your sons life, forever loved.I pray for the rest of your family and wish nothing but the best for you and your husband. Sincerly , Antonio.
Added: March 26, 2011 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: sonia
From: pakistan
E-mail: sonia9631@hotmail.com
Laura you are definatly a strong mother. I had been through the same in june 2000. My son died at the age of two and the half months. The worst thing about sma is you see your baby getting worse day by day and you cant help him. you wish to give your baby your health and life and take all his pain but you just cant. I cried alot while reading your story. Your son is in the heaven.
Added: November 13, 2010 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Nathalie
From: NC
I came across your story as I was researching SMA. It truly touched my heart. My son was recently diagnosed at the age of 2 months. We have brought him home to live out the rest of his wonderful days with us!
Added: October 20, 2010 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: harsha.k.m
From: india
E-mail: harsha_nursing@yahoo.com
even i loss my child with SMA before his first birthday
Added: August 7, 2010 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: emilee
From: georgia
E-mail: emileezorda213@yahoo.com
you guys were great parents. i hope he will wait at the greatgait of heven

<3 <3 <3 <3 <3 <3
Added: June 3, 2010 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Suzanne & Erinne
From: Canton, MI
E-mail: Erinnesmom@gmail.com
HAPPY, HAPPY 12th BIRTHDAY, DEVON!! You are never far from our thoughts on this, your shared birthday with Erinne. We love you Devon, and and so thankful for your Mom and Dad's willingness to turn their grief into something so special for all of the SMA angels to come after to you. Happy birthday, big guy! Don't pick on the girls too much! XOXOXOX Suzanne & Erinne
Added: May 16, 2010 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: NicoleBrinker
From: Millsboro DE
E-mail: BrinkerNicole@yahoo.com
I am so sorry to hear about ur son. I can say that because my son died but he didnt have SMA. We dont know why he died. I guess he was to small and plus he was born to early and he died 21 days later. He was born on DEC.30,2002 and died on JAN.20,2002. You did the right thing for him,Because i had to do the same thing to,I wasnt the one who said to let him go but i was there when it was said. I didnt know at first what SMA was but as i read through your story i understood. I could never want to go through what you did. I believe your alot stronger mother than i am. I can remember seeing my son when he was born and i told the DR. how can oyu love someone so much that you just met. he wasnt my first child, I had 2 sons before him. Then 4 years later i had a daughter. I have a 3,8,10 year olds. I love them to death i dont know what i would do without him. Me and my family is going through some rough patches right now. With their DR. Hes sittin in jail right now because he had raped and touched little girls from 3 months to 13 years old. My daughter is a victim. Its been hard fighting for her. because shes to young to fight for herself right now.I hated myself and blamed myself for what happened to her. I still do a little,but not as much. I know im a good mother and i would do anything for my children,I would even kill for them if i could but i dont have it in me to go to jail myself and not be around them everyday. But i hope that your little girl is doing okay and i bet shes gotten big too. I wish you and your family the best. If you want to e-mail me its (BrinkerNicole@yahoo.com.
Added: April 8, 2010 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Rebecca Walden
From: Wisconsin
Thank you for allowing me to get to know your little angel, I will never forget him
Added: June 24, 2009 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Suzanne & Erinne
From: Canton, MI
E-mail: Erinnesmom@gmail.com
HAPPY 11th BIRTHDAY DEVON!! We always think of you pn the shared birthday you and Erinne have -- you will be forever a part of our celebrations. I imagine that you and Erinne would get along famously -- she is such a tomboy and prefers to hang out with guys, doing guy things -- sports, video games, Pokemon.....rather than girly stuff. We hope you are having a wonderful celebration with your brother and all of your guy friends. Know that you are forever in our hearts. We love you buddy! XOXOXO
Added: May 16, 2009 Delete this entry  Reply to entry  View IP address  

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