SMA Related Sites

SMA Support

This is my SMA family! They are the most extraordinary people around! It is an all-volunteer, non-profit, tax-exempt organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding SMA.

Families of SMA

This is a comprehensive, on-line information and resource center.  Lots of information, research, trials and fundraisers. Excellent resource

Our SMA Angels

One of the largest on-line sources of information and inspiration regarding children dealing with Spinal Muscular Atrophy. Come see their faces, read their stories, remember those who have passed and fight with those who are fighting

Miracle for Madison

 This is a great fund set up to raise money for Ohio State University researchers and support the MDA/SMA clinich at OSU. Be sure to check it out!


Blankets for SMA is an organization started by an amazing young woman, MJ Purk.  She sends "blanket hugs" to kids and families that are newly diagnosed. We love our blanket!

Jonathan's Journey

 Cindi Broome, photographer, takes beautiful pictures. She shares her gift thru Jonathan's Journey,  a non-profit organization dedicated to providing professional portraits of terminally ill children to their families.

SMA Foundation

The mission of this organization is to accelerate the development of a treatment or a cure for SMA.

Planet SMA

This is a non profit, all volunteer organization to raise funds to educate the public and to provide financial aid for organizations dedicated to

Spinal Muscular Atrophy support and research. 


C.O.L.E's Quilts

Creations Of Love Etc.. is an organization originally created to make a beautiful quilt for Cole Webb. C.O.L.E's Quilts has grown and these amazing quilts are made up of squares sent in by volunteers,  for SMA children and families of SMA Angels

Ryan's Hope Foundation

This is an organization committed to accelerating the finding of a cure for Spinal Muscular Atrophy. Until a cure is found, they are committed to developing and funding programs that support families affected by a child's disability, as well as providing positive experiences for disabled children.

Andrew's Toybox

Andrew's Toybox is founded in loving memory of Andrew "Booper" Fimbel and dedicated to providing special care packages filled with toys, crafts & books to children with life-threatening or chronic illness

SMA Angels

This site was started by a mom of an Angel. It has great tributes, links and information.


The purpose of is to provide a source of information for research, prevention and treatment of Spinal Muscular Atrophy (SMA).

Andrew's Buddies

Fight SMA

This is a national organization committed to accelerating a cure for SMA. On this site, you will find up-to-date reports from the research front and ways that you can become involved in this fight yourself
SMA Angels Charity The goals of the charity are to raise money for research devoted to finding a cure or treatment for SMA, to provide funding for medical assistance and better quality of life for children afflicted with SMA and to increase awareness and education about SMA. 

Payton's Pals

This is a non-profit, all volunteer organization, dedicated to the eradication of spinal muscular atrophy, focused on spreading awareness and committed to the support of SMA-affected families

The Benjamin Foundation

The Benjamin Foundation was founded as a volunteer-driven and publicly-supported organization dedicated to raising awareness and funds for the fight against Spinal Muscular Atrophy (SMA)

The Jacob Isaac Rappoport Foundation

This foundation was created in memory of Jacob and  invests money in research to find a cure for SMA by sending most of the money raised to FSMA

Wyatt Kyle Sutker Foundation

This is a foundation to help assist families and gathering funds for research specifically dedicated to nutritional needs of infants with SMA

Other Related Sites

Muscular Dystrophy Association

MDA is a voluntary health agency aimed at conquering neuromuscular diseases that affect more than a million Americans

National Institutes of Health

The NIH, a part of the U.S. Department of Health and Human Services, is the primary Federal agency for conducting and supporting medical research

National Institute of Neurological Disorders and Stroke

The nation's leading supporter of biomedical research on disorders of the brain and nervous system


The National Organization for Rare Diseases

First Hand Foundation

A non profit foundation established by the associates of Cerner Corporation to help families of children with health problems address the financial aspects of healthcare

Hugs and Hope

Make a sick child's day and give them something  to look forward to.  Send a card and a hug -- one of the smiles you create just might be your own!

THE HUGS AND HOPE CLUB is a tax-exempt 501(c)3 charity


Any Baby Can

Their mission is to ensure that children reach their potential through education, therapy and family support services

Family to Family Network

Family to Family Network has developed a number of programs that provide families with information and referral services, education and support through networking


MUMS is a national Parent-to-Parent organization for parents or care providers of a child with any disability, chromosomal abnormality or health condition

Texas Department of State Health Services

An agency of the Texas Health and Human Services System

Texas Parent to Parent

A non profit organization created by parents for families of children with disabilities, chronic illness and other special needs throughout the state of Texas

Partners Resource Network

The mission of Partners Resource Network (PRN) is to empower parents of children and youth with disabilities in their roles as parents, decision makers, and advocates for their children and to promote partnerships among parents and professionals.