Our names are Keith and Christel Payne and on January 8th, 1999 God sent us an angel, but one month later the doctors tell us that our son had SMA and it was fatal and there was nothing we could do but just love him as much as possible.

     So we came home and loved and held him a little tighter each and everyday, as we were slowly watching him die.  How can you prepare yourself to lose your child?  You can't!  But we had so many doctors tell us that we needed to prepare ourselves for the worst.

     And before we knew it another month had past, and it was getting harder and harder for Cody to suck a bottle so we looked for three weeks before we found a doctor that would put the feeding tube in.  Most of them thought we were wasting our time. But the first time that me and Keith fed him after the feeding tube was put in he just looked up at us with the biggest smile and that was worth all the pain in the world to us.

     Cody had trouble breathing afterwards, so we had to come home with oxygen.  We were home two days when we had to go back to the hospital. The doctor told us when we went in with him that he was getting ready to die.  This was on a Sunday. Cody kept fighting to stay alive. But on Tuesday, April 20, 1999 with his dad on one side and me on the other, us holding his hands and each others we watched as our son slowly slipped away as we told him just how much we loved him. At 8:40 P.M. he took his last breath and when his heart stopped at 8:42 they pronounced him dead.

     Me and Keith sat there and held him and I cleaned him up and dressed him while we waited for the funeral home to come.  My husband Keith was with me the night that Cody was born and everyday and night right through the end when we lost him.  I honestly don't know what I would have done without him.  I want him to know just how much that I love him for being the best daddy ever and husband too.

     Our hearts go out to anyone with a child of SMA , we know your pain and suffering.  You just have to live for today because you have no promise of tomorrow.

     We want to thank you Susie for putting your heart into making this website for Cody.  He may be gone but he will never be forgotten, and how the whole world will know just how precious he was.  Thank you

                                                 KEITH AND CHRISTEL PAYNE