Read CURRENT Entries HERE


Date:
07 Jun 1999
Time:
16:08:47
 

Comments

This is Devon's first Guestbook entry! This is June 8, 1999, so this is a new feature. Please leave your name and e-mail address, and YOUR website address if you'd like as I'd love to know who has been here. If you have any ideas, thoughts, or comments, please let me know! Laura Stants


Date:
10 Jun 1999
Time:
09:15:05
 

Comments

Hi Laura:

I absolutely love your website and I think it is so terrific that you have helped all of these other families to have a webpage in one central area where all interests are shared mutually. Devon is a sweetheart. I think it is very important that we tell the world about these angels. They are very important and they have some many capabilities and so very much love to give. I have learned so much from my godson. Things I never imagined from a 1 year old child. He is so very precious to me. I thank God that I have him in my life. Blessings to all of you! Thanks again for your kindness to all! Love, Patty Kloster (Cole Fiedler's Godmother)


Date:
11 Jun 1999
Time:
01:12:30
 

Comments

Hi! Devon, Laurie and Steve, It's been so long since I've seen all of you. I have really enjoyed paging thru the website and catching up on the news and pictures I haven't yet seen. Love to your family! Mindi Brandt


Date:
14 Jun 1999
Time:
23:41:35
 

Comments

Devon, I just want you to know you are in my prayers today. I know you are pretty sick right now and Mom and Dad are worried. Hang in there! You're a fighter and you can beat this nasty bug! We send our thoughts and prayers and Erinne sends hugs to her birthday buddy! XOXOX Suzanne Williams


Date:
15 Jun 1999
Time:
09:42:03
 

Comments

Great site!! Hope to call you soon!! Devon is so sweet. Lot's of prayers to you!! Remember Dr. Bach. If I can help please call 614 798-1711. Annette Reed


Date:
15 Jun 1999
Time:
21:47:30
 

Comments

Hello Devon, Laura & Family....I know that Devon is in the hospital right now. A lot of us are very worried about him and know somewhat of what you are going through. Please know that I am praying for you and keeping you in my thoughts for a fast recovery. Devon you just keep on fighting. I do know that you are a strong boy. My Best to you and LOTS and LOTS of Well Wishes, Patty Kloster


Date:
16 Jun 1999
Time:
10:42:49
 

Comments

What a wonderful website!! I love reading the stories of strength and courage of people and their families dealing with SMA. Our nephew died of SMA almost 6 months ago. We love and miss our little SMA angel.

Deno & Camille Sereni


Date:
17 Jun 1999
Time:
09:03:40
 

Comments

My name is Darla, I'm a nurse who is helping with a very special boy with sma 1 as well. I've very much enjoyed reading all about your family. You all have and will endure so much. MY prayers and thoughts will be with your family. and I look forward to seeing how you all are doing. Be proud of yourselves for it sounds like you are very strong people. and what ever decisions you have to make will be the right ones for you and your son. God Bless you all A Friend


Date:
18 Jun 1999
Time:
09:14:30
 

Comments

Your web sit is so heart touching. I work with an uncle of one of these darling little angels, and want you to know that Devon is my prayers, as well as his parents.


Date:
18 Jun 1999
Time:
12:24:20
 

Comments

Laura and Steve, It is so nice to see the wonderful pictures of Devon, and learn so much about SMA. The support you have shared with others is overwhelming. I cannot wait to meet you, and do hope your son as well. My prayers are with you and your family at this time. Cindy Petty


Date:
19 Jun 1999
Time:
21:53:04
 

Comments

Today is June 19 and we have thought of you and your family. We are so very concerned about Devon and want you to know that our prayers are with you very much.

Valerie, Jeff, Kelsie, and Haley Mitchell


Date:
20 Jun 1999
Time:
15:57:55
 

Comments

Just wanted to let you know we are thinking of you all and praying for Devon. Please give Devon a little hug from Cole. Hang in there and be strong. Dori Fiedler


Date:
21 Jun 1999
Time:
21:33:00
 

Comments

Thinking of you still. Many prayers have gone your way today. Valerie, Jeff, Kelsie, and Haley Mitchell


Date:
22 Jun 1999
Time:
00:09:44
 

Comments

Just to let you know I am still thinking about all of you and praying. Hang in there and remember miracles do happen. Children with SMA have a strong will. Patty Kloster


Date:
23 Jun 1999
Time:
09:10:03
 

Comments

Hello, Devon, Laura and Steve. Just needed to let you know that we're all thinking about you A LOT! You are always in our prayers. Sue and family, and all our nurses.


Date:
23 Jun 1999
Time:
20:02:43
 

Comments

Bless you Devon. We will miss reading all about you but now you are playing with my angel grandson. Tell him I love him and miss him too.


Date:
23 Jun 1999
Time:
20:20:26
 

Comments

Run Devon, run.. our thoughts are with your mommy and daddy. Laura, strength to you and yours in the coming months. I don't often cry at my desk at work, but feel like I know you all. Take care, Saskia, Chris and James (Australia)


Date:
23 Jun 1999
Time:
21:24:05
 

Comments

Laura, Steve & Family,

Devon....I truly miss you. I know that we never met personally, but I feel that I know you and your mom. You are a precious boy. I hope you are happy. Please watch over all of us. Your strength will bring all of us strength. God Bless You, Devon. Laura ... Please take care of yourself. Know that you are in my thoughts and prayers. Be strong, but let all of us help you in any way that any of us can. You are a wonderful person and mother. You have become a good friend to so many people, including me. I'm always here. Never hesitate. Devon will be watching over you now. He was so lucky to have you as a mommy. My Sympathy and Blessing to You and your Family. Patty Kloster


Date:
23 Jun 1999
Time:
23:28:02
 

Comments

Dear sweet Devon.....fly with the angels now....run and jump and laugh and wiggle and enjoy your New Life that is free from pain and sadness. We will miss you so terribly...but we know you have a special place in Heaven now. ***** Steve and Laura....we are so very sad for you...no words we can ever say will take away your pain. We hold you up in prayer and ask God to give you strength, comfort, courage, peace, and joy...knowing that Devon's spirit is free and his body has been made whole. Love and prayers, Suzanne, Jim, Claire, Kevin and ErinneRose Williams


Date:
23 Jun 1999
Time:
23:54:26
 

Comments

Devon, WE LOVE YOU. David and Lisa Sereni


Date:
24 Jun 1999
Time:
21:20:40
 

Comments

laura and steve - what a beautiful site you have made - i am at work now reading this - it moved me so much - again i am so sorry of devons passing - but like i said before im sure my brit-leigh as well as the other angels have embraced him - (especially my brit-leigh - shes a flirt !!!!) he is truly a beautiful boy and so incredibly lucky to have such loving and caring parents - may GOD continue to give you the strength you need to get through this most difficult and heart aching journey my best to you both and to your families jenn PM121597@aol.com


Date:
25 Jun 1999
Time:
15:12:50
 

Comments

My name is Nina Connoy. We lost our precious little angel Kalani (means "heavenly one" in Hawaiian) on May 1st to SMA I. I just want to send my prayers to you and your entire family. For words can not really express what I really want to say to you. Just know your have an extended family that cares for you both. Our angels are now standing, holding they're heads up high and talking to one another. They are also looking down upon us and giving us strength, for they will forever be with us. Love and Hugs to the Stants Family.


Date:
26 Jun 1999
Time:
02:31:45
 

Comments

Laura and Steve, my thoughts and prayers are with you and your families. May God keep you in His care, as He is surely holding Devon in His arms.


Date:
26 Jun 1999
Time:
17:46:27
 

Comments

To Devon- My family and I were just getting to know you, and your passing has deeply saddened us. I believe i cried for you and your family for hours. Devon, your an angel now. Fly and be free with the other SMA angels. Remember to look down and keep an eye on mom and dad, they need you now more than ever. To Laura and Steve, I don't know what to say because I know that anything I say can't help with the pain you are dealing with. You are in our thoughts and prayers. Love, Dawn, Eddie, and Leanna Moore


Date:
26 Jun 1999
Time:
22:43:20
 

Comments

We miss you so already. We know that God will hold you close, and keep you until we all can see you again in heaven. Prayers to you Steve and Laura, and know that we will be here for you whenever or whatever you need. Much love and concern to you. Greg, Michaele and Noah Aldridge (Friends of the family)


Date:
29 Jun 1999
Time:
14:59:17
 

Comments

To angel Devon,

This is your aunt Kim. I just wanted to let you know that I was thinking of you today. We all miss you dearly. I love you little one. Tell Jesus to give you a big kiss for me.


Date:
02 Jul 1999
Time:
17:07:30
 

Comments

Devon, hi little guy I miss you so much and I never even met you, but your mommy shared you with the world her words she spoke of you made the world adore you. You were a very brave little man who will be missed greatly you now join my daughter Marissa, I'm sure she welcomed you with her wonderful smile you two play now run and jump. We love you baby. Love Sandy


Date:
05 Jul 1999
Time:
22:26:10
 

Comments

Hi Laura and Steve,

We are just thinking of you and your family. I am sure that by now, Bridget and all the other little angels have already showed Devon all the ropes! You are both in our prayers!! 0:-) Talk to you soon! Joanne and Rob Forstall


Date:
06 Jul 1999
Time:
18:38:51
 

Comments

i just wanted you to know that you have been in my thoughts constantly and that i hope that you and your families are doing well - im sure that devon and my daughter brit-leigh are playing ever so sweetly with the other angels jenn griffin


Date:
22 Jul 1999
Time:
20:40:53
 

Comments

Dear Devon,

Hi big brown eyed little boy. I know that you are watching over all of us and that you are in a better place now. That does help, but there are so many people that miss you here, especially your mommy and daddy. Even those of us (and there are a lot of us) who never met you in person, but you became and still are a very important part of our lives, one part that will never be forgotten.

It's been one month today since all of us received the news of your leaving us here and moving on. It was such a shock and I remember that day so well. It was so sad...I was so sure you'd be okay and be home with mommy & daddy in a few days. It just wasn't so. There are so many things so many times that we find so hard to understand. Please watch over your mommy & daddy.

Enjoy your new home Devon. I think about you often. I know it is a lot to ask because you are watching over so many people already, but would you please watch over my godson, Cole. He too means the world to so many of us.

Love & Kisses, Patty Kloster


Date:
30 Jul 1999
Time:
22:11:59
 

Comments

LAURA, I AM EIGHT YEARS OLD YOU MADE MY SISTERS WEB PAGE HER NAME IS MARISSA ROSE GREEN I FEEL SO BAD OF THE OF THE LOS YOUR GURJUS SON I DEEPLY FEEL YOUR PAIN. MARISSA'S WEB PAGE LOOK'S GREAT!!!!!!! I LOVE IT. HANG IN THERE YOUR DOING GREAT. I LOVE DEVIN'S WEB PAGE TO IT IS GREAT!!!!!!!! LOVE, SANDY GREENS CHILD . ~~~SHELBY GREEN~~~ :) :)


Date:
06 Aug 1999
Time:
23:46:22
 

Comments

I am thinking about you today, Devon. I miss hearing your mom's stories about the silly games you liked to play. I cried a few tears too. Even though we never met, your mom made me feel as if I had met you. We miss you. We ache for your mom and dad. Please watch over them. Know that we will NEVER forget you. Love, Suzanne and Erinne Williams


Date:
07 Aug 1999
Time:
22:52:12
 

Comments

Laura, just thought I'd drop in and see your beautiful baby on this great page. You are in our prayers. I can just see Devon running and jumping in heaven now, happy and carefree. God bless you and yours! Love, Crista & Rick Bairett


Date:
09 Aug 1999
Time:
00:07:11
 

Comments

Hi Laura. Just wanted to visit Devon's site again! It's wonderful and as I have told you so many times, you are amazing.

Sincerely, Brandi Schmidt (mother to Kourtney, SMA1)


Date:
19 Aug 1999
Time:
02:47:12
 

Comments

I just wanted to say this is beautiful! My 6 year old niece is waiting in heaven for all of us she passed away last Aug 4/98 we miss her dearly! Thank you so much for sharing


Date:
25 Aug 1999
Time:
01:22:37
 

Comments

Hi Laura,

My deepest sympathy goes out to you and Steve. Your son Devon and my son "Samir Dahouk" are gone now but their memories will remain evermore among us. This website will memorialize them; who knows maybe forever. I haven't logged on for 3-4 months now so I was shocked reading through your site. We know that SMA is a killer disease, but, as a parent we always pray and hope for a miracle. Stay strong and remember the following words from Shakespeare: "Don't let your grief be measured by his worth, for then your sorrow has no end." I hope you find comfort in these words. Best regards and may God be with you.

Abbas adahouk@aol.com


Date:
01 Sep 1999
Time:
23:05:22
 

Comments

Steve and Laurie, I finally found Devon's web page. And I have to say, Laurie you did a wonderful job. There is not one day that goes by that I don't think about and pray for you guys. The Lord is with you and may He strengthen you with each passing day. The Lord, Devon and Sidney are all looking down upon you and they are giving you the strength that you need to make it through each passing day. You are in all of our thoughts and prayers. In Christ, Amy


Date:
10 Sep 1999
Time:
21:31:57
 

Comments

Dearest Laura and Steve, I wish there was some way to describe the feelings that we have for you and your family right now but I can't seem to find the words at the moment. There is nothing that I can say to ease the pain of such an event in your lives except to say that we all love you very much. I have never experienced the loss of a child but I just read your thoughts on your websight and I feel as if I had. We will all miss Devon very much, but he is watching over our every move and helping us on our way to see him someday. I know that comfort does not come in words but time helps us all, I know because I lost my brother before I got to know him and although not a day goes by without thinking of him, I know that I will see him someday and all will fall in place.

May God be with us all, We love you, CB,Shannon & family


Date:
18 Sep 1999
Time:
10:48:52
 

Comments

Laura,

This is such a beautiful tribute to both your children. I cried along with you as I read it. I think the thoughts you shared will be a great help to others along the road. God Bless you and I love you.

Georgia


Date:
20 Sep 1999
Time:
08:47:11
 

Comments

Laura - My thoughts are with you and your husband - Diana (Van Auken)Gamble


Name:
Steve
Email:
steve@camellot.com
Date:
06 Oct 1999
Time:
00:29:07

Comments

I love you buddy! Can't wait to see you again! Love, Daddy


Name:
Joanne
Email:
Angel30398@aol.com
Date:
10 Oct 1999
Time:
16:21:38

Comments

I just thought I would check out Our SMA Angels sight today. It has been 6 and 1/2 months now that Bridget went to meet those angels up above. We hope you guys are doing ok. We love all the photos on your sights. We think of you often. Love...Joanne and Rob Forstall


Name:
John & Lilian Pedley
Email:
j&l@bousta.shetland.co.uk
Date:
11 Oct 1999
Time:
05:57:00

Comments

A very tender story present in a beautiful and touching way!

As we have been affected very recently by our son-in-law's niece having at three months old been diagnosed with Type 1 SMA we appreciate your website.

Thanks John & Lilian


Name:
mari Lynn Ventimiglia
Email:
rmvent@ameritech.net
Date:
11 Oct 1999
Time:
22:20:20

Comments

Dear Laura. Your website is very, very beautiful. A very nice tribute to your babies. mari Lynn Ventimiglia


Name:
Pattie
Email:
nativetan1@worldnet.att.net
Date:
12 Oct 1999
Time:
16:02:18

Comments

This website is absolutely the greatest thing I have ever encountered. Paying tribute to our beloved angels is so important. Thank you.


Name:
Stephanie Price
Email:
 
Date:
13 Oct 1999
Time:
13:31:32

Comments

Dear Devon:

You are such a precious little boy. I loved you so much and can not believe it was really your time to go. You were so strong and so brave. Your mommy and daddy love you very much and I know you watch over all of us each day especially your little brother Sidney. I miss you and love you even though I never knew you in person. I can not wait to meet you and your brother some day and all the other little angels who are with you now.


Name:
Karen Hartnett
Email:
hartnettk@ttnus.com
Date:
14 Oct 1999
Time:
17:29:14

Comments

Laura... I don't know what to say. Your son was so beautiful. I visited Sidney's page as well. You have been through so much and you ARE strong! I know the times you find yourself in the shower crying out are difficult...but you offer total strength to other families in crisis like mine. Brandi draws strength from you and you have comforted me more than once. I think that you are an amazing person to be able to share so much of yourself and your experiences. Thank you. Karen


Name:
Suzanne Williams
Email:
ErinnesMom@aol.com
Date:
16 Oct 1999
Time:
23:42:37

Comments

Dear sweet Devon.....On the 16th of every month I can't help but stop to think about you....today you would be 17 months old. I know you are in a much Better Place and are with your little brother, Sidney. Those of us still here can't help but to miss you, though. Devon and Sidney, you have two wonderful, strong parents. I know God chose them to be special parents to two important angels. Laura, I think of you often, especially today. My arms ache for you. You have set up a beautiful lasting memory to and of your boys. You are a terrific example to all of us still dealing with SMA. God Bless you and Steve. Hugs from Erinne Rose and me.


Name:
Zoe Sanderson
Email:
zoechaos@tesco.net
Date:
23 Oct 1999
Time:
11:36:11

Comments

Dear Lady. I came here as soon as I saw your entry in my book. This is a very special and very brave site, it must give a lot of support to others who have this dreadful genetic problem. Be brave and be happy, you have two beautiful children and they rest just around the corner. Beyond that I wish you both blue skies. Regards Zoechaos


Name:
BONNIE BURNS
Email:
DWYER-16@WEBTV.NET
Date:
26 Oct 1999
Time:
09:04:28

Comments

GOD BLESS ALL OF YOU. MY PRAYERS AND LOVE ARE WITH YOU.


Name:
Karen Miller
Email:
Date:
27 Oct 1999
Time:
18:22:50

Comments

You are so precious, little boy. I can't imagine what your family has gone through. I never even knew you in person yet I miss you myself.


Name:
Kriss & Danica
Email:
sophiedog2@yahoo.com
Date:
28 Nov 1999
Time:
13:00:38

Comments

This is the first time we've seen Devon. He is a beautiful little guy. Our thoughts have been with you guys. I hope Devon and Ocean aren't causing too much trouble where ever they are!!! Take care.


Name:
Susan Murdoch
Email:
cheesehostess@hotmail.com
Date:
13 Dec 1999
Time:
22:40:14

Comments

Your website is beautiful. I know your little angels are proud of you. You will meet with them again. Blessings, Susan and Cameron


Name:
Paula
Email:
Date:
10 Jan 2000
Time:
19:24:05

Comments

Thank you for sharing. The site is wonderful and your children are beautiful.


Name:
Becky Gray
Email:
BGray34611@juno.com
Date:
27 Jan 2000
Time:
13:48:22

Comments

I visited your site more out of curiosity. I have a sister-in-law who was diagnosed with SMA at age 10, but is still alive at age 35. They say she has Type III and is not even a typical Type III. She does not walk, her right side is much weaker than he left side, is a beautiful artist and very creative.


Name:
Mark Wiseman
Email:
markwiseman@netlienuk.net
Date:
31 Jan 2000
Time:
17:42:50

Comments

Just been browsing through Devon and Sidney's sites again. Very moving story, the site really does force out some deeper thoughts - Devon's photo gallery and accompanying text paints a beautiful picture of the perfect little boy. Love Mark


Name:
Betty Carr
Email:
BCARR7925@aol.com
Date:
19 Mar 2000
Time:
11:33:03

Comments

I am Michelle Justice's Great Grandmother (Betty Carr) but I am sure she has told you about me. Your Mother is a very special person and friend to all she meets, you would be very proud of her.


Name:
Betty Carr
Email:
BCARR7925@AOL.COM
Date:
22 Mar 2000
Time:
21:25:26

Comments

Devon, I hope you don't mind if I put a note here for your little brother Sidney. He like you were loved by parents will never forget that for a while they two of Gods Angels, Sidney never got to look into their eyes and see the love they had not only for him but also for you. Someday you will all be together but till then watch over little Sidney. I am Michelle's Great Grandmother but everyone called me Nany. I will meet you both one day. Your parents are really great people.


Name:
jenn
Email:
pm121597@aol.com
Date:
10 Apr 2000
Time:
22:54:10

Comments

once again i am visiting and crying - what a sweet sweet face - those eyes - oh devon you are a handsome little man - i know that you and brittany are running and playing with all of the other angels -


Name:
Sue, Gene and Casey
Email:
Mommytocasey@aol.com
Date:
16 May 2000
Time:
21:22:26

Comments

Dear Devon, We hope you are having a BIG party in heaven for your 2nd birthday today. You are missed on Earth by so many people, those who knew you in person and those who knew you thru cyberspace. Thank you for being our special guardian angel. Happy Birthday, Sweet Angel Boy!


Name:
Suzanne Williams
Email:
ErinnesMom@aol.com
Date:
17 May 2000
Time:
00:12:08

Comments

HAPPY BIRTHDAY dear sweet angel Devon! You have been in our thoughts today. Erinne sends her love and birthday kisses. She got some birthday balloons today that she was going to share with you, and send them up to Heaven, but she has pneumonia again, and since it rained and was cold, she didn't! We will be sending them soon, so watch for them! I know you are having a wonderful time Up There, with all of your new friends. I know too, that your Mommy and Daddy are missing you very much. We send you our love, birthday boy! Hugs and kisses, Erinne and Suzanne Williams


Name:
Kindar
Email:
kindar51@hotmail.com
Date:
27 May 2000
Time:
10:03:05

Comments

My heart goes out to you for your loses. May God bless you.


Name:
Sue O'Neill
Email:
mommytocasey@aol.com
Date:
22 Jun 2000
Time:
06:19:57

Comments

Hi Devon Sweetie, Just wanted to let you know that we've been thinking about you on your Angel Day. I'm sure your Mommy and Daddy miss you so much. They have been working very hard getting the word out about SMA and getting people to commit to putting lots of money into research. Kisses from all of the O'Neills and Casey's nurses!


Name:
Peg Bailey
Email:
Sheggy@yahoo.com
Date:
22 Jun 2000
Time:
23:09:20

Comments

All my love to all of you! Taylor's best bud, Peg


Name:
heather
Email:
heather_aek@hotmail.com
Date:
18 Sep 2000
Time:
19:09:52

Comments

i am so sorry for the loss of your two babies and what a moving tribute you have to those two little angels, God bless you, they will never be forgotten i am sure, from a mother in Scotland


Name:
Meredith
Email:
angellady@neo.rr.com
Date:
19 Sep 2000
Time:
00:19:11

Comments

So very sorry to read about the loss of your sons, Devon was a cute little fellow. You have done a wonderful job with their web site and the pictures are just beautiful. God Bless. Your friend in Jesus.


Name:
debbie welch
Email:
STACKMONEY@mexicomo.net
Date:
18 Oct 2000
Time:
22:25:06

Comments

God bless you. your in my prayers.


Name:
Betsey Riggs
Email:
jcr104@hotmail.com
Date:
28 Nov 2000
Time:
00:20:25

Comments

Thanks for sharing. I hope I can contribute as much as you have at some point in my life-for Conner and Devon and all the other precious angels. Thanks for being such a good mommy because it helps the others to be good mommies, too!


Name:
Danijela
Email:
zvezda71@bankerinter.net
Date:
18 Dec 2000
Time:
17:08:05

Comments

Laura,

Devon has so lovely eyes. Such eyes have my son's Dimitrije and Nikola, too. They were identical twins and had SMA, too. They lived only eight months. My children are angels but also the bravest people I ever knew.


Name:
deborah martella
Email:
taz1003@aol.com
Date:
20 Dec 2000
Time:
17:58:32

Comments

God bless all of you. all are such beautiful angels.


Name:
Isabel Brandao
Email:
isabelbr@fedsure.co.za
Date:
06 Feb 2001
Time:
07:58:17

Comments

I really enjoyed your website - I must admit that reading through Laura's journal made me think about my little angel which went to heaven on the 2nd August (also SMA type I). Thank you for sharing your thoughts and photos with us.

Congratulations on your daughter.

Best wishes always

Isabel


Name:
Michaele Aldridge
Email:
michaele@glenndale.net
Date:
08 Feb 2001
Time:
15:30:23

Comments

Just welcoming your new angel girl Kaylee and remembering your angel boys Devon and Sidney. Thank God He puts friends together to share all of our joys and sorrows. Michaele, Greg, Noah and Grace


Name:
Stephanie Wilson
Email:
LuLuPisces@webtv.net
Date:
07 Mar 2001
Time:
12:21:49

Comments

Laura and Devon, What a beautiful sight. To know that my sweet angel is in Heaven with all of these angels is a little comforting. Malia became an angel on 11-28-2000. We miss her very much but I know Devon was there waiting for her with open arms. It's a good thing she has so many angels with her to show her the ropes. But I still wish she was an angel here on earth. Laura congrats on your new baby, she is so cute. God has blessed you so many times, and He will continue to do so. Love, Stephanie


Name:
Danijela
Email:
danijelaz@yahoo.com
Date:
07 Mar 2001
Time:
15:54:00

Comments

Laura,

Sorry I didn't answer to your letter (danijelaz@bankerinter.net) and tell you more about my boys but it is still too hard for me. I'm so glad you get a little girl. I wish her all happiness of the world.


Name:
Barbara Wolfe
Email:
wolfepac@home.com
Date:
16 Mar 2001
Time:
21:02:24

Comments

I too had a child that had Werdnig-Hoffmann's disease, Johnny would have been 20 tomorrow. I know the pain of watching your child die slowing and knowing there is nothing you can do but love him. He is with God, but I still miss him. He was 10 mos and 2 days old when he passed.


Name:
Suzanne Hagan, LPN
Email:
cntryangl94
Date:
17 Mar 2001
Time:
03:16:29

Comments

Thank you for reminding me that we ALL need to appreciate each and every precious moment with our children....they are truly gifts from God. God Bless you.......


Name:
Liz Dutzy
Email:
kalairsmom@webtv.net
Date:
02 May 2001
Time:
20:46:10

Comments

Hi Laura, Thank you for sharing Devon's story. No words can express what I would like to say...I wish no parent ever had to stay on earth longer than their precious child, and I don't always understand whey things are the way they are. But I know that Devon's life was according to God's plan for him and He must think pretty highly of you and Steve for giving you the blessings and challenges that you have experienced as parents. I am so thrilled that beautiful Kaylee is so healthy, and I know that she is blessed not only to have two wonderful parents, but to have two big brothers watching over her from heaven. Take care! Love, Liz PS. (Kalair sends big hugs! I will have to send you more recent pics soon since she may be all grown up before I get any kind of website organized. (-:)


Name:
Eileen Cappels, RN
Email:
ecappels@yahoo.com
Date:
15 May 2001
Time:
20:39:44

Comments

thanks so much for your story. it really helps us in healthcare to hear how our world affects families. i have always listened to parents and tried to involve them in the care of their kids and in the decisions to be made and get very angry with colleagues who don't. i know that your Devon had the right parents and i wish you the best in your recovery from his loss. {: Eileen Cappels


Name:
Wanda Dodaro
Email:
wdodaro@yahoo.com
Date:
16 May 2001
Time:
15:59:58

Comments

Happy 3rd Birthday Devon, I know you are missed so much by your mommy and daddy and new baby sister. We have enjoyed your web page so much and we thank your mommy for sharing all of her memories of you with us. Love, Jim, Wanda & Samantha Dodaro


Name:
Suzanne Williams
Email:
ErinnesMom@aol.com
Date:
16 May 2001
Time:
19:54:54

Comments

HAPPY BIRTHDAY, Sweet Angel Devon!! Know that we are thinking about you today. We can't celebrate Erinne's 4th birthday (which is also today) without thinking of you, birthday buddy! We send our love and hugs up to you! Love, Erinne Rose and Mom Suzanne.


Name:
Betsey Riggs
Email:
jcr104@hotmail.com
Date:
16 May 2001
Time:
22:32:37

Comments

Conner says Happy Birthday to you! We think of you and your family everyday. Sincerely, Betsey Riggs and family


Name:
DUANE KELLY
Email:
mortyk@msn.com
Date:
12 Jun 2001
Time:
15:43:03

Comments

glad i got to know you. you made my life a little better. thanks


Name:
Betsey Riggs
Email:
Date:
22 Jun 2001
Time:
15:49:44

Comments

Thinking of you today. Sincerely, Betsey, Conner and family


Name:
Jo
Email:
ok_sweetie_01@yahoo.com
Date:
05 Jul 2001
Time:
01:14:44

Comments

I think ur son was a DOLL!!!! they say god takes the best first so i guess ur baby was 1 of the best. I can understand how u felt when u learned he had sma cause even though i never met him ur little boy stole my heart


Name:
Brittany Motes
Email:
Dixiechick15Bm
Date:
05 Jul 2001
Time:
21:11:27

Comments

You are such a cute boy. One of my sisters close friends baby had the same thing her name was Megan Owens. Im sorry about your son.


Name:
Heather
Email:
lael.heather@verizon.com
Date:
11 Jul 2001
Time:
12:37:56

Comments

Thank you for sharing your story and your diary. My husband and I underwent extensive treatments for infertility. I finally became pregnant with twins, and at 7 weeks along began bleeding heavily. From that time on, I was on bed rest and constantly worrying about them. I could really relate to your worries during your pregnancy. The twins were born at 31 1/2 weeks along. We were blessed that they never needed respirators and quickly became strong enough to come home. Today, they are doing great. Marshall weighs almost 24 pounds at 9 1/2 months old, and Micaela weighs about 17 lbs. She was the smaller of the two at birth and had more complications, and she has to go in for physical therapy to help develop her muscles. I still worry about something happening to take them away.

Your story really inspires me. As you said in your diary, I would never want to go through what you went through, but you are an inspiration of strength, an example that no matter what happens, life continues, and God is always there.

Thank you for sharing your story.

Heather Kennewick, Washington


Name:
Goldy
Email:
PunkieLu@aol.com
Date:
18 Jul 2001
Time:
13:45:27

Comments

God Bless you and your family. My heart was breaking as I read your story. It made me realize how lucky I am to have 3 healthy children. I don't know how I found your website.....I hope his memories stay with you, with all of us, forever. A child is so innocent it is hard to understand why things like that happen to them. You made the best of it and did what was right for your son.


Name:
Sarah Bristol
Email:
jsb8824@yahoo.com
Date:
30 Jul 2001
Time:
16:49:20

Comments

Dear Laura-

Devon was the sweetest boy! You can tell that by his smile, he looks like someone who would have been getting into EVERYTHING, given the chance.

Michaele told me about your site and it is a wonderful tribute. What a beautiful way to share your story and to tell the world about your children. They will never be forgotten!

Thank you for sharing.

Sarah and Emily (from the Weds Moms class)


Name:
Thomas + Rosemary Riley
Email:
tomt1945@msn.com
Date:
31 Jul 2001
Time:
13:17:04

Comments

you guys are in our prayers all ways


Name:
Debbie Mullins
Email:
Date:
15 Aug 2001
Time:
18:28:58

Comments

one of the most touching stories I have ever read. As I read I cried. I felt very sad, but also felt a sense of peace. And although I still have my Kody, I felt for the first time I felt as though I'm not alone, that for the first time if someone said "I know how you feel" {which they have many times}, I wouldn't feel like saying "no, you don't".


Name:
Kevin & Kim Carpenter
Email:
xrayeng@erols.com
Date:
25 Aug 2001
Time:
10:24:13

Comments

Our son's name is also Devon.

We found your web site by accident and wanted to offer our encouragement.


Name:
emily
Email:
johnson1229@home.com
Date:
02 Sep 2001
Time:
16:25:10

Comments

i know exactly what you and your husband went through. my nephew, Jordon, had the same thing. he was 8 months old when he passed away, though he will always be with us. i was also newly pregnant at the time, also with terrible morning sickness. and another thing, my son's name is devin. good luck to you and your family, and god bless you all.

sincerely,
emily j.


Name:
Melinda Preston
Email:
preston.melinda@mayo.edu
Date:
06 Sep 2001
Time:
12:04:53

Comments

Hi, I didn't get to spend enough time on the website but came across it while looking for some books to help a young mother talk about death with her 4 year old. His grandfather had died and they were both having a very tough time with the loss. Thank you for sharing the life and wonderful thoughts about your child and the experiences you had. I hope to be able to go back to the site and read more. Melinda


Name:
Melissa
Email:
palmcl@net56.net
Date:
18 Sep 2001
Time:
01:12:37

Comments

Devon - your story has moved me immensely. You were truly an angel while you were here as surely as you are one in heaven, along with your little brother. I believe you held on to that Cross because God was showing you the way to His home. I weep for your Mommy - having to let you go. I weep for you Daddy also. I know you are in a better place but I can't help but wish somehow you were here with your family. Sending kisses to heaven for you.. Melissa (and Luke)


Name:
Sheila Graziano
Email:
Len_Graziano@msn.com
Date:
28 Sep 2001
Time:
20:21:55

Comments

You are so blessed to have such beautiful children. I wish you much luck. I am the aunt of a nephew who was just diagnosed over the past two weeks with SMA type I. He is almost 5 months old and his name is Alec. It has been a tough two weeks for his mom and dad and all of us. But he is beautiful and happy and smiles a lot. And we are going to love him, enjoy him and do all that we can to keep him happy and comfortable and healthy.


Name:
Ginger Akers
Email:
TheAkers@mybluelight.com
Date:
01 Oct 2001
Time:
22:32:00

Comments

We're going to have testing on Thursday to see if our daughter, Brooke, has SMA II. She's 14 months old. We've been emotionally drained since Friday, which is when they told us that that is what they think she has.


Name:
susie payne
Email:
susieq@dvdol.com
Date:
08 Oct 2001
Time:
01:46:31

Comments

laura, i just realized that this is your son, i have been to the sma angels webpage many times and i just now realized it. i have been sitting here for an hour reading everything , it is beautiful and you had a very beautiful son and you are so brave to keep working with all the sma babies and creating their webpage, i know this brings back a lot of memories for you working with these angels every day. you are a strong woman and a very special person and i am sure glad that i emailed you the first time . good night susie


Name:
Uncle Shad & Aunt Leota
Email:
shad@intercorp.com
Date:
10 Oct 2001
Time:
14:12:03

Comments

Devon, God Loved you so much that he took you Home to Live with Him. We Love You, too.


Name:
Cathy O'Quinn
Email:
missyo@dvdol.com
Date:
12 Oct 2001
Time:
22:41:46

Comments

Laura, My name is Cathy O'Quinn, I am Cody Lee Payne's aunt. Your son was beautiful, and your web page is too. I know him and Cody are in heaven playing with each other right now. He was like Cody smiling all the time but you know what I think they knew they would be seeing God soon that is why they were never sad. God Bless You, Cathy


Name:
Marsha A. Larsen
Email:
Marsha511@msn.com
Date:
23 Oct 2001
Time:
13:47:29

Comments

I just read your beautiful story and was so touched by it. Devon was and is a very beautiful little boy. My heart was breaking through most of Devon's story. I have to admire both of you as parents for what you went through. I am so glad that your religion, like mine believes in life after death. I know for a fact that you will someday be reunited with your darling baby son Devon and your other angel baby, Sidney. I also know that both boys are safe and healthy and happy in Heaven, waiting for the day when they can be reunited with their mommy and daddy and sweet baby sister. My thoughts and prayers are with you all. May God Bless You. Marsha A. Larsen Wellsville, Utah


Name:
Deb
Email:
cak@vaxxine.com
Date:
03 Jan 2002
Time:
15:09:04

Comments

Our second daughter was born on June 5, 1987, and was diagnosed with Werdnig Hoffman disease on December 5, 1987. She passed away January 19, 1988. I know what you've been through! We had Colleen for 7 1/2 short months and everyone commented on her beautiful blue eyes. We donated them upon her death and now 2 other people can see because she lived!


Name:
Jacqie Hoover
Email:
jacqiehoover@hotmail.com
Date:
23 Jan 2002
Time:
12:05:24

Comments

Devon is very cute. I'm sorry for your loss. You are a very strong familiy.


Name:
Leola Johnson
Email:
Leolaj85
Date:
26 Jan 2002
Time:
13:38:16

Comments

Laurie, We enjoyed reading all about Devin. You ought to make this into a book! Leola


Name:
Edwina Forcier
Email:
dweeness@yahoo.com
Date:
01 Feb 2002
Time:
02:15:34

Comments

I found you by searching for the phrase "worst mother in the whole world", which is how I have been feeling lately, and your site was the first one of six. I thought I would see why you had felt that way and have been in your site for over an hour now.

I didn't think I would cry as your warning suggested, but of course I did. Turned to smiles looking at Kaylee's pictures and videos.

Your story definitely just turned my life around, I want to do whatever it takes to learn how to be the "best mom in the whole world". It is so difficult to be a single mom of two kids with Tourette's Syndrome. Their behaviors have daily found me yelling at them, and then crying in frustration as I try to hide in the bathroom so as to not face the destruction of my house yet.

Oh how beautiful your children's smiles. I wish you the best.


Name:
Christine Penna
Email:
DDHoney615@aol.com
Date:
04 Feb 2002
Time:
10:41:49

Comments

I happened to stumble upon this website. I had NEVER heard of "Sma" prior to today. I have a child dx`d with High functioning autism, So I am aware of the struggle with a special needs child, BUT Devon Is the REAL hero! What a special Lil guy he was. I've shed many tears today, But also smiles at his beautiful pics. Thank you so very much for making me aware of Sma. I don't know what else to say except....God Bless You and your family. Sincerely, Christine


Name:
Grandpa Dick
Email:
bugzysllc@hotmail.com
Date:
09 Feb 2002
Time:
12:24:10

Comments

I am known as grandpa Dick. My wife sent you and email about our granddaughter Maci who has SMA. Your son was very beautiful and the Web site is Awesome, brought tears to my eyes.

God Bless you all Grandpa Dick


Name:
Miranda King
Email:
kinghobie@yahoo.com
Date:
11 Feb 2002
Time:
22:40:28

Comments

Thank You for sharing your story. It has really opened my eyes at how quickly life can change. I had my son January 19, 2001, I am on the "january2001" ivillage board. May god watch over all of us.


Name:
jamie
Email:
Date:
24 Feb 2002
Time:
06:59:13 AM -0500

Comments

What a wonderful tribute to your angel! He is adorable! I'm so sorry you lost him! I am a surviving Mom also, so I pray for God's peace for you and yours. Thank you for sharing your angels with us!


Name:
Jamie Hall
Email:
jtfisher4@yahoo.com
Date:
01 Mar 2002
Time:
03:39:41 PM -0500

Comments

I loved your sight.And yes it was a long story but I read it all and got very caught up in it.I was crying by the 5th line.I wish you and ur family all the love I can possibly give through an e mail.


Name:
Pascale Rossi
Email:
a.janssen@sympatico.ca
Date:
27 Mar 2002
Time:
11:23:47 AM -0500

Comments

Hi! What a courage... I would like to know how you are doing right now. My name is Pascale and I'm 25 years old. I gave birth to a wonderful little boy on November 25, 2001. On February, a neurologist diagnosed Anthony of SMA Type I. We are having big trouble accepting this. It's like a hammer on our heads. Reading your story broke my heart.


Name:
Kelly Y.
Email:
kryoung69@yahoo.com
Date:
02 Apr 2002
Time:
10:09:24 AM -0500

Comments

What a tresure you had for a son. Thanks for sharing your story with me. My hugs to you and your family.


Name:
Jennifer
Email:
jenny_c@bellsouth.net
Date:
02 Apr 2002
Time:
11:46:49 PM -0500

Comments

I haven't read everything just a little bit. I stumbled upon your site while looking for an ultrasound picture frame for a friend of mine. I think this is the sweetest site I have ever seen. I read a few lines at the beginning and then some of the last entry. Sounds like your baby has some health problems. I am sorry to hear that any baby is sick but it sounds like you love him so very much. I will not be nosey and read everything but I will say a silent prayer for your family.


Name:
Jennifer Chesney
Email:
jenny_c@bellsouth.net
Date:
03 Apr 2002
Time:
12:55:53 AM -0500

Comments

After reading some of your guestbook I realized that you no longer have Devon with you. I have read your story and cried more then I have cried in a long time. I have a 4 month old and a 3.5 year old and they are my world. I read about Sidney and Kaylee and cried some more. Kaylee is absolutely beautiful and I am sure that she is the light of your life. Babies are so beautiful and I absolutely love your saying on Devons page about how your would rather have 30 seconds of wonderful, than a lifetime of nothing special. I love my childern more then anything in this world and because of your story I will love them just a little more and a little longer every day for the rest of my life. Thank you for sharing your story.


Name:
Michelle Blevins
Email:
chellebell74@hotmail.com
Date:
09 Apr 2002
Time:
12:33:35 AM -0400

Comments

Hi, I love your story. It is so encouraging for we are in the first stages of my daughters diagnosis. She is going to be tested tomorrow for sma type 2, but after reading so many stories I'm scared it may be type 1. Your son was such a beautiful baby and I was reading your story I kept thinking this can't be happening to us. I'm going to remember your courage and try to follow the advice of some of these dedicated stories I've read on this website. God Bless You and your family. Michelle Blevins