Do you like my new
There was bloodwork (7 vials),
a cat scan, and x'rays. Everything came up normal so he was
given a therapist , leg braces, and a crocodile walker to help build his
strength. When Samuel was 22 months old, we noticed that he couldn't stand
up in his playpen by himself anymore. We also realized he no longer
would try to climb ladders even if we encouraged him to. Then, Samuel began
to have slight tremors in his hands and wrists whenever he would use them.
Still, the doctors had no idea what it could be. While driving home,
the radio was broadcasting a special about a little girl in our area that
had very similar symptoms as Samuel. Once we looked it up on the
internet, we knew. This was the first time we had ever heard of SMA We asked
his doctor to test him and we got the results on September 3, 2004.(Three
days before his 2nd birthday) Samuel has SMA type II. From there we
have found many comforts from those who have already been going through
this. Everyone has been incredibly helpful. Samuel is a normal
strongwilled boy that will need some different equipment to help him get
through life. But the fact is, he will get through life, and for that
we are truly thankful to the Lord. We asked (we still ask) many
questions and spent many hours looking at the stories of others.
We thought it was time to put our story out there, so maybe we could help
someone the way that we were helped. So anyone reading this, please feel
free to write to us and comment or question. We would be honored.
Mike and Terri Sawyer