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Submitted by Comments:
Name: JoAnn Miner
From: Melrose Florida
E-mail: Jminer@rescare.com
Amy,
You are such an inspiration to me, after reading the posts on Lily's page from the people who admire you and that you have helped through you patience and kindness, I am so very proud to call you my friend. Though I did not know your Lily personally, I do know she had the BEST life possible and she was truly lucky to have you as her mother. You have so much love in your heart and that is why the lord gave you Steve. I will be forever grateful for your friendship today and always!
Added: May 13, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Sallie Capen
E-mail: kalairs-grama@comcast.net
Oh Amy I am so sad for you. I know we must go on to honor our sweet girl's lives but how will we see our way without them to light the way? Kalair was the leader in my life for more than seven years as I know Lily was yours. It is impossible to say how hard it is to go on without them. I can't imagine what it is like for you to be home without your two babies physically there with you. I will pray for you to get through these days to come. You are a wonderful mom Amy. It isn't fair...God will forgive me for saying that because he knows how hard this is.
But I do feel blessed to have had our girls in my life above all else. If this pain is the price I pay for knowing them so be it.
You and your family are in my prayers.
With much love,
Sallie
Added: May 13, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Kelly Takacs
From: Fairfield, Connecticut
E-mail: kellyandjasontakacs@yahoo.com
Amy,
I am so sorry for your loss...for the entire SMA community's loss...because THAT is how powerful Lily's life was to all of us. She was the greatest inspiration and you helped me through some trying times with Ethan's care. I will always be grateful to you. I have used Lily as an example SO often to Ethan's therapists and I will continue to do so. She was such a beautiful little girl who I will miss.
love,
Kelly
mom to Ethan, Type 1
Added: May 13, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Stephanie Miller
From: Atlanta
E-mail: stephanielanemiller@hotmail.com
Dear Amy,

You and Lily have been such an inspriation to us and so many others. You were one of the first moms to reach out to me when Aleena was diagnosed. Thank you for sharing your faith, strength and your beautiful daughter with me. I feel so blessed to have met Lily in 2005. I will never forget her.

Our prayers are with you. May God's love and grace surround you and your entire family.
Added: May 13, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Kristen
From: Connecticut
E-mail: Kristengill25@yahoo.com
Amy,

Lily will remain such a bright and vibrant spirit who touches so many. No daughter was ever more blessed to have a Mommy than yours. I will miss Lily so much. Sending you lots of love and prayers...
Kristen Gill
Added: May 13, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Cecilia Silva
From: San Antonio
E-mail: elizabeth37@hotmail.com
I'm very sorry. I will be sending many prayers for you to ease this pain. You are and always be a wonderful mother.
(((HUGS)))
Added: May 13, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Jennifer Patrick
From: Tuscaloosa,AL
E-mail: jpatrick@fa.ua.edu
To Lily's family-
I'm so sorry to hear of your sweet precious Lily passing away. While I have never met you, my heart goes out to you. I have a 19 month old SMA type 1 son, Logan Patrick. Please know you will be in our thoughts and prayers. May your beautiful Lily fly high with her new wings....
-Jennifer Patrick
Added: May 13, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Karen
From: Augusta,Ky
E-mail: dollmaker52@hotmail.com
Dear Amy, My heart is breaking for you. Llly has been such a joy to others and will continue to be such an inspiration to parents with sick children. You have always given hope to many with your strong faith. I know that your faith will carry you through this very sad time. Lily was one of God's beautiful angels and now is back in his loving arms. Love Karen and Family
Added: May 13, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Tina Krajewski
From: Chicago
E-mail: tina617@comcast.net
Lily,
I am praying for you and your family right now. It is so hard to hear about you going to heaven, but I know you are free of SMA and can run and fly all over with your brother and friends. You will continue to be an inspiration to me and my daughter Allyson. You and your mom have giving us hope for the future and helped to show me that I can give Ally the best life possible with lots of smiles and joy. Although we never got a chance to meet in person, you will be missed so much.

Hugs and Prayers from Chicago,
Tina and Ally
Added: May 13, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Barbara
From: Binghamton NY
E-mail: barbaraps91@yahoo.com
((((((((((((((((HUGS))))))))))

Comfort them LORD
Added: May 13, 2008 Delete this entry  Reply to entry  View IP address  

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