My Story

We knew early on that there was something wrong. We did not know what, but we knew it was something. When he was two months old, and he was not moving like he should, like kicking his legs as he should have been doing, and such, we took him to his doctor who said that he is just delayed. We knew that there was something else. We got an appointment with an neurologist. He then said it could have been many things, that he would have to do many test to rule out MD, and other such diagnosis. He did a muscle biopsy, when he then confirmed that Jackson did indeed have SMA, or Spinal Muscular Atrophy, type 1. That was when he was 8 months old. We have done all we can since finding that out.