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Hi! My name is Ryan, and here is a picture of me the
day I got my power wheelchair! I am three years old and have a disease
called Spinal Muscular Atrophy, type 2. For me, this means I can't run and
play like other kids, but I sure have a great time zipping around in my
chair! I go to preschool everyday in my power chair, and the coolest part
is I get to ride on the school bus!
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When I was about one year old, I started to crawl in a funny way. My doctor did a lot of tests on me, and that's how my Mommy and Daddy found out about SMA. Since then we have had a lot of changes in our family. The biggest change happened this year when we moved to a new city. My Mommy and Daddy wanted to build me a house where I could get around by myself in my wheelchair, so we moved to Sacramento from San Jose. Here is a picture of the wood floors being put in for me! I really like my new house, but I sure do miss my Oma and Opa, Grammy and Grandpa, Uncle Dave, and my Aunt Megan and Uncle Dan who used to live by me! I also have my Aunt Amy, Grandpa Pete, Aunt Julie and Uncle Curt, cousins Hanne and Alec, my Great-Grandpa Oat, and my great-grandma Eddie, who all live in other places. I have all their pictures in my room and look at them every day! I'm so lucky to have lots of people that love me!
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One of my favorite things to do is play in the
sandbox!
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Well, that's all about me! If you want to help find a cure for my disease or read more about it, go to www.fsma.org. Thanks for looking! P.S. Say a prayer for my buddy Skylar. He has been pretty sick from SMA lately!
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