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Submitted by Comments:
Name: Stephanie
From: Nanaimo, Vancouver island BC
E-mail: thecanadian02@hotmail.com
This is such a beautiful tribute to an amazing little boy. Devon has touched my heart and because of him and your ability to tell his story I will be a much better mom to my little man. I will be more patient, loving and understanding. I will enjoy each moment and evey hug. Thank you for this gift.
Added: February 7, 2012 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Jan Hunter
From: Norfolk, England
E-mail: janet.hunter@hotmail.com
I found your site through looking up information on SMA1 as my Granddaughter who lives at home with us was diagnosed just before Christmas. She is 6 months old and called Katelyn, her Mummy`s name (my Daughter is called Rachel).
Added: February 4, 2012 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Sallie Capen
From: Olathe, KS
E-mail: kalairs-grama@comcast.net
Thinking about you and your dear mother sweet boy. Just because
Added: September 22, 2011 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Patty Kloster
From: Minnesota
E-mail: pmtdklos@wah.midco.net
Hi Laura ~ I check in here occasionally. It always seemed like I had met Devon for some reason. Although we never met in person; but perhaps some day. Only a mother who has lost a child can try to relate to all of your feelings. But you will never ever forget! God Bless you, Laura!! Sending you hugs!!

Patty
Added: August 4, 2011 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Erinne & Suzanne
From: Canton, MI
E-mail: Erinnesmom@gmail.com
Devon, We will NEVER forget. Happy 13th Birthday, Buddy. We love you -- and your Mom, Dad and Sister. xoxoxox
Added: May 16, 2011 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Antonio
From: Redding,Ca
E-mail: nortebrown4life@live.com
Your story of your son Devon touched my heart. I'am a father of a child diagnosed with SMA from birth and am still in the fight to prolong the time we have with him. I am sure that your son was so precious to your entire family. And nothing could ever replace the emptiness in your lives where Devon once stood. It kills me inside to know many other families have these kind of hardships to go thru.I feel all the pain you've gone thru and Hope with the lords help,that I to may find peace. You are an inspiration to many. With your help we may shed enough light about SMA to bring forth a new line of treatments and or cure. Our children will laugh and play together in the presence of our Lord.Thank you so much for sharing the story of your sons life, forever loved.I pray for the rest of your family and wish nothing but the best for you and your husband. Sincerly , Antonio.
Added: March 26, 2011 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: sonia
From: pakistan
E-mail: sonia9631@hotmail.com
Laura you are definatly a strong mother. I had been through the same in june 2000. My son died at the age of two and the half months. The worst thing about sma is you see your baby getting worse day by day and you cant help him. you wish to give your baby your health and life and take all his pain but you just cant. I cried alot while reading your story. Your son is in the heaven.
Added: November 13, 2010 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Nathalie
From: NC
I came across your story as I was researching SMA. It truly touched my heart. My son was recently diagnosed at the age of 2 months. We have brought him home to live out the rest of his wonderful days with us!
Added: October 20, 2010 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: harsha.k.m
From: india
E-mail: harsha_nursing@yahoo.com
even i loss my child with SMA before his first birthday
Added: August 7, 2010 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: emilee
From: georgia
E-mail: emileezorda213@yahoo.com
you guys were great parents. i hope he will wait at the greatgait of heven

<3 <3 <3 <3 <3 <3
Added: June 3, 2010 Delete this entry  Reply to entry  View IP address  

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