Name: Jennifer Email: jmajors@cmh.edu Date: March
19, 2002 Time: 08:26
AM Comments
Brett, You have got to be the cutest little
boy I have ever seen (not to mention the smartest!!). You are AMAZING!! I am
so glad you are a part of my life. Maddi sends her
love and cannot wait to get together with you. She asks about you daily. Everytime I come home from work she asks if I played with
you. Of course, all three monsters fight over you. You are the BEST!! See you
soon, Jennifer Name: Chuck
& Kris Email: kriskaui@yahoo.com Date: March
22, 2002 Time: 02:37
PM Comments
Big hugs and Kisses from Name: Amber Email: hedfamily1@aol.com Date: March
24, 2002 Time: 08:57
PM Comments
Hey Brett! Cool website. We will come and
visit soon! Name: Joyce
T Chester Email: joyce.chester@ncfe.com Date: March
25, 2002 Time: 09:44
AM Comments
Brett you are the best looking boy out there.
I enjoyed seeing you site and look forward to updates. Your Grandmother Kathy
always keeps me updated about you. Love, Joyce Name: Tracy
Murray and Skylar Saranchuk
SMA1, 21.5 mo Email: OurLilSky@aol.com Date: March
25, 2002 Time: 11:27
AM Comments
Hi Brett! We love your pictures! You are such
a handsome little boy. We pray everyday for a cure to this terrible disease.
Then you and Sky could play!! Take care and God Bless Name: Uncle
Wes Hedrick Email: cartersgp@aol.com Date: March
25, 2002 Time: 01:24
PM Comments
I really enjoy your web site. It is really
neat. We need to get together sometime. I really like to play. Maybe sometime
we can get together with your cousin Brady who is about your age. You both
are so cute. Take care and God Bless. Uncle Wes Name: Brad
Hedrick Email: Royhed@aol.com Date: March
25, 2002 Time: 02:45
PM Comments
Hello Brett This is your great grandpa Brad
& Grandma Mary. Your great grandma loves you and wishes you the best.
Don't forget your great grandpa with his big hat and his fiddle. Have a great
day and stay well. Name: Judi
Hedrick Email: projudi@aol.com Date: March
25, 2002 Time: 04:02
PM Comments
Great website, thanks for sharing your neat
pictures with us. Need to hide one or two Easter eggs in your tray for nanna Kathy! Name: Stacy&Brian Beck Email: synfree4now@aol.com Date: March
26, 2002 Time: 01:15
PM Comments
Brett you are so cute! Our love and prayers
are always with you! Name: Adeline
and James Correa Email: acorrea@tesoropetroleum.com Date: March
26, 2002 Time: 03:14
PM Comments
ALOHA from your friends in Name: Liz
and Kalair Email: kalairsmom@webtv.net Date: April
04, 2002 Time: 06:41
PM Comments
Hi Brett! We loved looking at all of your pics, and watching Blue run across the screen was great!
Maybe sometime soon Kalair can come
try out your stander, it looks fun! If we don't see you soon, we will see you
at the conference in May. Then we can play! Tell your mommy and daddy to give
you BIG hugs from us! Love you, Liz and Kalair (25
months, SMA 1) Name: Kelli
Email: Kelli.puhl@bcbskc.com Date: April
11, 2002 Time: 08:36
AM Comments
I love your site! Brett is so cute!!! Name: MARY
JANE BUERKY-RAMSEY Email: BUERKY@COMPORIUM.COM Date: April
11, 2002 Time: 10:08
PM Comments
Name: DONNA
GOLDEN Email: NONE Date: April
12, 2002 Time: 05:37
PM Comments
I AM YOUR GREAT-GREAT AUNT MARY JANES
ROOMMATE. YOU ARE A BEAUTIFUL LITTLE BOY. I HAVE A NEPHEW WHO IS 3 WHO IS
VERY SPECIAL TO US. GOD BLESS YOU AND GIVE YOU STRENGTH AND COURAGE TO CARRY
ON. DONNA MARIE GOLDEN Name: kimberly Email: BUERKY
@ COMPORIUM.NET Date: April
13, 2002 Time: 12:51
PM Comments
I AM A FRIEND OF HIS GREAT-GREAT AUNT MARY
JANE. I LIVE IN Name: Nancy
Murphy Email: fishcreekers@webtv.net Date: June
07, 2002 Time: 02:29
AM Comments
I am your Great Grandpa Buerky's
sister. I know you don't know me,but
I have heard a lot about you, and I think you are a great little guy. God has
a plan for you. He knew you before you were born and he knows just what you
need. My prayer is that you will know God and will feel his power in your
life. God Bless You, little one. Name: Wes
Hedrick Email: cartersgp@aol.com Date: June
30, 2002 Time: 01:04
PM Comments
Judi and I sure enjoyed seeing you at Great
Grandma and Grandpa Hedrick's house on fathers day.
You have really grown up since last time we saw you. You and my grandson
Brady are about the same age and I know you two would have fun if we can get
together sometime. God Bless and we hope to see you again real soon. Wes
& Judi Name: Jenny Email: gcangel@socal.rr.com Date: July
28, 2002 Time: 03:47
PM Comments
Boy what a total cutie!!! We miss you guys alot!!! We can't wait till Christmas, I hope you guys are around. All our love,
Jenny, Aaron and Dylan Name: Liz
and Kalair Email: kalairs-mom@our-sma-angels.com Date: September
03, 2002 Time: 08:36
PM Comments
Hi Brett! Kalair
and I were just checking out your website. We have not heard anything since
you went to NJ for your surgery, we hope everything is okay! We are saying
lots of prayers! Kalair sends you (((HUGS)))!!
Love, Liz and Kalair (30 months w/SMA one) Name: Nonnie Email: kwilson@homemedical.com Date: September
26, 2002 Time: 09:10
AM Comments
This is the cutest little boy in the world. Name: Claudia Email: Chawkins@homemedical.com Date: September
26, 2002 Time: 05:29
PM Comments
Brett your site is very interesting. Nonnie Kathy sent me you address I am so glad I got to
visit it. Lexcee says Hi! I sent Nonnie a sweatshirt with some newer Picture of you on it.
Next time you see her you will have to ask to see it. She is so proud of you.
You are getting to be such a big boy I remember when you were very little and
I took some picture of you. Love and kiss Name: KRISTEN
BARKER Email: KRISTEN.BARKER@BCBSKC Date: September
27, 2002 Time: 01:28
PM Comments
HI BRETT! I LOVE YOUR WEBSITE! I HEARD YOU WEREN'T
FEELING VERY WELL. I HOPE YOU GET TO FEELING BETTER SOON SO YOU AND CHRISTIAN
CAN PLAY HOT WHEELS TOGETHER. CHRISTIAN CAN'T WAIT TO SEE YOU! Name: Sheila
Hedrick Email: SantaCLady@aol.com Date: September
28, 2002 Time: 10:39
PM Comments
Hi Brett...I work at the same place your
mommy does. Your friend Christians mommy gave me
your site address. It's so COOL!!! I see that you have family with the same
last name as me...isn't that neat? You know what else? My husband and my son
have the same name as YOU!! Now I can look at pictures of 3 Brett's. You are
a real handsome young man. God Bless You and you are in our prayers. Name: bakeeta
Hill Email: bzykeeta@yahoo.com Date: October
18, 2002 Time: 05:17
PM Comments
Hey Whatssup!
Brett! Stopped in to look at your new pictures!! I miss You!!! Hope to see
some pics of me and Uncle John with you soon! Maybe
one with your blues clues blanket !! Love YOU Aunt Keeta Name: John
W Hill Email: jaydub1950@hotmail.com Date: October
18, 2002 Time: 05:29
PM Comments
Hey! Brett it's football season!! Go
Chiefs!!! Hi from both aunt keeta and me!!! Would
love to see you soon. Maybe you can come to Name: Gem Email: gbrown@homemedical.com Date: October
21, 2002 Time: 11:29
AM Comments
Hi Brett, It's Gem AKA "hey girl".
"I'll never forget that it really made me smile". Everyone here at Nonnie's work always look forward to your visits. Did Nonnie send you the group picture we took of everyone in
our SMA tee shirts? I really enjoyed your website; you're the
"cutest"! Our thoughts and prayers are with you in Name: Jose
Rios PAC Email: riosjo@umdnj.edu Date: October
31, 2002 Time: 03:24
PM Comments
Hi how are you doing??????? Name: Stephanie
Talken Email: terry@talken.com Date: November
13, 2002 Time: 12:58
PM Comments
Hi Brett! Your website is terrific! What a
cute little boy you are! We love to hear stories about you from your Grandma
Kathy. She is very proud of you. Best wishes to you, your mommy and your
daddy. Name: joann's
etc sore Ft. Myers, Fl Email: Fatirene@hotmail.com Date: November
16, 2002 Time: 01:14
PM Comments
Brett,Your great aunt Bakeeta brought in your
website add. for all of us to visit so we did! Along
with her stories and her pictures of you, you are amazing!!! We all like to
see your pictures!! and her about your progress.
Hope your doing fine! The staff at Joann's Bobbi, Pam ,Lily.
Irene,Bev, Felicia, JIm, Kristen and Jim H.,Cathy,Heather,Aaron,and
Name: Teresa
Koehler Email: koehlerdave@msn.com Date: January
10, 2003 Time: 11:37
PM Comments
Hi Brett Kristal Nick I love you Nana Name: BRITTNEE
SHOCKLEY Email: RSHOCKLEY@SBCGLOBAL.COM Date: January
12, 2003 Time: 10:55
PM Comments
HI BRETT THIS IS BRITTNEE SPEARS HAHA.NO ITS
BRITTNEE REMEMBER ME WE MET AT SAMS CLUB. HOW ARE YOU DOING? I AM DOING MY
HOMEWORK I HAVE TO GO TO SCHOOL ON TOMORROW. WELL BYE FOR NOW. TALK TO YOU
SOON. BRITT Name: Heather
Braton Email: lbraton@kc.rr.com Date: January
23, 2003 Time: 07:41
AM Comments
Brett~~~it's your sweetheart :) here!! I love your website! You are
so handsome in your shades by the lake!! We miss you! Belle says hi! :) Name: Email: kenya@communicomm.com Date: February
03, 2003 Time: 05:26
PM Comments
I just love visiting your site. You are such
a cutie. The oddest thing is you look so much like Aschdon
we could almost pass you two off as twins. Well I hope you are doing good during these rough days of winter. Big hugs to you
and a hi to your mom Name: MJ Email: TWEETYROLL88@AOL.COM Date: March
10, 2003 Time: 03:30
PM Comments
Hi Brett, Hope you are doing well and having a
great day! My dog, Wyatt, sends you big slobbery doggie kisses. Love your
buddy, MJ -
http://caringbridge.org/ny/mjpurk/ Name: MJ Email: TWEETYROLL88@aol.com Date: March
18, 2003 Time: 09:51
AM Comments
How was your day? Hope you it was great! Keep
smileing and know Wyatt and I love you! Huggles and Kissems, MJ www.our-sma-angels.com/Margaret Name: MJ Email: TWEETYROLL88@AOL.COM Date: March
25, 2003 Time: 03:44
PM Comments
HAPPY SPRING!!! How is your weather? It's
been so nice here and Wyatt gets to go for a walk almost everyday.
Hope you can go outside soon and enjoy the warm weather! Have an awesome day!
Love, MJ - www.caringbridge.org/ny/mjpurk Name: Kelli Email: Whiskeymom25@aol.com Date: March
26, 2003 Time: 10:03
AM Comments
Brett you are such a cutie!! I love all the
pictures! Name: MJ Email: TWEETYROLL88@aol.com Date: April
04, 2003 Time: 06:56
PM Comments
Hey there! Hope you had a great week! I'm doing
alright. I'm so happy Spring has 'sprung'. Unfortunately, it's been kinda chilly here, so Wyatt and I haven't been on many
walks. But that's ok because, Wyatt enjoys digging in the back yard. He digs
and digs to find his favorite toy...ROCKS! If you want to, you can e-mail
Wyatt and he'll write you back. He LOVES e-mail so much! His e-mail address
is NewBrnCar4wyatt@aol.com . Please feel free to
e-mail him anytime! Have a great week and remember,
Wyatt loves you and so do I! Love, MJ -
http://www.picturetrail.com/gallery/view?username=bshanson68 Name: Dawn
michelle Email: michelleg91@aol.com Date: April
16, 2003 Time: 12:41
PM Comments
Pretty cute Brett. Name: Marianne Email: jinxee77@hotmail.com Date: April
26, 2003 Time: 12:31
PM Comments
I loved this, Brett is so cute in all of his
pictures, and I learned some new things. Thanks,Your
friend, Mariannne Hughes Name: MJ Email: TWEETYROLL88@aol.com Date: May 14,
2003 Time: 06:09
PM Comments
Hey buddy! How have you been? Hopefully
great! If not, feel better right away, okay? I have to go to hospital again
soon. :-( So, if you don't hear from me, don't worry, I'll be back really
soon!!!! Remember I love you and stay well! Huggles
(haha a new word) MJ - www.caringbridge.com/ny/mjpurk
Name: MJ Email: TWEETYROLL88@aol.com Date: June
02, 2003 Time: 12:34
AM Comments
Hi there! How are ya?
Hopefully you are feeling GREAT today! Wyatt says he hopes you are having
good weather! Stay strong and well! Love your buddy, MJ -
http://www.our-sma-angels.com/Margaret/
www.caringbridge.org/ny/mjpurk NY Hugs and Hope
www.hugsandhope.com Name: Stacey
Livella Email: kcfl1973@yahoo.com Date: June
27, 2003 Time: 12:17
PM Comments
Brett needs a picture of himself w/ his great
aunt Keeta, great uncle John, and cousin Stacey. We
think he is too cool!!! Name: Lisa
Muszkiewicz Email: lmuszkie@cox.net Date: July
02, 2003 Time: 10:01
PM Comments
Brett you are so cute!! Kristal you have an
amazing little man here. I love the equipment photos and all of the SMA info!
I should do this for Lindsey, my little one w/SMA. Thanks for all the info
about MO. I pray someday soon there will be a cure for SMA and our little
ones could walk by our side. Sending hugs to Brett and family. Lisa Muszkiewicz (Lindsey's mom SMA III) Name: Dorothy
Buerky Email: Dorothy.Buerky@farmersinsurance.com Date: July
14, 2003 Time: 09:40
AM Comments
Hi, Brett! I enjoyed visiting your web site!
Cool pictures (I was surprised to see Great Grandpa Buerky
and me). I also really enjoyed seeing you and Sesame out fishing. What Fun! I
showed some of the people I work with your site so now even more people are
aware of SMA. I'll keep talking to them about it and you. Love, Dorothy (or
Great Grandma Buerky, whichever you prefer) Name: Email: smamom2three@yahoo.com Date: August
01, 2003 Time: 12:08
PM Comments
Hey buddy! We wanted to stop by and wish you
luck with your upcoming g-tube surgery!! We sure do wish we lived closer, it
would be great to have these guys play together once in awhile. Name: UNCLE
JAY Email: GRUMPEEGRAMPEE@AOL.COM Date: August
04, 2003 Time: 11:23
AM Comments
I WISH THERE WAS A WAY TO BLAST SMA ON THE TV
NEWS CHANNELS AROUND THE WORLD ,MOST PEOPLE WE TALK TO HAVE NEVER HEARD OF
IT, IF THEY KNEW AND COULD SEE THEY WOULD HELP. Name: MJ Email: TWEETYROLL88@aol.com Date: September
13, 2003 Time: 01:50
AM Comments
Hi Brett: Hope you are feeling a little
better. How is Pinky doing? Is she keeping you company??? I hope so!! Sorry I
haven't visited you in awhile. I was on vacation and I finally got my
computer back (they had to fix it). I am back in school and working hard...I
was home most of the week cuz I was sick. Hope you
are doing ok. TTYL Love, MJ www.caringbridge.org/ny/mjpurk Name: mj Email: TWEETYROLL88@aol.com Date: September
22, 2003 Time: 02:00
AM CommentsHello, How are you today? How is your weekend
going? I am home sick and Wyatt is keeping me company, snuggling in bed with
me. If you check out my caringbridge website, you
can see a picture of Wyatt and I snuggling in bed.
Have a good day. Love, MJ www.caringbridge.org/ny/mjpurk
http://www.our-sma-angels.com/Margaret/ PS. how is pinky doing?????? Name: MJ Email: TWEETYROLL88@aol.com Date: September
29, 2003 Time: 11:03
AM CommentsHey! How are you doing? I'm still sick, UGH! Wyatt
is very cuddly lately and loves to snuggle with me. I wish Wyatt could come
and snuggle with you right now! Hope you are having a great day! Love MJ
http://www.caringbridge.com/ny/mjpurk
http://www.our-sma-angels.com/Margaret/ I hope you are feeling much better and your tubie is working great!! How is Pinky doing? Did she take
good care of you when you were sick? I hope so. Love you Brett!!!! Name: Diana Email: keithdianajones@hotmail.com Date: October
12, 2003 Time: 10:55
PM CommentsBrett, I know you sent your e-mail to
Jennifer and Stacy but when I read it I went to your web site and I am soooo glad I did. Thank you for sharing your pictures
with us. Thank you also for letting us know what you like to do and how you
spend your time. I do not know anyone as phenomenal as you and your mom. You
are two special people and I am grateful God has put you in our lives. You
are a gifted little boy Brett ...we love you. Diana Name: MJ Email: TWEETYROLL88@aol.com Date: October
13, 2003 Time: 02:18
AM CommentsHi! How've you been? I'm finally am feeling
better! I started some new medicines that really help! Wyatt is really sad today.
My dad vacuumed the couch so Wyatt can't sit or lay on it. Oh well, guess
he'll just have to snuggle with me! Hope you are doing and feeling GREAT!
Love and hugs, MJ
http://www.caringbridge.com/ny/mjpurk
http://www.our-sma-angels.com/Margaret/ Hey Brett: How are you doing? You weren't supposed to
get sick too! I think I did enough for the both of us. Get better now!!!!
Give Pinky a hug from me! Name: MJ Email: TWEETYROLL88@aol.com Date: October
25, 2003 Time: 10:56
AM Commentshey Brett: How are you feeling? I know you had a
cold....hope you are feeling better!!! Love the new pictures of you, so much
that you are on my clock at 11o'clock!!! Hi! How are you? I still have a cold...:( Wyatt has been very good and cuddly! He actually has
a new website! If you want check it out go to, www.freeweb.com/mj88 . He'll have a guest book soon so check back and let
him know you have visited! Hugs to you, MJ & Wyatt www.caringbridge.org/ny/mjpurk
www.our-sma-angels.com/Margaret Name: MJ Email: TWEETYROLL88@aol.com Date: November
03, 2003 Time: 10:36
AM CommentsHi! How are you? How was your Halloween? Mine
was pretty boring. We didn't have many trick-or-treaters here. Wyatt didn't
enjoy Halloween very much...He barked and barked at everybody who came. Wyatt
says I ruv yoou...That
means I love you...I hope your doing well! Hugs, MJ & Wyatt
http://www.caringbridge.com/ny/mjpurk Hey Brett or should I say Spiderman. Your costume was
great! You looked great!!!!! Name: LindaZ Email: colesquilts@hotmail.com Date: December
24, 2003 Time: 11:07
AM CommentsI would like to wish you and your family a
most blessed Christmas. Hugs, Linda Name: Candice
Combs Email: Candice.Combs@Quintiles.com Date: January
06, 2004 Time: 03:20
PM CommentsHi guys. Clint told me about this site, so I
just had to check it out. I love it you did a great job. Please tell Brett
that Victoria and I say hi! Miss you all. Love, Candice Name: MJ Email: TWEETYROLL88@aol.com Date: January
24, 2004 Time: 12:36
PM CommentsHi! Sorry I haven't written in awhile, I've been
sick and not feeling up to writing. It is so cold here. It snowed and snowed
here today! Wyatt loved playing in the snow. He took his favorite toy (his
tennis ball) out with him. He played and played for hours! Anyway, I hope you
are doing well and it isn't too cold by you. Big hugs from me & Wyatt!
Love MJ -
http://www.our-sma-angels.com/Margaret/
http://www.caringbridge.com/ny/mjpurk "A life spent making mistakes is not only more
honorable, but more useful than a life spent doing nothing." -George
Bernard Shaw Name: PAP Email: dawako@sbcglobal.net Date: January
28, 2004 Time: 11:27
PM Commentsjust missing him 1-28-04 Name: Angela
Trick, baby Jacob Email: angetrick@hotmail.com
, babyjacobbear2@hotmail.com Date: February
05, 2004 Time: 06:01
PM CommentsHi Brett!!! Cool website!!! I am writing all
the way from Name: James
Simmons Email: jamessim99@hotmail.com Date: February
08, 2004 Time: 06:18
AM CommentsGreat website...keep
it goin'! Name: LindaZ Email: colesquilts@hotmail.com Date: February
23, 2004 Time: 04:47
PM CommentsHi Brett, I just wanted to let you know that
I will be mailing your quilt to you tomorrow. I have had so much fun
assembling it and I really hope you like it. Hugs, Linda Name: MJ Email: TWEETYROLL88@aol.com Date: February
29, 2004 Time: 01:27
AM CommentsHi! Happy Leap year!! Its
hard to believe its almost March. I've still been home sick, no school for
me. :( I have been doing homework but not much (shame on me). Wyatt sends you
big slobbery dog kisses from NY. Hope you're doing well! Love, MJ
http://www.our-sma-angels.com/Margaret/
http://www.caringbridge.com/ny/mjpurk/ MJ "Just living isn't enough," said the
butterfly, "One must have freedom, sunshine and a little flower."
-Hans Christian Anderson Name: Angela
Trick, baby Jacob Email: angetrick@hotmail.com
, babyjacobbear2@hotmail.com Date: March
31, 2004 Time: 02:10
PM CommentsI am sorry to hear Brett is not so good
today... Prayers to kick this soon. Hugs to your handsome boy... www.caringbridge.org/canada/babyjacob Name: T-Bone Email: tgreife@swbell.net Date: April
01, 2004 Time: 02:20
PM CommentsIT'S GOOD!!! Hey buddy, this is T-Bone. I
have visited your website several times and I thought I had better take the
time to let you know...IT'S GOOD!!! Wow, you and your mom have really spent
some time on this site to share your lives with everyone and it is simply
fantastic! The pictures brought smiles to my face and warmth to my heart. You
are an awesome kid who has an awesome family, and I consider myself very
lucky to be your friend. I know that I dont get to
see you very much but you are always in my prayers. We definitely need to get
together and watch some football or NASCAR. Well, I gotta
get but thanks again for the cool site, I will be back!!! See you later
buddy! - T-Bone Name: Ashely Email: www.babyguinea02@yahoo.com Date: April
17, 2004 Time: 08:25
PM CommentsHi Brett! Your website is so cool! I love all
of the pictures of u and the cool music that plays while I visit Name: Jamie Email: www.iluvcasper@yahoo.com Date: April
19, 2004 Time: 09:55
PM CommentsHey Brett this is jamie..i love Name: Jamie Email: www.iluvcasper@yahoo.com Date: April
19, 2004 Time: 09:56
PM CommentsHey Brett this is jamie..i love Name: jamie Email: iluvcasper2000@yahoo.com Date: April
21, 2004 Time: 10:20
PM CommentsHey brett!!!Its jamie..i really like Name: jamie Email: iluvcasper2000@yahoo.com Date: April
25, 2004 Time: 10:41
PM CommentsHEY BRETT, WELL IM JUST SAYING HELLO AND THAT
U REALLY NEED TO COME PLAY AT MY HOUSE..IM GETTIN
BORED WITHOUT YOUU=), WELL SEE YA LOVE JAMIE Name: Lora
Berhar Email: loraberhar@yahoo.com Date: May
08, 2004 Time: 09:56
PM CommentsHi Brett! I had fun looking at your site! You
remind me a lot of my little boy, Ryan! Your site is so cool! Name: jamie casey Email: iluvcasper2000@yahoo.com Date: May
12, 2004 Time: 11:02
PM CommentsHey Brett, it's me and i
just wanted to tell u that i have a pic of u, me and ashley to send
to you. You look so handsome in it...i keep a
picture of you in my car so all of my friends can see how cute u are.i tell everyone about you and they thnk u r awesome..well
ill see ya soon buddy! love jamie Name: Lora
and Ryan Email: loraberhar@yahoo.com Date: June
23, 2004 Time: 12:31
AM CommentsHi Brett, We had so much fun meeting you at
the conference last week. You are such a cute little boy and you remind me so
much of Ryan when he was that age. Tell your mommy hi for me and hopefully
we'll see you at another conference! Name: jamie casey Email: iluvcasper2000@yahoo.com Date: June
24, 2004 Time: 11:26
PM CommentsBrett i was just
thinking of you so i thought i
wuld stop and say hi! i
really miss u so i hope u come over soon so we can
play Love, Jamie Name: Walt,
Email: cochrans@kc.rr.com Date: July
02, 2004 Time: 08:38
PM CommentsBrett, it was great to visit with you about
spider man the other night at the SMA meeting. Look forward to seeing you
again. -Walt Name: Jenna Email: hockeykid@telus.net Date: July
03, 2004 Time: 01:52
AM CommentsHi Brett: My name is Jenna and I came across
your website. You are an inspiration to all who know you and visit your site.
You Are Full Of Life, A Warrior, Fighter, Champion, And A Hero! You Have An
Awesome Smile, A Positive Attitude, A Great Spirit, A Big Heart, Lots Of Courage, Strength, Willpower, Determination, And A
Love For Life! I Love meeting new friends, and I would really like to be your
friend too. I was born with a rare bone disease. Here are my websites:
http://www.matmice.com/home/fighterandchampion
http://www.caringbridge.org/canada/jenna Your New Friend Jenna. Ps: You are in My Thoughts, and
Prayers! Name: maga Email: oluguy@yahoo.com Date: July
17, 2004 Time: 11:55
AM Commentsi love the site Name: jenny
miller Email: millertime31560@yahoo.com Date: July
28, 2004 Time: 05:47
PM CommentsHey Brett, You have a cool web site. I like
it. You are a cutie pie. Name: Jenna Email: hockeykid@telus.net Date: August
15, 2004 Time: 12:19
AM CommentsHello Brett My name is Jenna and I came
across your website. You are a real Fighter and Champion! You are an
inspiration, Warrior, and a little Hero! I can tell that you are a big
Spiderman fan! I love SpiderMan, I haven't seen the
first, but I bought a SpiderMan Movie. Have you
seen Spiderman2? I have and it is an awesome movie! I can tell that you love
Baseball, Nascar, and that you are a big Jeff Gordan fan. I love Hockey, Nascar,
and I am a big Dale Jarret fan. I love making new
friends and signing their guestbooks. I was born
with a rare bone disease and here are my websites to my story.
http://www.matmice.com/home/fighterandchampion
http://www.caringbridge.org/canada/jenna Name: Sue
(TuftySue) Email: sue@tuftysue.co.uk Date: August
22, 2004 Time: 06:34
AM CommentsI just wanted to say I love Brett's site,
especially all the photos. He's a real cutie and I'm sure he'll grow up to be
a heart breaker ;) Sue Name: paul and vivienne Email: paulnviv@ntlworld.com Date: August
27, 2004 Time: 05:37
PM Commentshi brett we have a
daughter with spina bifida who has to wear splints
to aid her walking,stephanie
is 11 years old but she finds it really difficult coming to terms with
wearing them and all the other things that go along with her condition,she was very inspired by your web site and is
looking forward to your story page being updated as are we (mum and dad) ps im a massive spiderman fan too but my wife says i
make her climb the walls.love from glasgow,scotland. Name: Beth Email: turtlebethany@yahoo.com Date: September
28, 2004 Time: 09:57
AM CommentsI have enjoyed looking at Brett's site. He is
such a cute little boy! My daughters and I live in KC too and I will keep
checking back to see if there are any local events coming up. Name: Clint
Cassing Email: ccassing@kc.rr.com Date: October
25, 2004 Time: 09:59
PM CommentsHi Buddy just checkin
out your website. Take care. Clint Name: Aunt
Keeta Email: Bzykeeta@yahoo.com Date: October
29, 2004 Time: 01:00
PM CommentsBrett, Just missing you. I was wondering If
mom got pics I sent to you from when we were at the
lake this summer. It was so much fun to go out on the pontoon boat with you.
I had a great time! I especially like swimming in the pool with you and you
jumping from me to Name: Laurie
Paige Email: laurie.paige@leesummit.k12.mo.us Date: November
02, 2004 Time: 09:31
AM CommentsBrett, what a cool website--great pictures.
I'll share them with your friends in the morning Brown Bear class. Love, Mrs.
Paige Name: Peter Email: effelt@aol.com Date: November
05, 2004 Time: 02:31
PM CommentsHello Brett I just visited your beautiful
website - greetings to you and your family from Germany I hope I can see you
in person sometime Peter Name: Charlie
and Kim (Lily too) Email: ksykora@sbcglobal.net Date: November
14, 2004 Time: 03:45
PM CommentsLove looking at your photos. We hope you are
better! Maybe we will see you soon. (((hugs))) Name: Robyn
Miller Curtis Email: Date: December
08, 2004 Time: 06:25
PM CommentsKristal, What a great website. Hope all is
well with you and your family. Missy sent the email about the recipe book for
Brett. Miss seeing you at work! Robyn By the way, got married so thats the new name! Name: MJ Email: TWEETYROLL88@aol.com Date: January
17, 2005 Time: 02:40
AM CommentsHi!!!! Sorry I haven't signed your guest book
in awhile. I hope you are doing ok and are enjoying the winter so far. I have
a new website! It is <a href="http://www.mjthesmaqueen.com/"> MJ - The SMA Queen</a>....If you want to
check it out. If you don't see your website on my friends page (and would
like to) e-mail me, and I will put you up ASAP. I hope you have a <img src="http://www.mjthesmaqueen.com/valmiscani.gif">! and remember, <img
src="http://www.mjthesmaqueen.com/valani3.gif"> MJ Name: phyllis scarlett Email: pnscarlet@yahoo.com Date: January
21, 2005 Time: 01:13
PM CommentsName: Kim,
Charlie and Lily Email: charlies-mom@oursmaangels.com Date: January
24, 2005 Time: 03:20
PM CommentsHi! Just came back to check out some more
photos of you. I love all the updates. We can't wait to get together soon.
Hugs - Charlie, Lily and Kim (John too) Name: MJ Email: TWEETYROLL88@aol.com Date: March
08, 2005 Time: 11:13
AM CommentsHi: I know that I am early, but I wanted to
wish you and your family a <img src="http://pic17.picturetrail.com/VOL815/2822478/6549091/88274216.jpg"> & <img
src="http://pic17.picturetrail.com/VOL815/2822478/6549091/88272883.jpg"> I hope you enjoy your Spring!! Love, <a href="http://www.mjthesmaqueen.com/"> MJ </a> Name: Sarah
Sexton Email: sks0609@hotmail.com Date: March
11, 2005 Time: 11:10
AM CommentsI loved your website, Brett! I saw so many
cool pictures of you and I learned so much too! I am so glad I got to meet
you during my student teaching. You were so much fun to have in class. Name: MJ Email: TWEETYROLL88@aol.com Date: April
12, 2005 Time: 10:23
AM CommentsHi my friend!! Did you know that <img src="http://www.mjthesmaqueen.com/snags/ItsSpring-jumpingFrog.gif">??? I hope that you had a very happy Easter! I
got to go to Name: Breyon D.
Lee Email: roosterpoints@hotmail.com Date: May
10, 2005 Time: 01:56
PM CommentsHello, Little man i
have to say you are a very strong person and i will
have you in my prayers, if you ever need a shoulder to lean on just send me
an email. My name is Breyon D. Lee i am a Sergeant in the US Army currently stationed in
Iraq, and is good to come across your page in a time like this right now,
hope all your dreams come true and always remember God is the friend who will
always be by your side (Plus Mommy and Daddy) of course. Have to go now, but
you stay strong. Sgt. Breyon D. Lee 502nd Eng. Co,
Hanau Germany P.S. Smile; God loves you Name: MJ Email: TWEETYROL88@aol.com Date: December
12, 2005 Time: 10:53
AM CommentsHello! I thought I would share this beautiful
website with you and your family. <a href="http://www.wisehearts.com/CmsMF.htm">Merry Christmas to My Friend!</a>
Wishing you and yours a wonderful week! <img src="http://www.mjthesmaqueen.com/schlittencujo.gif"> MJ
http://www.caringbridge.com/ny/mjpurk Name: Janice
Troy Email: momangelsthr@aim.com Date: December
13, 2005 Time: 11:28
PM CommentsHi we saw you listed on MJ's
friends page. You are very brave just like MJ and my
daughter Maddison. Maddison
is five and sends her love to you. We are sending you hugs and smiles today.
Love, Janice Troy & Maddison www.caringbridge.org/visit/maddisontroy Name: Crystal
Makekau Email: makekau@hawaii.edu Date: December
14, 2005 Time: 12:13
AM CommentsOh Brett! You've grown so much since we last
saw you at Aunty Kris and Uncle Chuck's wedding. That was such a great time
to meet a great person like you. Hope that you keep up those handsome looks
of yours and keep up the great work on those drawings. take care and we love
you Jazmine, aunty crystal, uncle Kana and Jerzey Name: MJ Email: TWEETYROL88@aol.com Date: December
17, 2005 Time: 07:58
PM CommentsHappy Holidays to you! <u>C</u>andles are a gift of light, <u>A</u> tiny
sun, a bit of star. <u>N</u>o other dancer in the night
<u>D</u>ances with such sheer delight,
<u>L</u>ittle souls serene and bright,
<u>E</u>ach a glimpse of what we are <u>S</u>hining innocent and pure. ~Author Unknown~ Since I didn't
have enough cards to send one to each of you, check out <a href="http://www.mjthesmaqueen.com/indexgreeting">Your Name: MJ Email: TWEETYROL88@aol.com Date: February
13, 2006 Time: 08:37
PM CommentsHi! Can you believe it's almost Valentine's
Day? I can't! I hope you and your family have a wonderful week. <a href="http://mjthesmaqueen.com" target="_blank"><img src="http://i43.photobucket.com/albums/e394/cbfiles/89f389ce.gif" border="0"></a> MJ Name: Marilyn
Jeffers Email: marilyn.jeffers@raytownschools.org Date: February
21, 2006 Time: 12:48
PM CommentsGreat web site Brett! I really enjoyed
visiting! Ms. Jeffers Name: Roselie Email: rjbb10@comcast.net Date: June
06, 2006 Time: 10:34
AM CommentsHey Brett I loved your web site. It is too
cool. I think the picture with Hilary is great. Roselie
Name: Mindy
Lipsey Email: Mindy_lipsey@yahoo.com Date: July
07, 2006 Time: 09:27
PM CommentsHi Brett- I love all the graphics on your
site! You certainly are a handsome young man. Best wishes to you and your
family. MJ emailed your cookbook fundraiser to me. I met MJ because she
helped me do a website on www.caringbridge.org for two of my three children.
My boys are ages 9 and 6. They have Stargardts
Disease, in which they begin losing vision at a young age. At age 9, my
oldest son, Matthew, is legally blind, and he continues to lose vision daily.
Josh just turned 6 and is beginning to show symptoms of vision loss too.
Emily is about to turn 3 and she didn't inherit the disease. It's autosomal recessive like SMA. Your parents can explain
that to you! Nice to meet you! Hugs- Mindy and family Name: Angela
F. Email: dna101103@aol.com Date: July
12, 2006 Time: 11:06
AM CommentsLove the web site ,
very cool ! You are a very handsome young man ! My
daughter Morgan Kelly is 8 yrs old and thought you have done some very cool things ! Morgan thought It was cool that you played sports ! I do too ! Morgan is a
cheerleader for the Lakeland Gators, She was one of the first wheelchair
bound cheerleaders in the state of Name: Liz
and Tim, Arturo's mom and dad Email: kalairsmom@yahoo.com Date: August
07, 2006 Time: 11:43
AM CommentsHi Brett! We just came by to check and see if
you had any new pics up. Our kids are sleepy heads
this morning so we are bored! But tell your mom we want to see more new pics of you on here and hopefully we can get together
again sometime before summer is over. Give your mom a hug for us...we love
you, Brett, and we hope you are having a great day! :-) Name: Cindy
Dreiling Email: c.dreiling@spearnet.net Date: August
21, 2006 Time: 11:20
PM CommentsBrett looks like a wonderful young man and I
can see that he has so many people around him that love him very much. He
looks very happy. God bless you. Name: Kris
Rooff Email: moatadmn@swbell.net Date: September
28, 2006 Time: 04:45
PM CommentsI am very touched by your pictures and
website. I can't wait to meet you. You seem really cool! God Bless Name: Jensen Baldwin Email: princessjensen95@yahoo.com Date: October 08, 2006 Time: 05:43 PM CommentsHey Brett, I love your website its so cool Kameron and I had lots of fun looking all through your
website. Name: Brett&Brittany Email: ashley_babey97@hotmail.com Date: October 27, 2006 Time: 01:54 PM Commentshi im brett to well me and my friend Name: Liz Dutzy Email: kalairsmom@yahoo.com Date: October 30, 2006 Time: 08:31 PM CommentsHi Brett! Arturo and I were just checking
your site for new updates. It looks like your mom has been working on adding
some new things to your site. Arturo loves all the music and the Spiderman
and Spongebob backgrounds. Kalair
is asleep or we would show her too. Turo, Tim and I
are looking forward to seeing you and your mommy on our trip to Name: Clint Cassing Email: ccassing@kc.rr.com Date: January 02, 2007 Time: 09:59 PM Comments
BUDDY--
What a trip this weekend to The Cotton Bowl!!! You were AWESOME and I had
such a great time road tripping with you down to Big D. You are such a
trooper putting up with your dad and I our abnormal
behavior when we got to Husker football games. I had such a good time just
hanging out and watching you enjoy all the things we packed into 3 days. OK
City Memorial, Grassy Nolle, Name: Tamara Silvey Email: tamara.silvey@raytownschools.org Date: January 02, 2007 Time: 10:52 PM Comments
Brett, I am
so excited to meet you and to work with you. Your teachers, mom, and Mrs. Tryan have told me how smart and excited you are to
learn. We will have lots of fun! See you soon. Name: Liz, Kalair,
Arturo and family Email: kalairsmom@yahoo.com Date: February 03, 2007 Time: 09:37 PM Comments
Hi Brett!
Thanks for coming to see us yesterday! We always love visiting with you and
your mom. Before we know it, it will be time for Kalair's
birthday party, and after that we will have to plan for our big slumber party!
:0) It sucks that something happened to your guestbook, but we will just have
to visit your site a lot so we can fill it up again! Come visit Kalair and Arturo's sites too when you get a chance. We
are always working on them. Tell your mom we said hi, and we will talk to you
guys soon! (((HUGS))) ~Liz, Kalair, and Arturo Name: Kelly Dufrene Email: guidry_megan@yahoo.com Date: February 15, 2007 Time: 06:13 PM Comments
Name: Kelly Dufrene Email: guidry_megan@yahoo.com Date: February 15, 2007 Time: 06:13 PM Comments
I think
this is very very cute Name: Greg, Renee, and Austin Ingram Email: Buneek5118@hotmail.com Date: February 17, 2007 Time: 05:29 PM Comments
We love
your mom and you Brett. Thank you for letting us read your web page. How cool
for you to have your own website. Thank you for sending us a picture of your
frog. We thought that was pretty neat. Name: Jenny Email: jenntdice@earthlink.net Date: February 20, 2007 Time: 07:17 PM Comments
Wow! Brett
you are such a handsome boy. You have gotten so big but that smile is still
the same. We hope you are doing well and being a good boy for your mom. Love
always, Jenny, Aaron, Dylan, Abby and Cameron Name: grandma Email: patsimpson'hotmail.com Date: February 26, 2007 Time: 10:19 AM Comments
Well
grandson you really have chosen good pictures of me to show... they flatter
me... love grandma xxx Name: RAENA SMITH BOITER Email: rlsboiter@yahoo.com Date: March 11, 2007 Time: 02:47 PM Comments
I HAVE A
SON DX. WITH SMA 2, AGE 17 NOW. SMA 2 HAVE A CHANCE
TO LIVE A LONG LIFE. MOST I KNOW LIVE INTO ABOUT 60. WITH NEW TECHNOLOGY AND
THE CLINICAL TRIALS ON MEDICATION, WE WILL HAVE A CURE OR AT LEAST MEDICATION
TO PROLONG THEIR LIFE EVEN LONGER. IT WILL BE IN THEIR LIFE TIME! EVERY SMA
CHILD RESPONDS DIFFERENTLY, SO YOU HAVE TO OBSERVE WHAT HE IS CAPIBLE OF
DOING AND WHAT HE REALLY ISN'T ABLE TO DO AND KEEP UP WILL ALL INFORMATION ON
SMA. IF YOUR SON CAN WALK, LET HIM WALK INSIDE OF RIDE IN A BUGGY, LET HIM
CRAWL IF HE CAN . THE MORE HE TRYS TO DO FOR HIMSELF
THE BETTER. MY SON HAS NEVER HAD PNEUMONIA LIKE OTHER SMAS,
THAT IS BECAUSE HE ISN'T OUTSIDE IN THE COLD AND I TOOK HIM OUT OF
SCHOOL IN THE THIRD GRADE TO
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