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Submitted by Comments:
Name: Kandis
From: Kelowna, BC
E-mail: kandie_babi@hotmail.com
Hi Beautiful Devon,
I was reading all the lovely things your mommy had to say about you, and looking at all of your pictures, Your life was short but your mommy made sure that she made every second count.
RIP sweet boy, and I hope your having lots of fun up there. Keep sending hugs and kisses to mommy.
xox
Added: December 30, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Tina King
From: Newark, Ohio
E-mail: realitybites1978@gmail.com
As I read Devon's story....I could not stop myself from crying. Hearing how much you loved your little boy and having to hear what he had to deal with just touched my heart beyond words. I sit, holding my 5 1/2 month old son thankful that he is healthy. If nothing else, your story has made me even more thankful that my son is alive, well and healthy.
Added: December 16, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Liz Dutzy
From: Olathe, KS USA
E-mail: kalairsmom@yahoo.com
Hi Devon! I was just visiting your site tonight, and I thought I'd stop and tell you and your mommy how much I was enjoying you. I hope you are having a wonderful day in heaven, sweet boy. Kiss my Kalair please when you see her again. And make sure you send lots of kisses down to your mommy, I know she misses you so very much always... Lots of love, Liz, Kalair's mom
Added: November 26, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: malay
From: boston,MA
E-mail: malay.guerrero@yahoo.com
I LOsT My bABY COUSIN AND I WILL HELP CURE SMA!!
-MALAY
Added: November 11, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: joanne davock
From: england
E-mail: paul.davock@virgin.net
my 26 year old nice as just lost her baby to sma type 1 a little girl.4 months ago she named her mia jane. she was 8 days old. your story really pulled at my heart strings sma was something we knew nothing about or even heard of i really dont know what to write its very difficult but i am glad you feel at peace with gods help you are in my thoughts and prayers mia jane was so beautifull black hair and big brown eyes i was at the hospital the night they took her off the ventilater she then lived for a further 3 hours
Added: August 3, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Sue Lockhart
From: Tahj's grandma
E-mail: slockhart62@yahoo.com
Hi, I read some of the journal you have it is such a blessing you did that I got tears in my eyes reading what i read. God bless you all hope you are dong well.
sue lockhart... Tahj Cookes grandma
Added: July 27, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Pat Ross
From: McHenry, IL
E-mail: pross2002@sbcglobal.net
Laura, I want to thank you. Not just for sharing your beautiful family's life with us, but for all that you have done, all that you do and will do in the future.
It's hard to read the stories and yet I feel the need to ALWAYS keep all our babies in my heart as I feel sure all who have been affected in any way by SMA do.
Thank you from the bottom of this old heart.
From Sophia's GaGa
Added: July 24, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Suzanne & Erinne Williams
From: Csnton, Michigan
E-mail: Erinnesmom@gmail.com
Happy Birthday Devon from your birthday buddy Erinne! (Sorry -- I didn't post it yesterday!) You know Erinne's birthday would not be complete without including you. We will ALWAYS remember you .... and include you in the celebration. Laura, Steve & Kaylee ..... Devon will never be forgotten. We will always remember him ... sending our love & hugs .... XOXO
Added: May 17, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: aiza ruiz
From: puerto rico
E-mail: ruiz.aiza@yahoo.com
I'm studying to be anurse and needed info on SMA,I read your story and felt it as if i'd been next to you all the way through. He was a beautiful baby and God chose perfectly the parents for him. I admire your strength, I know of no one capable of withstanding such pain.You and your hasband don,t know me and I don,t know you personally but you,ll be in my prayers and so will be Devon.
Added: April 11, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Kim Roberts
From: Starkville, Mississippi
E-mail: kim@robertsbridal.com
I have no idea what brought me to your page, but somehow I searched for something totally unrelated - and clicked on a link to Devon's Story. As a nurse, I had a sense that the story would be emotional & heart-wrenching. I read through the months that you described – and gradually, the tears began to sneak out – at first just slowly one-by-one. I have 2 sons (ages 6 and 9) and I know when they saw me they were wondering why I was so sad – and I told them that I was reading a story about a little boy that was sick. Then, as I reached Devon’s 11th month, I could feel the emotion reaching a higher level. At the end of the story I viewed the photos of each month of Devon’s life – the tears were still one-by-one. When I saw Devon’s last photo, something caught in my throat, and the sight of his gravestone brought the tears in floods. I know that I must be dehydrated now, because the thought of such a precious little boy facing such an early end – it’s too sad to think of. Although Devon’s death was unfortunate – I can see that his life was beautiful… and I feel so blessed for having read about your experiences losing two sons to SMA. I say blessed because your story will remind me to cherish every moment with my own children, and not to take their health for granted. I was a pediatric nurse for 5 years, and occasionally I met parents facing the same difficult decisions that you described. However, I knew nothing about SMA until now. Your words gave me a better perspective of what a mother is feeling – when she only wants what is best for her child. And shame on any health professional for making a parent feel guilty about what they know is best for the child. I praise you for helping ease the pain and suffering so that Devon could spend his last moments on Earth – and in your arms – in Peace. He knew that he was loved – and he loved you! Thanks for sharing Devon’s story, and yours.
Added: February 29, 2008 Delete this entry  Reply to entry  View IP address  

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