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Comments:
hey
this is autum black i am 15 yrs old i have a lil cuzzzin and he has sma type one and i think too and i thank that is very sad to have. i feel that the children are paying for this deadly known decease and they are sufering all the bad dangers they have to face like ......sugery....and all kinds of BAD dangers etc...and the poor parents who has to set there and wonder why the babys are like that i think that the babys shouldnt have to suffer but you no wat muh lil cuzzins is sufferring this illness right kno and i kno it is a very bad geneic killer for babys under the age of 2 yrs old i think that they are very preaciose baby and for all of the parents out there with babyboys and babygurls i am very impressed i love baby. and i dont ever wanna see a baby go through wat muh lil cuzzins is going threw .today he has a micky right kno and thank the holy godd that he is still here he is passed the age of tooand that precoise baby is still alive i love him dearly his namr is nathan lee banks i love you baby boi


Added: May 25, 2008
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Comments:
I WANT TO HELP FIND A CURE!

Added: May 1, 2008
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Comments:
My only grandaughter was 3 months old when we found out about SMA. She had typeI. She went home to be with the Lord on her 9 month birthday. We had never heard of SMA until our Alysa was born.Please if there is pamlets that can be given out or anything to help people have more understanding of this killer let me know

Added: April 17, 2008
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Comments:
Just looking around, bad time of the year, my daughter, DANIE LUCKETT, died from this disease in 1992, it is amazing how far it all has came,it is sad any parent or family should have to go through this, but it really is great to have the support from everybody on this wonderful site, God Bless You All!

Added: April 3, 2008
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Comments:
My son was born with SMA, how we found that out was he had a hand drop. We had to go to Rileys children hospital in Indy and they ran test on him and we he was 2 1/2 months he was diagnosed with this diease. We first spend a month down there got him ok to come home. He came home on an oxygen machine and a feeding tube and other gadets and we were home for a week until he was having trouble breathing so we had to go back to indy got put back on life support because of his lungs. The doctors said that he wouldn't be able to get off of it and so I had to make a decision and 4 days before he turned 4 months old he passed away. I miss him so much and I hope that someon can find a cure to help those other babies survive!!

Added: March 27, 2008
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Comments:
IT'S BEEN A LONG TIME SINCE I BEEN THROUGH HERE. AFTER MY ANGEL HAD GONE TO MEET WITH HER MAKER I'VE BEEN REALLY LOST. BUT GOD HAS BROUGHT ME BACK FROM THE DEAD. MY DAUGHTER IS THE ONLY POLYNESIANS (SAMOAN)THAT I KNOW OF TILL THIS DAY THAT WAS DIAGNOSED WITH SPINAL MUSCULAR ATROPHY 2. I AM NOW TRYING TO HELP PUT THE WORD OUT THERE FOR SPECIALLY MY POLYNESIAN BROTHERS AND SISTERS ABOUT THIS DISORDER. S.M.A MIGHT BE AN ANSWER TO THE REASON OF AN UNKNOWN CAUSES OF DEATH FOR THEIR LIL.ANGELS.
TO ALL MOTHERS, FATHERS AND FAMILIES WITH S.M.A LOVED ONES TO NEVER GIVE UP. GOD BLESS YOU ALL AND WITH MANY PRAYERS. LAURA I THANK YOU FOR THIS SITE IT'S AMAZING. IT HAS HELPED ME THROUGH A LOT. GOD BLESS YOU LAURA AND YOUR FAMILY.

MY S.M.A. ANGEL WAS "EUSTASIA ALANIS GERTRUD PU'U"
REST IN PEACE & WITH LOVE..

WITH LOVE & RESPECT.

EUSTASIA PU'U


Added: March 26, 2008
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Comments:
god bless u all

Added: March 23, 2008
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Comments:
HAPPY BIRTHDAY SOPHIA

love you lots


Added: February 10, 2008
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Comments:
My son was just diagnosed with SMA type 2 and these past two weeks have been heart wrenching. I fear they are the first of many hard days, yet wouldn't trade my son for anything. Thank you for informing me and others, I need all I can get.

Added: February 9, 2008
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Comments:
look im just a kid im 10years old .my BEST FRIEND DAHRIAN PIMENTEL HE LOVED BACKYARDIGANS ALTHOUGH HE HAD SMA TYPE3 I LOVED HIM HE WAS 1 YRS OLD AND 2 MONTHS HE DIED JANUARY 9 2008 HE WAS BORN NOVEMBER 18 2006 .ILL HELP FIND A CURE!

Added: February 2, 2008
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