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Name: malay From: United States E-mail: malay.guerrero@yahoo.com	I WANT TO HELP FIND A CURE! Added: May 1, 2008
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Name: Tina Estep From: Pulaski Virgina E-mail: esteptina@msn.com	My only grandaughter was 3 months old when we found out about SMA. She had typeI. She went home to be with the Lord on her 9 month birthday. We had never heard of SMA until our Alysa was born.Please if there is pamlets that can be given out or anything to help people have more understanding of this killer let me know Added: April 17, 2008
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Name: Rene Rose From: Zanesville, Ohio E-mail: rrose40@hotmail.com	Just looking around, bad time of the year, my daughter, DANIE LUCKETT, died from this disease in 1992, it is amazing how far it all has came,it is sad any parent or family should have to go through this, but it really is great to have the support from everybody on this wonderful site, God Bless You All! Added: April 3, 2008
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Name: Christina Roth From: Indiana E-mail: hott_aunti86@yahoo.com	My son was born with SMA, how we found that out was he had a hand drop. We had to go to Rileys children hospital in Indy and they ran test on him and we he was 2 1/2 months he was diagnosed with this diease. We first spend a month down there got him ok to come home. He came home on an oxygen machine and a feeding tube and other gadets and we were home for a week until he was having trouble breathing so we had to go back to indy got put back on life support because of his lungs. The doctors said that he wouldn't be able to get off of it and so I had to make a decision and 4 days before he turned 4 months old he passed away. I miss him so much and I hope that someon can find a cure to help those other babies survive!! Added: March 27, 2008
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Name: Eustasia Pu'u From: Am.Samoa E-mail: et_1213@yahoo.com	IT'S BEEN A LONG TIME SINCE I BEEN THROUGH HERE. AFTER MY ANGEL HAD GONE TO MEET WITH HER MAKER I'VE BEEN REALLY LOST. BUT GOD HAS BROUGHT ME BACK FROM THE DEAD. MY DAUGHTER IS THE ONLY POLYNESIANS (SAMOAN)THAT I KNOW OF TILL THIS DAY THAT WAS DIAGNOSED WITH SPINAL MUSCULAR ATROPHY 2. I AM NOW TRYING TO HELP PUT THE WORD OUT THERE FOR SPECIALLY MY POLYNESIAN BROTHERS AND SISTERS ABOUT THIS DISORDER. S.M.A MIGHT BE AN ANSWER TO THE REASON OF AN UNKNOWN CAUSES OF DEATH FOR THEIR LIL.ANGELS. TO ALL MOTHERS, FATHERS AND FAMILIES WITH S.M.A LOVED ONES TO NEVER GIVE UP. GOD BLESS YOU ALL AND WITH MANY PRAYERS. LAURA I THANK YOU FOR THIS SITE IT'S AMAZING. IT HAS HELPED ME THROUGH A LOT. GOD BLESS YOU LAURA AND YOUR FAMILY. MY S.M.A. ANGEL WAS "EUSTASIA ALANIS GERTRUD PU'U" REST IN PEACE & WITH LOVE.. WITH LOVE & RESPECT. EUSTASIA PU'U Added: March 26, 2008
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Name: elisabeth From: england E-mail: bussylissy1@hotmail.co.uk	god bless u all Added: March 23, 2008
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Name: robin mack From: bel air, md E-mail: jazzysmom93@yahoo.com	HAPPY BIRTHDAY SOPHIA love you lots Added: February 10, 2008
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Name: Rachael Carrington From: Georgia E-mail: pwcaterpillar@yahoo.com	My son was just diagnosed with SMA type 2 and these past two weeks have been heart wrenching. I fear they are the first of many hard days, yet wouldn't trade my son for anything. Thank you for informing me and others, I need all I can get. Added: February 9, 2008
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Name: malay From: BOSTON E-mail: gerryalfonseca@mac.com	look im just a kid im 10years old .my BEST FRIEND DAHRIAN PIMENTEL HE LOVED BACKYARDIGANS ALTHOUGH HE HAD SMA TYPE3 I LOVED HIM HE WAS 1 YRS OLD AND 2 MONTHS HE DIED JANUARY 9 2008 HE WAS BORN NOVEMBER 18 2006 .ILL HELP FIND A CURE! Added: February 2, 2008

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