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Submitted by Comments:
Name: Suzanne & Erinne
From: Canton, MI
E-mail: Erinnesmom@gmail.com
HAPPY, HAPPY 12th BIRTHDAY, DEVON!! You are never far from our thoughts on this, your shared birthday with Erinne. We love you Devon, and and so thankful for your Mom and Dad's willingness to turn their grief into something so special for all of the SMA angels to come after to you. Happy birthday, big guy! Don't pick on the girls too much! XOXOXOX Suzanne & Erinne
Added: May 16, 2010 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: NicoleBrinker
From: Millsboro DE
E-mail: BrinkerNicole@yahoo.com
I am so sorry to hear about ur son. I can say that because my son died but he didnt have SMA. We dont know why he died. I guess he was to small and plus he was born to early and he died 21 days later. He was born on DEC.30,2002 and died on JAN.20,2002. You did the right thing for him,Because i had to do the same thing to,I wasnt the one who said to let him go but i was there when it was said. I didnt know at first what SMA was but as i read through your story i understood. I could never want to go through what you did. I believe your alot stronger mother than i am. I can remember seeing my son when he was born and i told the DR. how can oyu love someone so much that you just met. he wasnt my first child, I had 2 sons before him. Then 4 years later i had a daughter. I have a 3,8,10 year olds. I love them to death i dont know what i would do without him. Me and my family is going through some rough patches right now. With their DR. Hes sittin in jail right now because he had raped and touched little girls from 3 months to 13 years old. My daughter is a victim. Its been hard fighting for her. because shes to young to fight for herself right now.I hated myself and blamed myself for what happened to her. I still do a little,but not as much. I know im a good mother and i would do anything for my children,I would even kill for them if i could but i dont have it in me to go to jail myself and not be around them everyday. But i hope that your little girl is doing okay and i bet shes gotten big too. I wish you and your family the best. If you want to e-mail me its (BrinkerNicole@yahoo.com.
Added: April 8, 2010 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Rebecca Walden
From: Wisconsin
Thank you for allowing me to get to know your little angel, I will never forget him
Added: June 24, 2009 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Suzanne & Erinne
From: Canton, MI
E-mail: Erinnesmom@gmail.com
HAPPY 11th BIRTHDAY DEVON!! We always think of you pn the shared birthday you and Erinne have -- you will be forever a part of our celebrations. I imagine that you and Erinne would get along famously -- she is such a tomboy and prefers to hang out with guys, doing guy things -- sports, video games, Pokemon.....rather than girly stuff. We hope you are having a wonderful celebration with your brother and all of your guy friends. Know that you are forever in our hearts. We love you buddy! XOXOXO
Added: May 16, 2009 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Kandis
From: Kelowna, BC
E-mail: kandie_babi@hotmail.com
Hi Beautiful Devon,
I was reading all the lovely things your mommy had to say about you, and looking at all of your pictures, Your life was short but your mommy made sure that she made every second count.
RIP sweet boy, and I hope your having lots of fun up there. Keep sending hugs and kisses to mommy.
xox
Added: December 30, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Tina King
From: Newark, Ohio
E-mail: realitybites1978@gmail.com
As I read Devon's story....I could not stop myself from crying. Hearing how much you loved your little boy and having to hear what he had to deal with just touched my heart beyond words. I sit, holding my 5 1/2 month old son thankful that he is healthy. If nothing else, your story has made me even more thankful that my son is alive, well and healthy.
Added: December 16, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Liz Dutzy
From: Olathe, KS USA
E-mail: kalairsmom@yahoo.com
Hi Devon! I was just visiting your site tonight, and I thought I'd stop and tell you and your mommy how much I was enjoying you. I hope you are having a wonderful day in heaven, sweet boy. Kiss my Kalair please when you see her again. And make sure you send lots of kisses down to your mommy, I know she misses you so very much always... Lots of love, Liz, Kalair's mom
Added: November 26, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: malay
From: boston,MA
E-mail: malay.guerrero@yahoo.com
I LOsT My bABY COUSIN AND I WILL HELP CURE SMA!!
-MALAY
Added: November 11, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: joanne davock
From: england
E-mail: paul.davock@virgin.net
my 26 year old nice as just lost her baby to sma type 1 a little girl.4 months ago she named her mia jane. she was 8 days old. your story really pulled at my heart strings sma was something we knew nothing about or even heard of i really dont know what to write its very difficult but i am glad you feel at peace with gods help you are in my thoughts and prayers mia jane was so beautifull black hair and big brown eyes i was at the hospital the night they took her off the ventilater she then lived for a further 3 hours
Added: August 3, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Sue Lockhart
From: Tahj's grandma
E-mail: slockhart62@yahoo.com
Hi, I read some of the journal you have it is such a blessing you did that I got tears in my eyes reading what i read. God bless you all hope you are dong well.
sue lockhart... Tahj Cookes grandma
Added: July 27, 2008 Delete this entry  Reply to entry  View IP address  

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