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my son cain halstead was born on 20th feb and my baby was took from me on 23rd october 2002 and i cant handle it and i dont know what to do and the first time since my son died i am asking for help because i dont know how to deal with all this and its sending me mad please help me

Added: December 24, 2008
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DAHRIAN PIMENTEL WAS AN ANGELL AND NOW HE IS WHERE ALL THE ANGELS ARE IN HEAVEN SMILING DOWN APON US. DAHRIAN WAS EXTRA SPECIAL HE WON MY HEART WIT JUST ONE LOOK. HE LOVED THE BACKYARDIGANS AND BUBBLES. HE WAS AN AMAZING BABY I LOVE HIM NOW AND FOREVER MORE MY YOU REST IN PEACE. LOVE YOUR #1 COUSIN/TITI IRIS A.K.A TASHA

Added: October 10, 2008
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I had a son with SMA type1. He was born in 2001 and passed away just before christmas. We see him as our guardian angel. His name was Kyle William. he was just 11 weeks old and the doctors didn't know what to do. He was hospitalized for RSV and then we found out it was something more. To this day my other son Tyler and his little sister Olivia talk about him. Olivia was born 2 years later. We say he (Kyle lives through her because she does everthing that boys do and still has to wear a dress doing it. If she gets durt on her she doens't care. My husband and I will never forget the memories of him and look at both of our surviving kids and see Kyle in there eyes. I know how hard it is to loose a child and you pick up the pieces and keep on moving. Never forget what you had but be happy about where you are now. My life would not be what it is today without my guardian Angel Kyle William. He lives in our hearts today and everyday.

Added: October 9, 2008
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Hi my name is jessica and i have a 2 month old child, Damian Diaz, with sma type 1. on 9/12/08 at about 3:00am my child past away and the doctors brought him back to life. I am only 16 years old and this is a very hard situation for me because this is my first child.

Added: September 12, 2008
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MAY GOD BLESS AL OF OUR FAMILIES

Added: September 6, 2008
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was told of this website by a friend whose great grandchild was found to have this disease about one month ago. We will certainly pray for a cure or help for this disease.

Added: August 17, 2008
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My husbands cousins baby recently passed away from sma. He lived only four short months with this horrible disease. Thank you for your website and the stories and information you provide. It helps to know that we are not alone and can help spread the word about the condition that affected our family member. In loving memory of Michael Sebastian Torres.

Thank you so much,
Tamara Lomeli


Added: July 15, 2008
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Added: June 24, 2008
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I was feeling sad I have not had the opportunity to meet my grand daughter in IL yet. She made it to two years old. She does have mothers family however thankfully. I read one grandmother who said she has two little ones with SMA1. My heart breaks for you. My close little grand daughter here also has Autism with several medical problems. I have folks that say since her spine is so deformed she will not live long. But I learned a long time ago that no one can say when GOD is ready to take his angels except GOD. I am the one learning from her and them, not the other way around. I am lucky both grand daughters have passed through my life, even if one has been from a distance. We Love You Allyson Krajewski born with SMA1 2/2/2006. And all our other 7 grand babies.
GOD BLESS U ALL and KEEP YOU IN HIS GRACE
Sincerely, grandma and grandpa


Added: June 8, 2008
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hey
this is autum black i am 15 yrs old i have a lil cuzzzin and he has sma type one and i think too and i thank that is very sad to have. i feel that the children are paying for this deadly known decease and they are sufering all the bad dangers they have to face like ......sugery....and all kinds of BAD dangers etc...and the poor parents who has to set there and wonder why the babys are like that i think that the babys shouldnt have to suffer but you no wat muh lil cuzzins is sufferring this illness right kno and i kno it is a very bad geneic killer for babys under the age of 2 yrs old i think that they are very preaciose baby and for all of the parents out there with babyboys and babygurls i am very impressed i love baby. and i dont ever wanna see a baby go through wat muh lil cuzzins is going threw .today he has a micky right kno and thank the holy godd that he is still here he is passed the age of tooand that precoise baby is still alive i love him dearly his namr is nathan lee banks i love you baby boi


Added: May 25, 2008
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