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We have 52 entries displayed on 6 pages.
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Submitted by Comments:
Name: theresa
From: philippines
E-mail: zarajames_delcastillo@ymail.com

 

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Added: September 28, 2011 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Ian Lewis
From: Hornell NY
E-mail: ianerificness@yahoo.com
i am 13 years old and i have some parts of type 2 and dome parts of type 3 SMA.
Added: August 27, 2011 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Shannon
From: Louisville,KY
E-mail: sjones61369@yahoo.com
My beautiful healthy Jada born Oct.13th 2008 was diagnosed with sma June 19th and lost her life July 22nd, 2009 at 9mths old. She is truly an angel.
Added: July 25, 2011 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Sharon
From: Salem NH
E-mail: sharonlee3568@yahoo.com
This past May we lost our beautiful Grandson Kamdyn to SMA1. He was 3 months old. We found out his diagnosis only weeks before he passed; befor then we had never heard of this horible disorder. Am praying that a cure is found soon.
Added: July 8, 2011 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: whitney johnson
From: knoxville, tennessee
E-mail: wjohnson@pstcc.edu
I love this angels page. My daughter had type 1 sma. She was 16 months old when she passed away on thanksgiving 2009. I would like for my daughter to be on this page.
Added: September 14, 2010 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: steve
From: colorado
E-mail: dad_of2angels@hotmail.com
we just lost our son kayden tuller to sma 1 he was 2 1/2,thanks to a loving and devoted mommie we were able too have him this long he was tube free and died in his sleep with us,i still look for him sum times we miss him so much,but i know whats best for us is to have him here with us but whats best for him is to be sma free,and becouse he could not walk in this life he will run in the next,please pray for our son and all of these angels
Added: September 13, 2010 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: ArizonaSunday
From: AZ
E-mail: ArizonaSunday@hotmail.com
On the last day of May, my nephew with SMA will be 21 years old and a Sophmore in College. He is going strong! His onset was at 6 months old and was never able to stand. I also read an article about "Ellie" receiving stem cell injections who is now able to take steps where she previously couldn't even lift her legs. SMA research has come along way and I just wanted to add a story of hope for you all who have just started this journey and to see that there is a hopeful future. It may not be the easiest journey but you will touch lives by the way you embrace this challenge. You are the inspirations and don't ever give up!
Added: May 21, 2010 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: connie ralston
From: louisville, ky.
E-mail: c-ralston@hotmail.com
my daughter olivia ann ralston haves sma type 2
Added: May 13, 2010 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: jessica
From: brownsville texas
E-mail: jgonzalez0315@hotmail.com
my name is Jessica lee Gonzalez and im from Brownsville Texas. i have a baby boy who is 20 months old and has SMA type 1. he has been through so much and i just wanted to let everybody out there know that parents who have SMA babies go through a lot and being a parent for these kids requires a lot of physical emotional and spiritual strenght! it has not been easy for me at all especially being 18 yrs old (i just turned 18 today). so if you know someone with SMA baby give them as much love and support as you can cause im definitely sure they need it and greatly appreciate it! thankz!
Added: March 15, 2010 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Maureen Bolanos
From: Costa Rica
E-mail: maureen_pbn@yahoo.com
When there is hope, there is no time to waste.
Added: February 19, 2010 Delete this entry  Reply to entry  View IP address  

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