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Submitted by Comments:
Name: Jana and Kyle Gundy
From: Oklahoma
E-mail: jana.kylesmom@gmail.com
Lily B., we love you so much and please, send mommy lots of signs to comfort her. I know she's going to miss you something fierce forever. amy, we are praying for you and yours. Love knows no bounds, on earth or in heaven.
Added: May 13, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Sandra Swartz
From: Athens, AL
E-mail: nana0705@aol.com
I pray that the Lord will comfort you today and always. Lean on the Lord. He will give you peace in time and nurture you today and in days ahead. I will continue to pray for a cure for SMA and that God will be with all SMA chldren and parents. (Jenny Bush, Chloe Bush's mom, posted that Lily is in heaven with her brother.)
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Submitted by Comments:
Name: Jescica Freundl
From: Iowa
E-mail: kirtfreundl@msn.com
Just want you all to know we are thinking of you and praying for you and your whole family during this time of pain and loss. Lily will always be so special to all of us and an inspiration!!! May the Lord comfort you right now. God Bless.
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Submitted by Comments:
Name: JoAnn Miner
From: Melrose Florida
E-mail: Jminer@rescare.com
Amy,
You are such an inspiration to me, after reading the posts on Lily's page from the people who admire you and that you have helped through you patience and kindness, I am so very proud to call you my friend. Though I did not know your Lily personally, I do know she had the BEST life possible and she was truly lucky to have you as her mother. You have so much love in your heart and that is why the lord gave you Steve. I will be forever grateful for your friendship today and always!
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Submitted by Comments:
Name: Sallie Capen
E-mail: kalairs-grama@comcast.net
Oh Amy I am so sad for you. I know we must go on to honor our sweet girl's lives but how will we see our way without them to light the way? Kalair was the leader in my life for more than seven years as I know Lily was yours. It is impossible to say how hard it is to go on without them. I can't imagine what it is like for you to be home without your two babies physically there with you. I will pray for you to get through these days to come. You are a wonderful mom Amy. It isn't fair...God will forgive me for saying that because he knows how hard this is.
But I do feel blessed to have had our girls in my life above all else. If this pain is the price I pay for knowing them so be it.
You and your family are in my prayers.
With much love,
Sallie
Added: May 13, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Kelly Takacs
From: Fairfield, Connecticut
E-mail: kellyandjasontakacs@yahoo.com
Amy,
I am so sorry for your loss...for the entire SMA community's loss...because THAT is how powerful Lily's life was to all of us. She was the greatest inspiration and you helped me through some trying times with Ethan's care. I will always be grateful to you. I have used Lily as an example SO often to Ethan's therapists and I will continue to do so. She was such a beautiful little girl who I will miss.
love,
Kelly
mom to Ethan, Type 1
Added: May 13, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Stephanie Miller
From: Atlanta
E-mail: stephanielanemiller@hotmail.com
Dear Amy,

You and Lily have been such an inspriation to us and so many others. You were one of the first moms to reach out to me when Aleena was diagnosed. Thank you for sharing your faith, strength and your beautiful daughter with me. I feel so blessed to have met Lily in 2005. I will never forget her.

Our prayers are with you. May God's love and grace surround you and your entire family.
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Submitted by Comments:
Name: Kristen
From: Connecticut
E-mail: Kristengill25@yahoo.com
Amy,

Lily will remain such a bright and vibrant spirit who touches so many. No daughter was ever more blessed to have a Mommy than yours. I will miss Lily so much. Sending you lots of love and prayers...
Kristen Gill
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Submitted by Comments:
Name: Cecilia Silva
From: San Antonio
E-mail: elizabeth37@hotmail.com
I'm very sorry. I will be sending many prayers for you to ease this pain. You are and always be a wonderful mother.
(((HUGS)))
Added: May 13, 2008 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Jennifer Patrick
From: Tuscaloosa,AL
E-mail: jpatrick@fa.ua.edu
To Lily's family-
I'm so sorry to hear of your sweet precious Lily passing away. While I have never met you, my heart goes out to you. I have a 19 month old SMA type 1 son, Logan Patrick. Please know you will be in our thoughts and prayers. May your beautiful Lily fly high with her new wings....
-Jennifer Patrick
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