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We have 117 entries displayed on 12 pages.
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Submitted by Comments:
Name: Erin
From: Avon
E-mail: Eoleary91@hotmail.com
Saw Facebook you,are so strong
Added: September 27, 2013 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Mj
From: Pittsburgh
E-mail: melindamartin71@yahoo.com
Hi Roman!

I just wanted to say what a wonderful website you have! I enjoyed looking at all of your pictures of your family and friends and learning about SMA. Thank you for sharing this with everyone;-)
Added: March 3, 2013 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Sarah Keating
From: Lakeside Park, Ky
E-mail: mkeating@zoomtown.com
Hi Roman, I work with your Grandma Vickie. She is a great lady and I know she loves you a lot.
Added: August 1, 2012 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Brian Clayton
From: Uncle Brian
just sent out my love too you and your mommy and daddy
Added: June 12, 2012 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: helendress
Website: http://www.helenpromdresses.com
E-mail: baosun9@gmail.com
Good luck in development of the site.

Beautiful place and really nice site. Congrats!
Added: June 8, 2012 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Tonya
From: Monterey, CA
E-mail: tonyatid1@gmail.com
Roman, you are such an inspiration!
Added: May 10, 2012 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Bambi Bryant
From: Bradford Pa 16701
E-mail: jaden_9736@yahoo.com
I have a son with a rare genetic disease too. He has something called Alpha 1 anti tripson defiency. He was diagnosed at 10 months but was sick from 3 weeks old. They told me children that have this disease most likely die. He is 31 yrs old today 6'4 300 lb big boy. He has always been my pride and joy. I feel what you are going thru and just wanted to give you a kind word. God bless you and your son and family.......
Added: March 29, 2012 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: naomi dean
From: grant co
E-mail: naomi.smith79@yahoo.com
susan and family,
you have supported roman all through this journey. I envy you in so many ways. I wish there were more parents out there like you. Having a child with special needs makes everything special. I am happy that roman has made it this far with having sma1. This website for him was so sweet and he has gotten so big. I wish I could have gotten to do more with cheyenne.
Added: March 12, 2012 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: christal karschner
From: florence
E-mail: mommakarschner@gmail.com
We are thinking of you Roman!
Added: March 11, 2012 Delete this entry  Reply to entry  View IP address  
Submitted by Comments:
Name: Amber Devine-Stinson
From: Louisville, Ky
E-mail: Amber.Devine@jefferson.kyschools.us
Great website! Love all the pictures and information.
Added: March 10, 2012 Delete this entry  Reply to entry  View IP address  

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