"I would rather have had 30 seconds of wonderful, than a lifetime of nothing special."

Hi, my name is Devon! I was born May 16, 1998 and passed away in my mother's arms on June 22, 1999.

Follow my journey, from reading all about me and my family, to my mom's thoughts and journal excerpts on living with SMA, to tons of pictures, poetry, SMA Information, and links.  And, don't forget to sign or read my guestbook! Oh, and one more thing...you have to visit my brother Sidney and sister Kaylee's websites!


Come see the PowerPoint Presentation my mommy made about me!  It will take a long time to load, and you have to have PowerPoint to see it...It SHOULD run automatically for you when you open it, with music, but again, it's a big file, so be patient.   CLICK HERE


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This site is always under construction, so please check back in every once in awhile for photo, personal, and website updates!