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Submitted by Comments:
Name: Suzanne & Erinne Williams
From: Csnton, Michigan
E-mail: Erinnesmom@gmail.com
Happy Birthday Devon from your birthday buddy Erinne! (Sorry -- I didn't post it yesterday!) You know Erinne's birthday would not be complete without including you. We will ALWAYS remember you .... and include you in the celebration. Laura, Steve & Kaylee ..... Devon will never be forgotten. We will always remember him ... sending our love & hugs .... XOXO
Added: May 17, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: aiza ruiz
From: puerto rico
E-mail: ruiz.aiza@yahoo.com
I'm studying to be anurse and needed info on SMA,I read your story and felt it as if i'd been next to you all the way through. He was a beautiful baby and God chose perfectly the parents for him. I admire your strength, I know of no one capable of withstanding such pain.You and your hasband don,t know me and I don,t know you personally but you,ll be in my prayers and so will be Devon.
Added: April 11, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Kim Roberts
From: Starkville, Mississippi
E-mail: kim@robertsbridal.com
I have no idea what brought me to your page, but somehow I searched for something totally unrelated - and clicked on a link to Devon's Story. As a nurse, I had a sense that the story would be emotional & heart-wrenching. I read through the months that you described – and gradually, the tears began to sneak out – at first just slowly one-by-one. I have 2 sons (ages 6 and 9) and I know when they saw me they were wondering why I was so sad – and I told them that I was reading a story about a little boy that was sick. Then, as I reached Devon’s 11th month, I could feel the emotion reaching a higher level. At the end of the story I viewed the photos of each month of Devon’s life – the tears were still one-by-one. When I saw Devon’s last photo, something caught in my throat, and the sight of his gravestone brought the tears in floods. I know that I must be dehydrated now, because the thought of such a precious little boy facing such an early end – it’s too sad to think of. Although Devon’s death was unfortunate – I can see that his life was beautiful… and I feel so blessed for having read about your experiences losing two sons to SMA. I say blessed because your story will remind me to cherish every moment with my own children, and not to take their health for granted. I was a pediatric nurse for 5 years, and occasionally I met parents facing the same difficult decisions that you described. However, I knew nothing about SMA until now. Your words gave me a better perspective of what a mother is feeling – when she only wants what is best for her child. And shame on any health professional for making a parent feel guilty about what they know is best for the child. I praise you for helping ease the pain and suffering so that Devon could spend his last moments on Earth – and in your arms – in Peace. He knew that he was loved – and he loved you! Thanks for sharing Devon’s story, and yours.
Added: February 29, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Laura Stants
From: Kokomo, IN
E-mail: laura@our-sma-angels.com
Just testing out the new guestbook and the email notification...
Added: January 14, 2008 Delete this entry  Reply to entry  View IP address  

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