RJ's Story

Ronald Williams Jr., our RJ, was born February 17, 2003 and died at home in his sleep on June 9, 2003. Before he was born Ron, his dad, was SO excited to finally get his boy! Ron's birthday is February 19th so RJ was ALMOST born on his b day! I got induced because I couldn't wait any more! 7 lbs 6 ozs and 19 inches! TONS of brown hair :):) He was such a happy, smiley baby with such big brown eyes! He loved pooh bear and so many people loved him. At 2 months of age he was rushed to St. Francis Emergency Room with pneumonia...he was transferred to Mary Bridge Children's Hospital where he was in Pediatric Intensive Care Unit (PICU) for a month...they ran many tests and was finally diagnosed with Spinal Muscular Atrophy (SMA)...we were heart broken. I wish we were given the info we have now and I wish I had internet than so I could have has all the support from the SMA community that I have with Alli... because of lack of knowledge we were steered so wrong...he only had morphine and oxygen...at his funeral we played "In the Arms of the Angels" by Sarah McLaughlin.  At his funeral, his big sister, Kayla read a story she wrote about him. He is buried in federal way WA in Gethsemene Catholic cemetery in the baby section...

Please be Patient while RJ's Song,
"In the Arms of the Angels" by Sarah McLaughlin
Loads! It is Worth the Wait!