As a parent you never take a moment for granted. You thank God for every day. You rejoice in the little things. You pray and hope and think about a cure that will help your child, all children. And you work toward that end.
"I run a great risk of failing. It may be that I shall encounter ruin where I look for reputation and honor. The chances are perhaps more in favor of ruin than of success. But, whatever may be the chances, I shall go on as long as any means of carrying on the fight are at my disposal." Anthony Trollope
SMA is a devastating disease. Please help us to educate the public about SMA. If you had a child suffering from SMA, it would be the whole world to you also. Thank you.