A fund-raiser is being held
on Nov. 15 at David Ovans Elementary School that could help
change the life of a four-year-old Sangudo girl who suffers
from type-1 spinal muscular atrophy.
Wednesday November 15, 2006
is being held on Nov. 15 at David Ovans Elementary School
that could help change the life of a four-year-old Sangudo
girl who suffers from type-1 spinal muscular atrophy. The
event will begin at 7 p.m., and aims to improve the quality
of life for young Kaitlyn Pas by making her wish come true.
The young girlís disease prevents her from using the muscles
surrounding her spine, which limits her from doing simple
activities such as walking, standing, coughing or sitting
and even makes swallowing difficult. She also requires a
machine to make breathing easier during the night.
However, as soon as she is in water she can move more
freely, and last December an organization donated a special
therapy tub for her so she could indulge in physical
activity. Accommodating the tub requires an additional room
to be built on to the familyís house. Otherwise itís not
safe for Pas to use.
"That was her wish, to have a special tub," Pasí mother Hali
The renovation is expected to cost around the $15,000 and
staff at David Ovans School, who are putting on the
fund-raiser, are encouraging people to come out and lend a
"The fund-raiser itself is for a very good cause," said
teacher Lana Brand. "I just hope people will come out and
support this cause, plus, itíll be very entertaining."
Two musical acts will perform at the event, including Joanne
and Hayley Myrol and the Magic Lamp Singers, while donations
will be accepted at the door.
Children who suffer from spinal muscular atrophy often canít
live long due to the circumstances related to the disease.
For instance, if they succumb to pneumonia, they can die,
because they cannot cough properly. Pas is still alive
because of her familyís strong determination to keep her
alive. Harapchuk said they found a doctor in the United
States that provided strict, 24-hour protocol in order to
"She wasnít supposed to live to be one," Harapchuk said. "It
was our choice to let her go, or to take on this protocol."
When first hearing about the fund-raiser last month,
Harapchuk was quite shocked, but grateful to the staff for
thinking of her daughter while being so busy with getting
report cards out. "John (Pas) and I arenít the type of
people to go and ask for help. It really touched me. I was
really moved and very thankful."