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Our SMA Angels Guestbook





Comments:
I have scoloisis.....and my surgery is in a week or so....so I just want to know more..and to talk to kids simmilar to my problem..wll that's all I go to say

Added: January 28, 2010
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Comments:
i have gottin on many of ur sites u all are very beautiful i just want to let u allknow that u are all in my hearts every single one of you i have a baby cuzin that has sma and hes 4 hes sooo cute and let me tel you he is very smart but god bless u all

thank you
your friend starlyna


Added: November 23, 2009
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Comments:
Hello everyone oh my its been so long since i visited this site my daughter Makayla Tanner passed away when she was 9 months old 2morr will be 12 yrs it seems like alot of yrs but really feels like it just happened i miss her so much now i have 2 step-daughter one is 13 n the other is 8 i get 2 see things that they do like making plays writing songs that they sing 4 me. And I cry every time b/c i didnt get 2 c them with Makayla. I pray for everyone I hate these babies have to go through all this. Encluding the parents,grandparents,brother/sisters. ya'll are in my prayers

Added: November 5, 2009
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Comments:
I am once again working on an update of The Jeffrey Journey and am sending a final reminder for names for this edition's special dedication.

I'm always taking names but need them for this edition by 9-15-09. If you don't read this until after that date, though, go ahead and send it! My computer crashed, putting me even farther behind than I already was; I will likely still be working on the revision at that time and will be happy to include as many names after that date as possible.

If you have a name to submit, all I need is the name as you would like it listed, including a nickname if desired, and whether it belongs in the 'honor' (living) or memorial section.

There are no restrictions regarding the dedication - number of names, dates, ages, location, type, etc. If you're the one with SMA, please submit your own name!

If you're not sure if you've submitted a name, feel free to ask me to either check the dedication or provide you with the link.

Thanks so much!

Helen
jeffreyb@skybest.com
thejeffreyjourney.com


Added: September 7, 2009
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Comments:
Kaliegh's mother told me about this web-site. My son Ethan passed from SMA 1 on June 4, 2007. I wanted to check this out. SMA children are Angels for real. That's what I call my son "Ethan". I would love to put his story here!

Added: August 2, 2009
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Comments:
Hi my name is Stacy and my Son Brady was diagnosed with SMA Type II at 2 years old. He is now almost 9 and is doing very well. I would like to add him as one of thr brave angels and follow his journey. Please email me back on how to set up a website for him. Much blessings

Stacy


Added: June 29, 2009
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Comments:
Hello .
My baby grandaughter has S M A R D 1(spinal muscular atrophy with respiratory distress) If there is anyone out there who has come across this condition ,could you please,please, contact me. Thank you.


Added: June 11, 2009
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Comments:
I FEEL SOO BAD FOR THE SMA PEOPLE OUT THERE AND I HOPE YOU LIVE A LONG HAPPY LIFE. I PERSONALLY KNOW SOMEONE WIHT SMA SHE IS IN MY CLASSES AND SHE IS SOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO NICE!!!!!!

Added: May 19, 2009
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Comments:
God Bless this sweet angel.

Added: April 24, 2009
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Comments:
My child Alejandro died in October 2001 from SMA1, I share your pain and hope for a cure.

Added: April 3, 2009
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