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Name:
Tracy and Skylar
Email:
sky6300@aol.com
Date:
11 Aug 2001
Time:
16:58:16

Comments

Taryn, I love you website! It is so sweet and the first poem brings a tear to my eye. I am so glad we had the chance to meet. I know that you and Sky will be friends for a long time. You both are true fighters along with the others. You take care sweety and hang in there! Sky sends hugs and kisses.. I do as well.. God Bless and take care

Name:
Aunt Tammy
Email:
suzyzoo65@aol.com
Date:
12 Aug 2001
Time:
18:57:01

Comments

tah tah mommy you are my sweet little angel girl and love you more than words can say i pray for you every night and for all your friends that are dealing with the same thing you are i love all of you you little gucci mammA!!!

Name:
Uncle Billy
Email:
Date:
12 Aug 2001
Time:
18:59:02

Comments

I love you and pray for you every night.

Name:
Kalair Myrick
Email:
kalairmyrick@webtv.net
Date:
13 Aug 2001
Time:
17:47:21

Comments

Hi Taryn! My mommy let me look at your website and all of your pretty pictures. I am almost 18 months old and I have SMA type one like you. You stay strong and keep fighting til the cure comes. Then we can all run and play together!

Name:
Shannon
Email:
Shan0586
Date:
14 Aug 2001
Time:
02:32:26

Comments

Hello TaTa baby your website is beautiful. I'm praying for you every night that you get better and that in a couple of years you being sick will be all a blur. Taryn I want to let you know that you are a very lucky girl, you have parents and family that loves you very much and you have a lot of people praying for you. Jane I would just really like to give you credit. If that was me in your shoes there is no way I could handle this. I know that this website is for our sma angels but they should make a website for you and mothers like to let people know what a great mom you are. Don't you worry because that they are trying to find a cure for her disease you will get to see her do everything you didn't think you were gonna get to see her do. Taryn you are such a beautiful sweet baby and I not god and I don't know why he does the things he does, but know he knows what a good person you and your are so he will help them find a cure. Jane,Chris,Ryan,and Taryn stay strong b/c only good things will come to you in the future. STAY STRONG LOVE ALWAYS,SHANNON

Name:
Jennifer Kindig
Email:
jbabymael4@worldnet.att.net
Date:
16 Aug 2001
Time:
01:24:45

Comments

I just thought that I would drop you a line and let you know that I think your daughter is very beautiful and looks so sweet. My daughter Emma had SMA type 1 as well she passed away in Oct of 1999, she has a web site on here as well in case you would like to look at it but if you are anything like me you probably has already seen it. I know that i have read everyone of these childrens stories. Take care and stay strong and know that Taryn has a purpose her although you may not figure out what that is until years from now. I will be praying for you all.

Name:
Sue, Casey and Colin
Email:
caseyandcolinsmom@yahoo.com
Date:
18 Aug 2001
Time:
15:31:31

Comments

Hi Jane and Taryn, You've done a wonderful job on Taryn's site. It's very organized and I'm sure it will be helpful to people. You've also, (like me) put your heart on your sleeve and told Taryn's story like I've told Casey's and Colin's story. Taryn is one LOVED little girl, that is for sure! Keep strong and stay involved in the fight against this disease. Our prayers are with you every day and night.

Name:
Jennifer
Email:
jennie61272@aol.com
Date:
21 Aug 2001
Time:
10:35:54

Comments

Taryn:

You are such a sweet little girl. I want you to know that not a day goes by that you are not in my prayers. You are truly an angel. I think it was because of you that your Mommy, Aunt Holly and I are becoming friends again. When you get older you will realize how important your cousins are to you and all the memories that you have of being with them. I know that God put you here for a reason. Whenever I am near you I can tell from that beautiful little smile on your face. I am glad that I can be part of your life. You are very special to Rob and I. We both love you very much.

Name:
Fae
Email:
autumnfire71@hotmail.com
Date:
22 Aug 2001
Time:
17:42:55

Comments

What a great site for Taryn! She is absolutely beautiful (as all of our Angels are!!) Please don't feel guilty about Taryn having SMA. I know these feelings very well and I know how hard it is to let them go. But know that DNA is not your fault! That is one of the lessons that my son, David Alexander, taught me. God bless you and please know that your entire family is in my prayers.

Name:
debbie-Paytons mom
Email:
pjf714@netscape.net
Date:
29 Aug 2001
Time:
21:28:03

Comments

Hi Jane! Hope all is well! Just wanted to let you know that your website is great and Taryn is absolutely beautiful!! Soooooo cute! It was so nice to be able to see her. I must do this for Payton sometime! Talk to you later Debbie

Name:
Kelly
Email:
kellyryoung@hotmail.com
Date:
02 Sep 2001
Time:
16:48:06

Comments

Your daughter is a gift from god. She is beautiful. Where do you get her treatment at? What city or State. Tank you for sharing your daughter with me. Kelly

Name:
debbie-Paytons mom
Email:
pjf714@netscape.net
Date:
08 Sep 2001
Time:
17:48:30

Comments

Hi Jane and Chris and Taryn, Just wanted to say hi and that Taryn is soooooooooooooo cute! I absolutely love the photos you have here!!! Good luck with everything! Debbie

Name:
Thomas(cousin)
Email:
Date:
09 Sep 2001
Time:
17:37:46

Comments

Dear Taryn, Ihope you feel better soon! I love you! Love Thomas

Name:
Aunt Bernadette
Email:
Date:
09 Sep 2001
Time:
17:45:36

Comments

Dear Taryn, I am so glad the whole world gets a chance to see your beautiful smile, and your big brown eyes! You are definitely an angel sent to us by God! I hope they find a cure for you and all the other SMA Angels! Jane, stay strong you are doing a great job fighting for Taryn as well as taking care of Ryan! I love you all! I'm praying for you Ta Ta! Love Aunt Bern

Name:
Betsey and Conner Riggs(type1,2yrs)
Email:
jcr104@hotmail.com
Date:
16 Sep 2001
Time:
11:45:10

Comments

I just wanted to say like everyone else that Taryn is beautiful. She really is an angel. Hang in there. You seem to be doing a great job under very difficult circumstances. Thinking of you all.

Name:
Wanda Dodaro Mom to Samantha 20 mth type 1
Email:
wdodaro@yahoo.com
Date:
09 Oct 2001
Time:
12:32:04

Comments

Taryn,

Your mom has put together a wonderful web site and you are a very beautiful little girl. You continue to fight as you have been and hopefully someday very soon there will be a cure for all of those affected with SMA. Samantha loved looking at your pictures as well.

Name:
TRACY AND SKYLAR
Email:
SKY6300@MSN.COM
Date:
11 Oct 2001
Time:
17:39:39

Comments

HAPPY 1ST BIRTHDAY TARYN!! CONGRADULATIONS ON BEATING THE ODDS!! FEELS GOOD DOESN'T IT. YOU'VE BEEN THROUGH A LOT THIS YEAR AND TRUST ME WE CAN RELATE!! I HOPE YOU HAVE A GOOD DAY. YOU DESERVE IT.. AND SO DOES YOUR MOMMY.. WE LOVE YOU!!!

Name:
Pat
Email:
Dillman549@aol.com
Date:
19 Oct 2001
Time:
20:53:36

Comments

Happy Birthday, Taryn!! I remembered your birthday but wasn't sure of your mommy's email address. Your friend Skylar's mom sent me to her website and through her site, found your site. I am glad you are doing okay, stay well. Pat (from University Hospital)

Name:
Sue, Gene, Casey and Colin
Email:
caseyandcolinsmom@yahoo.com
Date:
04 Nov 2001
Time:
17:29:21

Comments

Hi Taryn, I wanted to say hello, and say how glad that I got to meet you. I wish it had been in a fun place instead of at the hospital, but I was so happy to see your sweet face. You looked so much better the day we were leaving. We heard that you left the next day. Oh, and we were glad to meet your Mommy, too! Hope you're feeling strong, strong strong!

Name:
kitty zacharenko
Email:
kzacharenko@hotmail.com
Date:
21 Dec 2001
Time:
21:34:54

Comments

glad i was told about this site,it helped me understand much more about sma.very brave parents and blessed children. thank you

Name:
Amy Barnett (Lily's Mommy)
Email:
pupnamy@aol.com
Date:
27 Dec 2001
Time:
22:59:33

Comments

Just a beautiful website for a beautiful girl. I am glad I had the privilege of meeting you and Taryn (I wish it had been under better circumstances) and think about you all often. God Bless and hope to talk with you soon. Lily says hello to Taryn!

Name:
The Rev. Eddie Lillard
Email:
ed.lillard@verizon.net
Date:
04 Jan 2002
Time:
19:21:01

Comments

Chris, My love and prayers go out to you and your family, especially to your beautiful daughter, Taryn. I pray that God will fill you with his grace and his love. I pray that you may find strength in Gods' presence in your life. There are times that we don't fully understand the reason, but be reassured that God never leaves us alone. God bless and keep you. Eddie

Name:
Gina
Email:
ginafimbel@yahoo.com
Date:
07 Jan 2002
Time:
22:00:08

Comments

Taryn, You are so gorgeous and have the most amazing eyes! Thank you for sharing your life with us. How lucky we are to know such a special little angel. Please know that God is with you and your Mommy too and we pray for you all so much!! Tell your mommy thanks for being such a good pen pal. My thoughts are with you and I am sending you strength and love! I have also asked a little angel in heaven named Andrew to watch over you. Much love, Gina

Name:
Pat
Email:
Dillman549@aol.com
Date:
17 Jan 2002
Time:
18:11:27

Comments

Hi Taryn and Family, I've been thinking about you and your family lately and pray that you have been well. Say Hi to mom, dad and your cute big brother.

Name:
Tracy and Skylar (SMA1, 22 mo)
Email:
OurLilSky@aol.com
Date:
07 Apr 2002
Time:
12:13 AM -0500

Comments

Hey Taryn!! We haven't heard from you or your Mommy lately. Hope all is well. We miss you tons! Sky says "Hi buddy!" Tell your Mommy, we'd love to see some recent pictures of you. Also tell her to give me a call. Talk to you soon.. Love you, Tracy and Skylar ^i^

Name:
Taryn Kelly Hussey
Email:
tarynhussey@hotmail.com
Date:
25 May 2002
Time:
10:33 PM -0400

Comments

Hi There, I just wanted to let you know that I have visited your site and I was really amazed that there was someone out there with the exact same name as me. I was born on the 3rd of October 1979 in Zimbabwe, Africa. I am now in Canada with my fiancee. I think you have a really beautiful daughter,God bless Taryn

Name:
Pat
Email:
Dillman549@aol.com
Date:
15 Jul 2002
Time:
05:31 PM -0400

Comments

Hi Taryn & Family, I visit the SMA support site regularly and haven't heard or read anything about you. I hope (& pray) that you and your family are well. Say hi to everyone for me. Love, Pat Dillman

Name:
Claire Hussey
Email:
breaks1@email.msn.com
Date:
08 Sep 2002
Time:
10:16 PM -0400

Comments

I just visited Taryn's website after finding out about her through a google search for my daughter's name. Taryn is such a beautiful little girl. My prayers and thoughts are with you and your family.

Name:
taryn
Email:
tarynw7@yahoo.ca
Date:
07 Nov 2002
Time:
12:10 AM -0500

Comments

was very touched by your story... my name is taryn, and I also have a brother named Ryan, tho he is younger. neat coincidence.

Name:
Pat Dillman
Email:
Dillman549@aol.com
Date:
15 Dec 2002
Time:
01:07 PM -0500

Comments

Dear Taryn and family, I hope all is well with you. Taryn you must be such a little lady since I have seen you. I miss seeing you. Just wanted to wish you and your family and happy and healthy holiday.

Name:
Pat Dillman
Email:
Dillman549@aol.com
Date:
17 Apr 2003
Time:
03:00 PM -0400

Comments

Taryn, I was at a conference in Hershey this week and met one of your nurses from Jersey SHore Medical Center, Sarah. When she told me she worked there, I asked her if she knew you and she seaid yes but that she had first met you at Monmouth Medical Center. I told her if she sees you again to give you a kiss from me. I am waiting to see new pictures of you. Let me know when there are new pictures at your site. Say hi to your family. Love and prayers to all Pat

Name:
Jenna
Email:
hockeykid@telus.net
Date:
28 Apr 2003
Time:
03:36 AM -0400

Comments

Hello My name is Jenna and I was born wiht a rare boen disease. I love Taryn's webpage, and Precious Moments are my favourite. She has a great smile and she in my prayers. I know how tough it can be living with an illness/ disability. I know that everyone who suffers from a young age and can still manage to be positive, and smile through it all, is a hero in life, can teach others alot of things about life. Taryn is a true inspiration to myself, as well as alot of others out there. My webpage is: http://www.matmice.com/home/fighterandchampion

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
07 Sep 2003
Time:
06:57 PM -0400

Comments

Hi Taryn: It was good to see you this spring at Anna's kite festival. You look great. Sorry I haven't visited you in awhile. I was on vacation and I finally got my computer back (they had to fix it). I am back in school and working hard...I had to come home early Friday cuz I was sick. Hope you are doing ok. TTYL Love, MJ www.caringbridge.org/ny/mjpurk

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
22 Sep 2003
Time:
01:39 AM -0400

Comments

Hello, How are you today? How is your weekend going? I am home sick and Wyatt is keeping me company, snuggling in bed with me. If you check out my caringbridge website, you can see a picture of Wyatt and I snuggling in bed. Have a good day. Love, MJ www.caringbridge.org/ny/mjpurk http://www.our-sma-angels.com/Margaret/

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
29 Sep 2003
Time:
10:56 AM -0400

Comments

Hey! How are you doing? I'm still sick, UGH! Wyatt is very cuddly lately and loves to snuggle with me. I wish Wyatt could come and snuggle with you right now! Hope you are having a great day! Love MJ http://www.caringbridge.com/ny/mjpurk http://www.our-sma-angels.com/Margaret/

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
12 Oct 2003
Time:
01:06 AM -0400

Comments

Hi! How've you been? I'm finally am feeling better! I started some new medicines that really help! Wyatt is really sad today. My dad vacuumed the couch so Wyatt can't sit or lay on it. Oh well, guess he'll just have to snuggle with me! Hope you are doing and feeling GREAT! Love and hugs, MJ http://www.caringbridge.com/ny/mjpurk http://www.our-sma-angels.com/Margaret/ Happy Birthday!!!!!

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
25 Oct 2003
Time:
10:32 AM -0400

Comments

Hi! How are you? I still have a cold...:( Wyatt has been very good and cuddly! He actually has a new website! If you want check it out go to, www.freeweb.com/mj88 . He'll have a guest book soon so check back and let him know you have visited! Hugs to you, MJ & Wyatt www.caringbridge.org/ny/mjpurk www.our-sma-angels.com/Margaret

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
03 Nov 2003
Time:
10:22 AM -0500

Comments

Hi! How are you? How was your Halloween? Mine was pretty boring. We didn't have many trick-or-treaters here. Wyatt didn't enjoy Halloween very much...He barked and barked at everybody who came. Wyatt says I ruv yoou...That means I love you...I hope your doing well! Hugs, MJ & Wyatt http://www.caringbridge.com/ny/mjpurk

Name:
Skylar Saranchuk
Email:
ourlilsky@aol.com
Date:
28 Dec 2003
Time:
10:55 PM -0500

Comments

Hi there! Hope you had a great Christmas. I sure did. Santa even came and visited me and Mommy! Remember to ~~pray for the cure in 2004~~!! Bog (((hugs))) www.our-sma-angels.com/Skylar

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
24 Jan 2004
Time:
12:26 PM -0500

Comments

Hi! Sorry I haven't written in awhile, I've been sick and not feeling up to writing. It is so cold here. It snowed and snowed here today! Wyatt loved playing in the snow. He took his favorite toy (his tennis ball) out with him. He played and played for hours! Anyway, I hope you are doing well and it isn't too cold by you. Big hugs from me & Wyatt! Love MJ - http://www.our-sma-angels.com/Margaret/ http://www.caringbridge.com/ny/mjpurk "A life spent making mistakes is not only more honorable, but more useful than a life spent doing nothing." -George Bernard Shaw

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
29 Feb 2004
Time:
01:21 AM -0500

Comments

Hi! Happy Leap year!! Its hard to believe its almost March. I've still been home sick, no school for me. :( I have been doing homework but not much (shame on me). Wyatt sends you big slobbery dog kisses from NY. Hope you're doing well! Love, MJ http://www.our-sma-angels.com/Margaret/ http://www.caringbridge.com/ny/mjpurk/ MJ "Just living isn't enough," said the butterfly, "One must have freedom, sunshine and a little flower." -Hans Christian Anderson

Name:
Carly and family
Email:
edhewitt1@aol.com
Date:
05 Mar 2004
Time:
08:40 PM -0500

Comments

Taryn is so beautiful! We are so glad we finally got to see her pictures. Gail just finally told us about the website! Can you believe that! Give Taryn and Ryan a kiss from us. Lori, Ed, Megan, and Carly

Name:
Lisa Schaefer
Email:
fool04@aol.com
Date:
20 Sep 2004
Time:
10:55 AM -0500

Comments

My coworker and friend's baby girl, Celia, just went to heaven on Sept. 4, with Type 1. I pray daily for the families that struggle. God's blessings.

Name:
Pat Dillman
Email:
Dillman549@aol.com
Date:
16 Nov 2004
Time:
08:23 PM -0500

Comments

Hi Jane and Taryn, I haven't heard how you guys have been doing so I thought I would enter a note here, I hope all is well with you two and your family. Mom, let me know. I miss you folks. Love, Pat

Name:
Email:
Date:
13 Dec 2004
Time:
04:03 PM -0500

Comments

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Name:
Tommm
Email:
tom@hotmail.com
Date:
15 Dec 2004
Time:
03:54 AM -0500

Comments

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