Name:
Laura Stants
Email:
laura@our-sma-angels.com
Date:
09 Nov 2001
Time:
16:25:01

Comments

Hi, just testing to make sure the guestbook works. You're quite the handsome guy, Evan, and I'm glad to get to meet you!

Name:
Monica English & kids
Email:
monica@code-co.com
Date:
10 Nov 2001
Time:
15:15:51

Comments

Me and my kids all looked at Evan's pictures together. Evan is such a beautiful child and he looks fantastic! We're all in this fight together, and together we will beat SMA!

Name:
mommy
Email:
Date:
10 Nov 2001
Time:
17:49:12

Comments

HI baby Evan, You truly are my hero baby, I love you. Mommy

Name:
Amy Barnett
Email:
pupnamy@aol.com
Date:
10 Nov 2001
Time:
22:59:02

Comments

Hello Skarleth! What a cutie Evan is...and what a great website. I hope to get Lily's up and running soon..it is my fault it isn't running yet..just got the one page. Give Evan hugs and kisses from us!!! Hug yourself from me!!

Name:
Heather
Email:
heathertodd654@cs.com
Date:
12 Nov 2001
Time:
13:46:16

Comments

I am praying for Evan. What a beautiful, sweet baby boy!

Name:
TRACY AND SKYLAR
Email:
sky6300@msn.com
Date:
12 Nov 2001
Time:
15:58:17

Comments

Hi Evan! We love your site! Hopefully one day you and Sky (SMA 1, 17 months) could meet. I am glad me and your Mommy are friends. She's a great person and you are lucky to have her. Hang in there buddy.. The cure is out there. Until then, continue being a true fighter like all you all are!! We love you.. Hugs and kisses!!

Name:
marlen espinoza
Email:
enrimarlen@aol
Date:
12 Nov 2001
Time:
17:34:51

Comments

Evan is a blessing from God. And I pray everyday that our Lord will make the miracle happen. If this is not His will, I am still glad that we have Evan in our family. Love you always, Auntie Marlen

Name:
Wanda Dodaro
Email:
wdodaro@yahoo.com
Date:
12 Nov 2001
Time:
18:14:33

Comments

Hello Evan, Your mommy and daddy have put together a beautiful web site for you. You are a very handsome boy. My little girl's name is Samantha and she also has SMA type I and she really enjoyed looking at all of your pictures with me. I pray everyday that someday very soon there will be a cure or at least a drug therapy that will help you, Samantha and all of those affected with SMA.

Name:
Doug Schuett
Email:
dougsch@kdsi.net
Date:
12 Nov 2001
Time:
23:57:48

Comments

Hi Evan, you're a great looking kid with a great website. You are blessed with a loving family and I hope I get to meet you someday! May God bless and protect you!

Name:
The Miedings
Email:
servinghim4life@hotmail.com
Date:
13 Nov 2001
Time:
12:38:10

Comments

Hi Garth, Scarleth and Evan,

You are a precious family...We are keeping you in our daily prayers. God is faithful and loves each of you so much. May God bless you each day beyond your imagination.

Love, The Miedings

Name:
Jerry, Leaha and Trevor
Email:
Shanticia1971@yahoo.com
Date:
13 Nov 2001
Time:
18:22:19

Comments

We thought your site was very well done. Trevor waved at Evan on the screen. We are continually praying for Evan. Talk to you soon.

Name:
Kim
Email:
Benwinship@aol.com
Date:
14 Nov 2001
Time:
14:33:46

Comments

Evan is beautiful!!

Name:
Steve Schaefer
Email:
schaefer@mcsi.net
Date:
14 Nov 2001
Time:
19:36:30

Comments

A very warm web page. Evan is in our prayers here. Thanks for sending me the link. Take care,

-Steve

Name:
Jennifer Kindig
Email:
jbabymae3@hotmail.com
Date:
16 Nov 2001
Time:
22:27:05

Comments

Hello I wanted to tell you how beautiful your son is...Even though I know you already know that. Also when I read your story I could understand everything that you were saying because I to felt that way. Those feelings are so fimiliar it is scary. We lost our daughter Emma to sma 1 on Oct.3,1999 she was 7 months and 9 days old. I am so glad that you still have your son. Please visit Emma's site it is on the SMA angels web site. Take Care and stay strong

Name:
blanca  uria
Email:
monterrb.bellsouth,net
Date:
17 Nov 2001
Time:
00:45:28

Comments

hi evan, this is a message from zuly, blanca and roberto wishing you the best and to remind you that we are with you and that we know that you are a winner and for your mom and dad, they are going to be a winner too. we know that miracles happens and you will be one of them god bless you now and forever.

Name:
Pia Cristancho
Email:
Piagabi@aol.com
Date:
17 Nov 2001
Time:
14:45:43

Comments

Para mi es un placer haber conocido a Evan, aunque sea en fotos. Tu abuelita, Marlen, me ha hablado mucho de ti. Cada dos meses la miro a ella en su salon, y por supuesto siempre me ensena fotos de ti, que estas tan lindo. Dios te Bendiga!

Name:
MARLENE PACHECO
Email:
enrimarlen@aol.com
Date:
18 Nov 2001
Time:
17:28:26

Comments

I have never seen a baby so beautiful as you a gift so precious and I want you to know EVAN that -SMA- can never destroy you because the LORD make you an instrument of love whoever sees you can feel and receive that much love that only an angel from heaven can give it does not matter how long you gonna be here we always gonna love you alot grandma MARLENE

Name:
marlene pacheco
Email:
enrimarlen@aol.com
Date:
18 Nov 2001
Time:
17:40:32

Comments

this comment is for an angel that was send by GOD to give so much love EVAN I want you to know how much I love you you will always be in my heart I have this hope and dream you gonna get better and that will bring joy to all your family love you with all my heart grand MARLENE

Name:
Mariam Barth
Email:
umpquaprincess@citlink.net
Date:
18 Nov 2001
Time:
18:41:50

Comments

Dear Evan: You are in our thoughts and prayers everyday. Your mommy, daddy and you are very precious to us. We are so blessed to have you in our life. God bless you now and always.

For all of us,

Auntie Mariam

Name:
Elvira Aleans
Email:
ElvirainMiami@hotmail.com
Date:
18 Nov 2001
Time:
23:54:41

Comments

Hola Evan : )

Tu Tia Elvira te envia muchos besos y abrazos XOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXO

TE QUIERE MUCHO TU TIA ELVIRA DESDE MIAMI ; )

Name:
Shirley Wesley (Canada)
Email:
max1well@telusplanet.net
Date:
19 Nov 2001
Time:
19:36:32

Comments

Loved your website and will pass it along to others.

You have created a great awareness for Spinal Muscular Atrophy.

May God be with you and your beautiful son.

Love Shirley.

Name:
Pat Ratcliff
Email:
patrat@bluevalley.net
Date:
20 Nov 2001
Time:
22:04:06

Comments

our love and prayers continue. I am so glad you keep us up on the news about Evan. God bless all of you and we know God has a plan even if sometimes it is hard not to know what that is. Love Pat

Name:
Joanne Forstall
Email:
Marandadna@aol.com
Date:
28 Nov 2001
Time:
21:24:36

Comments

What a great looking group of people. Keep making your memories so wonderful for many, many, years to come! I am so happy that we are friends! Give that cute boy of yours a BIG Tight hug from me! With love...Joanne

Name:
Jennifer Newton-Shurley
Email:
Newtons5@yahoo.com
Date:
03 Dec 2001
Time:
22:38:54

Comments

I have heard so much about this beautiful child from my mom and dad and now I can finally see him. Thank you and God Bless all of you.

Name:
Mo Duncan
Email:
Mogsdee@aol.com
Date:
04 Dec 2001
Time:
11:41:27

Comments

Dear Evan, I met you and your Mommy at the SMA conference. I love your new website -you are sooo cute. I help take care of twin girls who have SMA just like you do. Tell your Mommy she is doing a great job!

Name:
Lisa Huston
Email:
huston@pro-ns.net
Date:
06 Dec 2001
Time:
19:12:00

Comments

Evan is so very cute. It was fun to see photos of him. I hope things continue to go well for you.

Lisa Huston (mom to Oliver!!)

Name:
Grandma Lorraine
Email:
lostin@Telusplanet.net
Date:
18 Dec 2001
Time:
02:48:31

Comments

Dear Beloved Evan: I love your Site, and our prayers are with you many times each day. I know that you will win this battle as miracles do happen with your mom and Dad and their great Faith. I also have a great faith, hope and love for you, and we love you very very much, so glad to have such a beautiful Grandson like you Evan. Keep up the good work, and GOD will look after you as you are a true ANGEL SENT TO US. GOD BLESS YOU SWEETHEART, ALSO TO MOM AND DAD, WE LOVE YOU ALL VERY MUCH.

love: Grandma Lorraine & Grandpa Len.

Name:
Auntie Heather
Email:
lostin@Telusplanet.net
Date:
18 Dec 2001
Time:
03:06:45

Comments

Dear Evan: Loved your site Evan, and I am so proud to have a nephew as beautiful as you. Keep up the good work Evan, God is going to take care of you, and you are such a cutie and a real Angel to your Mom & Dad, and to the rest of your family here in Canada. We all love you very much and pray for you all the time. Love: Auntie Heather, Bobby, Wyatt & Andrew.

GOD BLESS YOU ALL>

 

Name:
allen wulff
Email:
awulff26@hotmail.com
Date:
21 Dec 2001
Time:
15:13:59

Comments

Evan is a beautiful baby just like my wife Cheryl told me. I hope every thing goes good for you. allen wulff

Name:
Lily Barnett
Email:
pupnamy@aol.com
Date:
21 Dec 2001
Time:
18:25:52

Comments

Just wanted to check and see what mommy was looking at. Mommy says you are a very handsome boy so I thought I would check it out myself and you are. Mommy was also hoping for more pictures of you (: at least new ones...but she will keep checking back to see. I am sending you hugs and slobbery kisses from another SMA buddy here in Kentucky (Kentucky Wildcats rule..not Arizona...LOL) Love Lily

Name:
Familia Palma
Email:
fabiola785@cs.com
Date:
25 Dec 2001
Time:
18:53:35

Comments

Hola Scarlett! Como estas? Somos tu familia y estamos contigo. Hemos disfrutado las fotos de tu familia. Estan todos muy lindo. Aqui estamos tu tio Guillermo, tia Lucia y tus primas Fabiola y Leslie compartiendo este momento. Quiero que sepas que Jehova tiene una promesa en Apocalipsis 21:3-4 (tienes una biblia buscalos textos} Salmos 37: 9-11,29; Mateo 5: 3-9 en el cual vas a encontrar una esperanza y consuelo porque muy pronto Jehova va a traer el paraiso aqui en la tierra mediante Cristo Jesus. Por eso el murio para que por medio de el tengamos vida sin ningun problema fisico ni de ninguna otra indole. Tengo tantas cosas mas que decirte de las promesas que nos esperan de parte de Jehova por medio de Jesus Cristo; pero talvez en otra ocasion te puedo escribir mas. Me gustaria que visitaras el sitio de los testigos de Jehova te aseguro que no te vas arrepentir. watchtower.org Ha sido un placer haber disfrutado este momento con tu familia especialmente con Evan. con amor tio y tia y tus primas

xoxo

Name:
Tracy + Skylar  SMA 1, 18 1/2 mo
Email:
sky6300@msn.com
Date:
26 Dec 2001
Time:
19:07:38

Comments

Hey Evan.. We wanted to wish you a Merry Christmas... Tell your Mommy to give us a call. We loss your number ( Mommy is forgetful) :o)

Talk to you soon. xoxoxox Sky

Name:
Amy Barnett
Email:
pupnamy@aol.com
Date:
27 Dec 2001
Time:
22:55:03

Comments

Just checking and looking for more pictures of the handsome boy!! Lily was wondering when you would get more pictures up! Hugs to you and talk to you soon.

Name:
Tia Terry
Email:
tkandi@mohaveaz.com
Date:
30 Dec 2001
Time:
21:10:06

Comments

Hola Mi Principe Azul, It's been a long time since I have seen you, but your smile has never left my minds eye. You are truly an inspiration to everyone! I keep you in my daily prayers along with your mommy and daddy and will always be thankful for the day they became my friends and let me share their most precious posession, YOU! I love you very much and I now have your beautiful picture as a wallpaper on my computer, so that I can wake up to your smile! You have truly been a gift in my life. Thank You Garth, Skarleth and Evan. God Bless You All. Love, Tia Terry

Name:
Jack and Lucia Boyer
Email:
lujack@citlink.net
Date:
31 Dec 2001
Time:
15:47:05

Comments

Sometimes, when you see people once a week at church, you think you know them somewhat. But this website tells us so much more-just magnifies all the good things we believed about you before. You continue to be an inspiration to us, more so now that we see Evan's website. Evan is an inspiration because God gave him joy for others to draw upon; mommy because of her faith in God and conviction that this disease is not going to interfere with her duties as wife and mother, and daddy because he is steadfast in support for the mommy who carries much of the burden while he carries on his role as provider. There is so much more-the facing of reality that Evan may not be with us someday and the choice that life must be lived to the fullest anyway; the strength you show because you accept God's love and will, and the up-beat attitude you project to the world while, at the same time, hurting so inside. Know that besides God's love you have the love of each and every one of us that has the privilege of knowing your family. You truly are great witnesses for the Lord's way and He will always continue to bless you.

With affection, Jack and Lucia Boyer

Name:
Tom Breton
Email:
conboysj@shaw.ca
Date:
02 Jan 2002
Time:
14:11:27

Comments

The presentation of this web site is much appreciated and brings a measure of comfort to me

Grampa

Name:
Lori/Tony Petrik
Email:
l&tpetrik@laughlin.net
Date:
04 Jan 2002
Time:
00:30:22

Comments

Wonderful website about a very special boy. Loved the pictures and you did such a nice job writing his story. Knowing Evan personally makes this site even that much more touching. Don't ever feel like you are in this alone ...

Lori and Tony

Name:
JOHN BOYER
Email:
lujack@citlink.net
Date:
07 Jan 2002
Time:
21:41:10

Comments

I FIRST MET EVAN IN OUR CHURCH, SUNRIDGE BAPTIST IN BULLHEAD. HE SURE IS A INSPIRATION TO ALL OF US .WE ALL LOVE HIM . JOHN BOYER

Name:
Lise Stevens
Email:
lisestevens@sk.sympatico.ca
Date:
03 Feb 2002
Time:
14:38:58

Comments

Dear Evan, Skarleth and Garth, On a quiet Sunday afternoon, Mom and I came to Evan's website. Skarleth had just sent us a letter and mentioned that Evan had one and for me to sign his guestbook. Since I've known about Evan's condition, I want Skarleth and Garth to know they've been in our thoughts and prayers ever since. Evan is the sweetest little angel on this side of heaven! We love him and haven't had the pleasure of seeing him. What a great blessing you've given us, Skarleth and Garth. And the amazing courage and determination you have shown in a time of adversity, you are both truly incredible parents. Take the greatest care of yourselves and I know Evan is in the best possible care - Arms of love, eyes of adoration, and souls of quiet strength and determination. Lise, Rhonda and Phillip

Name:
Debbie-Paytons mom
Email:
Date:
09 Feb 2002
Time:
18:16:39

Comments

I just wanted to say hi and say how nice your website is!! Evan is such a cutie! Good luck with all that you are doing for your precious boy! The Freemans

Name:
Penny Trottter
Email:
Pennylagrand@aol.com
Date:
13 Feb 2002
Time:
05:06:18

Comments

Your little boy is "beautiful"!! My twin sister Pam Sink has a little boy also with SMA/type1. He is 4 yrs. old.

Your in my prayers.

Penny

Name:
The Fornaras
Email:
mecbhc@ctaz.xom
Date:
22 Feb 2002
Time:
15:26:32

Comments

Skarleth, You should put a warning label on "Evan's Story." I bawled and bawled. It was really beautifully written. You did a great job with it. Thanks for sharing this web site with me. I'll pass it on to all of my friends whom I've had praying for your family. Love, Sarah

Name:
Jul;ie Miller
Email:
mjmgolf@ncn.net
Date:
31 Mar 2002
Time:
01:04:10

Comments

Evan is such a handsome and precious little guy! I never thought that my heart could love anyone more than my own two children, until I became a grandmother of two little boys; one, just turning 4 and the other, 3 1/2. My heart goes out to you. I pray that God will enfold Evan in His loving arms and heal his little body of this terrible disease! Jesus gave us HOPE. In him all things are possible! A blessed Easter to you. Julie

Name:
Tracy and Skylar
Email:
ourlilsky@aol.com
Date:
April 04, 2002
Time:
05:42 PM

Comments

Hey Evan.. We just stopped by to look at your new pictures. You are such a handsome boy! Take care..Love ya, Tracy and Sky

Name:
Email:
Date:
April 13, 2002
Time:
10:40 PM

Comments

EVAN como estas mi negrito lindo que bonitas las fotos estan te ves tan lindo I love you more than words can express and I dream that you will live to see cure pretty soon because the LORD has send you here to give and receive love,in good times and bad times we thanks to the LORD because he is good and he will bless your parents in the way that he knows is best,you are very loved for your family GOD BLESS YOU NOW AND ALLWAYS love you grandma MARLENE

Name:
Grandma Lorraine
Email:
lostin@telusplanet.net (Canada)
Date:
April 15, 2002
Time:
03:19 PM

Comments

Hi Evan, Skarleth & Garth: Just reviewing you web site again, and our prayers have never ceased for You and Your Mom and Dad. You are a beautiful Grandson, and we love you so very much, we know that you will beat this SMA as you are such a wonderful child of God and God does do wonderful things for us if only we let him, and he will do this in his time, but his hands are on you all the time, and the spirit is running through you Evan, and in time his miracle will come through all our faith in our great master above. Love you all. GOD BLESS OUR LITTLE ANGEL Love: Grandma Lorraine & Grandpa Len.

Name:
marlen
Email:
Date:
April 21, 2002
Time:
02:33 PM

Comments

hi Evan, we love you, and constantly think about and pray for you. Looking forward to seeing you real soon! Hang in there 'cause God's watching over you. You're our little angel. Tia Marlen & Tio Julio

Name:
Debbie & Star Mott
Email:
nurse_47@hotmail.com
Date:
May 03, 2002
Time:
12:31 AM

Comments

Evan,you are so handsome. Star says hi to her new friend. Love, Nurse Debbie

Name:
Craig and Sarah, Caleb, Jeanette, Esther
Email:
evins3@ctaz.com
Date:
May 03, 2002
Time:
04:50 PM

Comments

Dear Garth, Skarleth and Evan, we praise the Lord for putting you into our lives. God really works in ways that are far above our ability to understand. We are praying that God will strengthen you minute by minute with the tasks that take up your day. We love you. The Evinses.

Name:
Pastor Nick Wright
Email:
revelator@uneedspeed.net
Date:
May 06, 2002
Time:
10:39 AM

Comments

I am really moved by this website, so moved, I cried for a long time and asked God the question you must have asked a 1000 times, "WHY". Then I asked Him "What can I do". He gave me one answer to both questions. "TRUST ME". Evan, I want you to know, "You have touched my heart". I make you a promise this day, "I WILL NOT GIVE UP ON YOU". Our whole Church knows your name, and your name is on our lips when we pray. God bless you and your strong Mommy and Daddy. "YOU ARE A MIRACLE" "I'm going to believe the report of the Lord" Pastor Nick Wright God's Grace Church Lake Havasu City

Name:
blanca
Email:
monterrb.bellsouth,net
Date:
May 08, 2002
Time:
11:41 PM

Comments

evan todos estos meses he estado pensando en ti,extranando esa sonrisa tan bella,tus ojitos tan lindos y cuando empezastes a decir palabras,como cuando te lleve a publix y mirastes un globo que era un perro,y te tuve que comprar el globo porque te encantaban en ese tiempo los perros,y cada vez que mirabas uno siempre decias guao-guao.

Name:
blanca uria
Email:
monterrb.bellsouth,net
Date:
May 09, 2002
Time:
12:47 AM

Comments

scarleth,craft y evan yo se que ustedes estan luchando por su hijo pero nosotros tenemos fe,aunque yo blanca sea una oveja descarriada,en mi casa sabemos que dios esta con evan y que el va a ganar y que siempre sera un ganador y va a vencer todo lo que se presente porque dios lo sanara y lo protegera porque el siempre envia un angel al mundo y el es uno de esos angeles.

Name:
Tracy and Skylar SMA1, 23.5mo
Email:
OurLilSky@aol.com
Date:
May 20, 2002
Time:
07:55 PM

Comments

Hi Evan! We are so glad we FINALLY got to meet you and your Mommy! You are such a "HAM". Keep doing well and we will see you next year! Sky sends BIG kisses.

Name:
Nadine Schaper Jarred's mom 2 yrs Type I
Email:
islandgirl@myfirstlink.net
Date:
June 03, 2002
Time:
02:31 AM

Comments

Hi Evan!! You are such a cutie, We were happy to meet you & your mommy at the conference, and I know Jarred would have loved to played with you if he had been feeling better. We hope you had a good time in NYC & seeing your Grandma. Take care, we hope to see you again soon!~

Name:
Wanda & Samantha Dodaro
Email:
wdodaro@yahoo.com
Date:
June 05, 2002
Time:
08:20 PM

Comments

Hello Evan, Samantha (sma type I - 2yrs 5mths) and I were just looking at your pictures and we love the one of you in your bubble bath. You are such a handsome little boy and it looks like you have lots of fun with your mommy and daddy. We hope someday to meet up with you in person but until then we will just have to visit your website and watch you grow through your pictures.

Name:
UNCLE BILLY BUTTON
Email:
EXBOURNE@LAUGHLIN.NET
Date:
July 03, 2002
Time:
03:29 PM

Comments

SCARLET YOU TOUCH MY HEART WITH EVAN'S STORY.. KEEP THE FAITH AND KEEP PRAYING. I'M WITH YOU AND GARTH, HE IS IN MY PRAYERS EVERY DAY ALL DAY. WHAT A BEAUTIFUL MOTHER OF LOVE YOU ARE... AND GARTH YOU ARE HER ROCK OF STRENGTH... BILLY

Name:
Ed and Vicki Montour
Email:
emontour@novell.com
Date:
July 10, 2002
Time:
09:04 AM

Comments

We missed you last Sunday at church. We were in Bullhead for the 4th of July weekend. Have a Blessed Day! Vic and Ed

Name:
Auntie Heather
Email:
lostin@telusplanet.net
Date:
July 12, 2002
Time:
03:40 PM

Comments

Hello sweet Evan and Mommy and Daddy! Just wanted to visit and see the new pictures of my beautiful nephew!!! We are always praying for you and spreading the news continually about sma. Bobby, Wyatt and AJ are always asking about you and can'twait to meet their cousin. Hope to see you soon.With love always The Klatts.

Name:
Auntie Laura-Marie
Email:
njbunnies@yahoo.com
Date:
July 15, 2002
Time:
05:04 PM

Comments

Hello, Evan is so so sweet! Your web site is the best I have seen! Your writing of Evan's story has touched me and you are wonderful at expressing yourself. We have not put up a web site for Connor yet. My sister and I have talked about it, we will get one up by the end of the year! Good luck with the insurance fight. That is what Karen has been fighting with for Connor's Bi-Pap, etc. machines! Did you get to the FSMA conference? I hope one us will get to go next year. Dr. Bach has been a huge help along with Kim McAdams and the crew on the 'diet'. Please keep me posted on how you are. I will check for new photo's of you and your sweeties on your web site. lots of love, hope and determination to fight SMA! auntie laura-marie

Name:
Heather LaRose
Email:
lostin@telusplanet.net
Date:
July 25, 2002
Time:
03:43 PM

Comments

Hello Garth,Skarleth and baby Evan. This is my first opportunity to visit Evan's website and I must compliment you all on an extraordinary job. I can't believe how gorgeous Evan is becoming, I have seen many pictures of sweet Evan at Auntie Heather's house but it was wonderful to come to the website and hear your stories and to see all of the wonderful pictures that you have posted. I wish you all happiness and fortune in the future and we are praying for you all. We hope to be able to see you three this summer sometime if you are still planning on coming home for a visit. I am still banking on becoming the Reader's Digest millionaire in August so be prepared to have Auntie Heather and myself down to see your precious angel! Please take good care of each other and know that you are all thought about and loved very much. Love Heather

Name:
Ron/Joyce Allen
Email:
rgaj@sprint.ca
Date:
August 01, 2002
Time:
09:54 PM

Comments

We just read the journal and felt like crying with you over some of the trials!! Thank God that you know and have the Lord always at your side. We think of you and pray for an awareness of God's keeping power to be yours. Love. Joyce/Ron

Name:
Tracy and Skylar SMA1, 26 mo
Email:
ourlilsky@aol.com
Date:
August 07, 2002
Time:
05:13 PM

Comments

Hey Evan! We stopped by to look at your pictures and you are getting cuter by the day!! We love the cowboy picture. Tell your Mommy to stop being a stranger and keep in touch. We love you!! Sky and Tracy

Name:
Grandma Joan
Email:
babysteps@eudoramail.com
Date:
August 09, 2002
Time:
11:01 AM

Comments

Love You Baby !!! You have a lot of prayers coming from Lake Havasu !!!

Name:
The O'Neills
Email:
TheONeills@our-sma-angels.com
Date:
August 24, 2002
Time:
06:13 PM

Comments

Hi EVAN! Happy Birthday, big guy! We hope you have a wonderful day and that it continues to be a happy, healthy year for you. We loved meeting you in NJ. Can't wait for this years conference. You are certainly the "hammiest"! Hugs, Sue, Gene, Casey and Colin

Name:
Joan Gilbank
Email:
babysteps@eudoramail.com
Date:
August 27, 2002
Time:
12:19 PM

Comments

Sorry that we missed your second birthday Evan but Jill and I certainly haven't forgotten you . I will be in Bullhead either later this week or next week and I will call first to make sure you are home so I can deliver your present from us and Robin and Jordan too ! I gave your web address to Dan and Kristi Donaldson and when I talked to them about you at church they said that they REALLY want you to come down to church one Sunday so everyone can see the results of their prayers !! Love you sweetheart and your family too !!! Joan and Jill.

Name:
bobbi fletcher
Email:
praisinhimjf@yahoo.com
Date:
August 30, 2002
Time:
01:48 PM

Comments

HOW BEAUTIFUL YOUR LITTLE ONE IS..... I HAVE A BEAUTIFUL GRANDDAUGHTER THAT IS STRUGGLING WITH THE SAME.... I CAN CERTAINLY RELATE TO YOUR HAPPINESS OF HAVING HIM IN YOUR LIFE. THE BEST TO YOU AND THE ONES YOU LOVE. MAY YOU CONTINUE TO LOVE AND CARE FOR EACH OTHER. IF I DON'T MEET YOU HERE ON EARTH.... MEET ME AT THE PEARLY GATES. BOBBI

Name:
Ron/Joyce Allen
Email:
rgaj@sprint.ca
Date:
October 02, 2002
Time:
06:25 PM

Comments

It's so precious to read the diary of events and to pray with you through so much of the struggle. God has ways of being very, very close when the dark clouds move in. Bless you Ron/Joyce

Name:
Grandma Lorraine
Email:
lostin@telusplanet.net(Canada)
Date:
November 12, 2002
Time:
12:58 AM

Comments

Dear Evan, Garth & Skarleth: Hi Guys, Hope you are all well down there. We are keeping pretty well here, although it is rather cold today. Glad you are all settled in your new home, and Evan, I am sure that you are really keeping your Mommy & Daddy in shape, Good Job!! Our prayers continue for you Evan, and God is with you all the time, so take care of your folks o.k.? Auntie Heather says Hi to you, and we all Love you ALL very much down there, wish we could get together sometime. God Bless Everyone, Love you, Grandma Lorraine and Grandpa Len.

Name:
Tracy and Skylar
Email:
ourlilsky@aol.com
Date:
November 21, 2002
Time:
02:59 PM

Comments

Hi Evan! Mommy and I were checking on our friends site and wanted to know that we stopped by. You are getting so big and are so handsome! Your Mommy must be so proud of you. Tell your Mommy to keep in touch. Love you tons!

Name:
Dr. Joe
Email:
Date:
December 12, 2002
Time:
05:28 PM

Comments

Hello Evan, Skarleth, and Garth. I finally was able to see your web page. Great Picture! Merry Christmas!

Name:
Grandma Lorraine & Grandpa Len
Email:
lostin@telusplanet.net
Date:
January 02, 2003
Time:
10:30 PM

Comments

Hi Garth, Skarleth & Evan: Just dropping in to say Hi, to you all, and how is everyone doing down there? Sure hope that Santa was good to you, and by the sounds of the phone calls, you were certainly a good boy, as I know that you received lots of toys at Christmas. Of course I know that you are a good boy, and a very special boy to me, we love you very much, and we pray for you Evan each and every day, and I know with God's help, you will do o.k., Just wish that we could be there with you, but someday we may get back. Love from Grandma Lorraine & Grandpa Len, also Auntie Heather, Bobby, Wyatt, and Andrew. We all love you and hope that you may get up here this summer, talk to Daddy and Mommy about that o.k.? Love: from all of us up here in Canada.

Name:
Grandma Lorraine
Email:
lostin@telusplanet.net
Date:
January 11, 2003
Time:
01:32 AM

Comments

Hi Evan: Happy New Year to You, hope that you are feeling better, and I bet you are enjoying playing with all your new toys that you received at Christmas. I guess Santa clause was good to you, but of course he would be because you are a Very Good Boy all the time, and we Love You A Whole Bunch. I sent a letter to you this week, so you should get it pretty soon. Have to go now but keep in touch, tell Daddy to call us once in awhile, we love to talk to you all down there. LOVE GRANDMA LORRAINE & GRANDPA LEN

Name:
hendersonpacheco
Email:
LosHender@msn.com
Date:
February 01, 2003
Time:
09:23 PM

Comments

we love evansito!!! tia lourdes,andresito y marcela canela.

Name:
Janet Hobbs
Email:
utaz@color-country.net
Date:
February 12, 2003
Time:
09:37 PM

Comments

Evan, Skarleth and Garth, I have spent the last hour looking at all your pictures, reading your journal entries, Evan's story and updates. Thank you so much for sharing from your heart! I feel honored to be a part of Evan's life. Stay close to the Lord as he is close to you! Jan

Name:
Elizabeth Sutami
Email:
esutami@hotmail.com
Date:
February 17, 2003
Time:
09:55 PM

Comments

Hi! My mom, Janet, told me about your site. It is really nice. I loved the pictures!!! We will keep you in our prayers!

Name:
Grandma Lorraine
Email:
lostin@telusplanet.net
Date:
March 01, 2003
Time:
10:30 PM

Comments

Hi Sweet Evan: Just thinking of you, and want to let you know that we Grandpa and I are praying for you each and every day. We just love it when you call us on the phone. You are such a smart young fellow, and I know that you are being taken care of very well. Wish we could be with you more, but distance seems to be in the way right now. Hope that we will be able to get to visit you before too long of a time. Wish that you all could come back to Canada and really be part of our family as well, but great having your other grandparents there with you as well, I know that you bring them alot of smiles and fun, they as well will give you alot of smiles and fun to I know, they are great people, and love you as well very much. We will talk to you on the phone again soon Evan, and will pray for you all the time, God is looking after you, you are his little angel for sure, but we LOVE you very,very, much. Say hi to Mummy & Daddy for us, we LOVE them very much to. LOVE: Grandma Lorraine & Grandpa Len.

Name:
MJ
Email:
TWEETYROLL88@AOL.COM
Date:
March 10, 2003
Time:
03:19 PM

Comments

Hi Evan, Hope you are doing well and having a great day! My dog, Wyatt, sends you big slobbery doggie kisses. Love your buddy, MJ - http://caringbridge.org/ny/mjpurk/

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
March 17, 2003
Time:
12:17 AM

Comments

Hi Evan: How was your day? Hope you it was great! Keep smiling and know Wyatt and I love you! Huggles and Kissems, MJ www.caringbridge.org/ny/mjpurk

Name:
Vicki Brewster
Email:
dvbrewster@rraz.net
Date:
March 19, 2003
Time:
06:58 PM

Comments

God Bless you all for your example of love, faith, and hope.

Name:
MJ
Email:
TWEETYROLL88@AOL.COM
Date:
March 25, 2003
Time:
03:33 PM

Comments

HAPPY SPRING!!! How is your weather? It's been so nice here and Wyatt gets to go for a walk almost everyday. Hope you can go outside soon and enjoy the warm weather! Have an awesome day! Love, MJ - www.caringbridge.org/ny/mjpurk

Name:
Sylvia,david,daniel,michael
Email:
dwolff@ctaz.com
Date:
April 02, 2003
Time:
12:00 AM

Comments

We love Evan and will always have a special place in our hearts for him.

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
April 04, 2003
Time:
06:47 PM

Comments

Hey there! Hope you had a great week! I'm doing alright. I'm so happy Spring has 'sprung'. Unfortunately, it's been kinda chilly here, so Wyatt and I haven't been on many walks. But that's ok because, Wyatt enjoys digging in the back yard. He digs and digs to find his favorite toy...ROCKS! If you want to, you can e-mail Wyatt and he'll write you back. He LOVES e-mail so much! His e-mail address is NewBrnCar4wyatt@aol.com . Please feel free to e-mail him anytime! Have a great week and remember, Wyatt loves you and so do I! Love, MJ - http://www.picturetrail.com/gallery/view?username=bshanson68

Name:
grandma Lorraine
Email:
lostin@telusplanet.net
Date:
April 07, 2003
Time:
02:03 AM

Comments

Hi Evan

Name:
Valerie
Email:
Vanillav14@aol.com
Date:
April 13, 2003
Time:
09:23 AM

Comments

Hey Evan, I've been on your website all morning.. Thos pictures are great. Make sure your mom keeps adding more for a more beautiful smile. ----Valerie

Name:
nicole
Email:
luckie2006@hotmail.com
Date:
April 19, 2003
Time:
09:40 PM

Comments

Hi my name is Nicole and I am 15 years old.I just wanted to say God Bless You becuase you have a very special little boy and it must be so much work to take care of him.I am very familiar with the work and strength it involves because I have a soon to be 5 year old cousin who has SMA type 2.He was diagnosed when he was about 8 months old and ever since it has been an uphill battle.I am one of the only people in my family who is able to take care of him and work his equiptment.But I feel like the luckiest person in the world becuase I have him in my life.I consider him my hero becuase of what he puts up with everyday.Good Luck and you are in my prayers.

Name:
Auntie Lucia
Email:
lujack@citlink.net
Date:
April 21, 2003
Time:
01:34 AM

Comments

We love you lots. Aunti Lucia and Uncle Jack

Name:
Auntie Heather
Email:
lostin@telusplanet.net
Date:
April 26, 2003
Time:
06:58 PM

Comments

Hello sweet Evan and Skarleth and Garth. I miss you all very much and doing my best on getting down to see you!I am so happy to hear that Evan is feeling better. I hope you all had a very happy Easter!Say hello to all your family for me Skarleth. You all are always in our thoughts and prayers. Love you and big hugs and kisses!!! Love Auntie Heather and The Boys

Name:
Amy Barnett
Email:
lilynnathansmom@aol.com
Date:
April 27, 2003
Time:
01:11 AM

Comments

Hello Skarleth, Garth, and Evan! I have been catching up with you guys and so glad you are feeling much better! Lily is just getting over a cold as well and feeling much better and is able to get out and about in the great weather! Keep your chin up, keep on being HOPEFUL (don't EVER lose that Skarleth...GOD is still God, he is still good, and there IS a cure on the way) and DON'T EVER GIVE UP! Evan is a strong little boy and Lily sends him hugs and kisses :)

Name:
Jenna
Email:
hockeykid@telus.net
Date:
April 28, 2003
Time:
05:47 PM

Comments

Hello My name is Jenna, and I was born with a rare bone disease. I love life and I live it to the fullest. Evan reminds me of myself, in many ways, and he is a real cutie. He is in my prayers. Evan is a true inspiration and a hero in life. My webpage is: http://www.amtmice.com/home/fighterandchampion

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
May 04, 2003
Time:
12:33 PM

Comments

Hello friend! Hope you are doing well and having a great week. I've had a great week! The weather has been very nice here and Wyatt and I have really enjoyed it! What have you been up to? I hope you are feeling well and having a great day! Love your buddy, MJ - http://caringbridge.org/ny/mjpurk/

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
May 14, 2003
Time:
06:02 PM

Comments

Hey buddy! How have you been? Hopefully great! If not, feel better right away, okay? I have to go to hospital again soon. :-( So, if you don't hear from me, don't worry, I'll be back really soon!!!! Remember I love you and stay well! Huggles (haha a new word) MJ - www.caringbridge.com/ny/mjpurk

Name:
Sara
Email:
pssara@mohaveaz.com
Date:
May 20, 2003
Time:
08:04 PM

Comments

Skarleth, I am so sorry to hear that Evan is struggling again so soon. Hope he is feeling better by now. Let us know if there is anything we can do for you. He is continually in our prayers.

Name:
bobby klatt
Email:
hbreton@telus.net
Date:
June 09, 2003
Time:
11:05 PM

Comments

Hey little cousin how are you? I am coming to your house on Thursday!

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
September 13, 2003
Time:
01:37 AM

Comments

Hello: How is your chair working. Are you zooming around alot. Start chasing the neighbors down the road!!!!! LOL!! Sorry I haven't visited you in awhile. I was on vacation and I finally got my computer back (they had to fix it). I am back in school and working hard...I was home most of the week cuz I was sick. Hope you are doing ok. TTYL Love, MJ

Name:
Erika Ross
Email:
erossmk@yahoo.com
Date:
September 18, 2003
Time:
07:58 PM

Comments

Hi Evan!!! We love you! See you soon. Love, Erika, Tim & Sam P.S. Thank you for coming to Sam's birthday party!

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
September 22, 2003
Time:
01:40 AM

Comments

Hello, How are you today? How is your weekend going? I am home sick and Wyatt is keeping me company, snuggling in bed with me. If you check out my caringbridge website, you can see a picture of Wyatt and I snuggling in bed. Have a good day. Love, MJ www.caringbridge.org/ny/mjpurk http://www.our-sma-angels.com/Margaret/

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
September 29, 2003
Time:
10:58 AM

Comments

Hey! How are you doing? I'm still sick, UGH! Wyatt is very cuddly lately and loves to snuggle with me. I wish Wyatt could come and snuggle with you right now! Hope you are having a great day! Love MJ http://www.caringbridge.com/ny/mjpurk http://www.our-sma-angels.com/Margaret/

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
October 13, 2003
Time:
02:09 AM

Comments

Hi! How've you been? I'm finally am feeling better! I started some new medicines that really help! Wyatt is really sad today. My dad vacuumed the couch so Wyatt can't sit or lay on it. Oh well, guess he'll just have to snuggle with me! Hope you are doing and feeling GREAT! Love and hugs, MJ http://www.caringbridge.com/ny/mjpurk http://www.our-sma-angels.com/Margaret/

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
October 25, 2003
Time:
10:35 AM

Comments

Hi! How are you? I still have a cold...:( Wyatt has been very good and cuddly! He actually has a new website! If you want check it out go to, www.freeweb.com/mj88 . He'll have a guest book soon so check back and let him know you have visited! Hugs to you, MJ & Wyatt www.caringbridge.org/ny/mjpurk www.our-sma-angels.com/Margaret PS. Glad to hear you are doing well. I hope your teacher starts making school fun!!! Love ya

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
November 03, 2003
Time:
10:26 AM

Comments

Hi! How are you? How was your Halloween? Mine was pretty boring. We didn't have many trick-or-treaters here. Wyatt didn't enjoy Halloween very much...He barked and barked at everybody who came. Wyatt says I ruv yoou...That means I love you...I hope your doing well! Hugs, MJ & Wyatt http://www.caringbridge.com/ny/mjpurk

Name:
Debbie (Paytons mom)
Email:
pjf714@netscape.net
Date:
November 14, 2003
Time:
12:02 PM

Comments

Hi Skarleth! I was just reading your journal and checking out your website and I wanted to say hi and let you know I was here! Evan looks SO GOOD! AND Strong!! He is quite handsome! I hope he continues to do well and I am very happy to hear about your van--I hope Evan really likes it too! Take care and stay strong--Debbie Freeman

Name:
Joe Golding (Dr. Joe)
Email:
joegolding01@hotmail.com
Date:
January 09, 2004
Time:
03:31 PM

Comments

Hello Skarleth and Evan! I just wanted to say Hello and wish you all a Happy New Year! I sure would like to see Evan cruising in his chair. That is great. God Bless.

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
January 24, 2004
Time:
12:29 PM

Comments

Hi! Sorry I haven't written in awhile, I've been sick and not feeling up to writing. It is so cold here. It snowed and snowed here today! Wyatt loved playing in the snow. He took his favorite toy (his tennis ball) out with him. He played and played for hours! Anyway, I hope you are doing well and it isn't too cold by you. Big hugs from me & Wyatt! Love MJ - http://www.our-sma-angels.com/Margaret/ http://www.caringbridge.com/ny/mjpurk "A life spent making mistakes is not only more honorable, but more useful than a life spent doing nothing." -George Bernard Shaw

Name:
Christine Seabury
Email:
cseabury@yahoo.com
Date:
January 24, 2004
Time:
04:37 PM

Comments

We love you very much!

Name:
Sara
Email:
pssara@mohaveaz.com
Date:
January 25, 2004
Time:
11:33 PM

Comments

Hi evan! we haven't see you in awhile. Tell your mom to bring you over in your new van to visit! Hope your feeling great !!! Sara, Wyatt, Jakob, amd Mike Yeager

Name:
Sara
Email:
pssara@mohaveaz.com
Date:
January 26, 2004
Time:
11:13 PM

Comments

hang in there little man! am coming to see you in the morning! sara

Name:
Angel Sprite
Email:
smilequilts@smilequilts.com
Date:
January 28, 2004
Time:
07:36 AM

Comments

Hi Evan, what a beautiful boy! I hope you are feeling better today. I would like to invite you to visit Smile Quilts http://smilequilts.com and see if we can make a virtual on line Smile Quilt just for you. If you would like a Smile Quilt, just have mommy fill out the request form and we would be happy to send some smiles and hugs your way. Sending you lots of hugs and I will be keeping you in my prayers. Hugs, Angel Sprite

Name:
Helen Parody
Email:
hparody@twcny.rr.com
Date:
February 01, 2004
Time:
10:58 AM

Comments

Skarleth,Glad to hear Evan is doing better.Evan is a beautiful child,one that you want to hug.Will keep you's in my prayers.Hugs&Smiles Helen

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
February 29, 2004
Time:
01:24 AM

Comments

Hi! Happy Leap year!! Its hard to believe its almost March. I've still been home sick, no school for me. :( I have been doing homework but not much (shame on me). Wyatt sends you big slobbery dog kisses from NY. Hope you're doing well! Love, MJ http://www.our-sma-angels.com/Margaret/ http://www.caringbridge.com/ny/mjpurk/ MJ "Just living isn't enough," said the butterfly, "One must have freedom, sunshine and a little flower." -Hans Christian Anderson

Name:
Shriya and Sohum
Email:
shriyashah@yahoo.com
Date:
April 08, 2004
Time:
07:29 PM

Comments

Dear Evan, I enjoyed reading everything about you. Your mommy's thoughts and feelings seem to reflect my own. My son sohum is 17 months and also has SMA. He like you is smart, social and very happy! I pray to God for miracles everyday and I know He is listening to our prayers... and Yes we will find a cure together for our precious children. Love, Shriya

Name:
Esther,Jay, Raquel, Bridget and Madelynn
Email:
jest@ctaz.com
Date:
April 18, 2004
Time:
11:56 AM

Comments

Dear Evan, Skarleth and Garth, Even though I haven't had a chance to read everything on your site, I want to let you know that Evan is very special to us (the girls adore him)and that we feel very fortunate to have you as our friends! The MacDonalds

Name:
Jan Hobbs
Email:
jhobbs@mail.de.state.az.us
Date:
May 21, 2004
Time:
09:26 AM

Comments

Dear Garth, Skarleth and Evan, I really miss seeing all of you. Just this morning I found your website address and sat and read all the news since I saw you last. I am so happy that you are feeling well again Evan; it sounds like my friend has had some pretty tough times. Is your new Support Coordinator taking good care of you? I may be far from you but my thoughts and prayers are right there with you. I am working in Tucson, still with DDD. I love my job but I sure do not have any client that has your wonderful smile, spirit and ability to converse like you Evan! If you ever come to Tucson, please contact me. We have some wonderful things to see here. And now that you have a van and are mobil you must be putting some miles on that power chair! You go Boy! Take care of each other!

Name:
JEAN STREIBICK
Email:
jstreibick@mail.de.state.az.us
Date:
May 21, 2004
Time:
12:02 PM

Comments

EVAN AND FAMILY.. THIS IS JEAN STRIEBICK AND I USE TO BE THE SUPPORT PERSON YOU HAD BEFORE JANET.. JUST WANTED TO SAY HI AND SAY WHAT A GREAT SITE THIS IS AND EVAN LOOKS GREAT AND WHAT A GREAT JOB YOU DO WITH HIM... JEAN

Name:
Cheryl Wulff
Email:
cwulff26@hotmail.com
Date:
May 25, 2004
Time:
03:51 PM

Comments

God be with you!

Name:
Lisa, Jerry and Dylan
Email:
jboyd@ctaz.com
Date:
June 03, 2004
Time:
11:47 PM

Comments

What a great website. You guys are really a great family and we're proud to know you. Evan is an amazing boy. So sweet and smart and a joy to be around. I got too emotional the first time I visited the site to sign in so I thought it was about time I did. Thanks for sharing this with us. We love you.

Name:
Sara
Email:
pssara@mohaveaz.com
Date:
June 30, 2004
Time:
08:51 AM

Comments

Hi skarleth and Evan, just checking in to see how you are doing. Don't worry your doing great Skarleth it is difficult and I am not sure any of us knows what "normal mother" is anymore. Hang in there. love Sara

Name:
Jenna
Email:
hockeykid@telus.net
Date:
July 05, 2004
Time:
02:53 AM

Comments

Hi Evan! My name is Jenna and I came across your website. I am going to email you a little note too. You are full of life, and I bet you are always smiling! you are inspiration to all. You are in my thoughts and prayers. www.caringbridge.org/canad/jenna

Name:
Auntie Heather
Email:
hbreton@telus.net
Date:
July 08, 2004
Time:
11:47 PM

Comments

Hi Evan, just checking up on you and seeing your wonderful pictures!!Hope to see you soon!

Name:
Molly Parrott
Email:
parrott_12@msn.com
Date:
July 19, 2004
Time:
12:35 PM

Comments

Thank you for sharing your courage, your love, and your determination. I understand your fear and pain and was brought to tears when reading your story. Evan is truly your soul's strength!

Name:
theresa
Email:
tootoos5@hotmail.com
Date:
July 21, 2004
Time:
09:18 PM

Comments

Dear Evan, thank you for giving our little Shih Tzu a great home. She is going to be so happy with you. She, has been so special to us and I have waited to let her go, because of knowing she to had a special home to go to. I promise she will give you alot of love and friendship. We named her baby because she was the runt of the litter, she had a unique personality and special markings that none of her brothers and sisters had. She has the little white crown on the top of her head that was there since she was born. She is a fighter. When she was eight weeks old, I found her in my pool one day after work drowning.I was so upset and worried about her. My husband and I held her for the longest time and did not know if she was going to survive. She did , because she had a great purpose. She is a special dog born to be with a special boy! Love, Theresa Laven

Name:
The Crampton's
Email:
cramfam@bhcaz.com
Date:
July 24, 2004
Time:
02:34 AM

Comments

Dear Garth, Skarleth and Evan, What a great web site!! I loved the pictures and cried buckets over your trials, honesty and the injustice of this disease. We watched you grow inside your mommy Evan, and our prayers began for you then and they continue. We are so happy about your new puppy and saw the picture of you with her!! Morgan wanted that puppy so bad and we wouldn't let her have it. She thought she was the most special of Theresa's puppies. She was so happy that you have the puppy that she had me print it out so she could hang the two of you up in her room. We will have to come visit you and your new puppy. All our Love and Prayers, The Crampton's

Name:
theresa
Email:
Date:
July 24, 2004
Time:
11:21 PM

Comments

Dear Evan, I have been thinking about you and your new puppy all weekend, I hope she is being good for you. Thank you for the picture that your mom and you sent. If you need any puppy advice let me know. lots advice, Theresa

Name:
Colleen Edwards
Email:
scenter@nwrain.com
Date:
July 25, 2004
Time:
04:24 PM

Comments

Hello Evan & Family Thank you for sharing your experiences regarding your disased, your disaiblity and your lives. Your struhgles and triumphs will touch many that you may never come to meet or know. I don't have sma, but am disabled. Found your website by chance or was that by chance???? Anyway everyday is a girt of love and blessing even when it may not seems like it. . My prayers, love & blessings for your good days and those that are difficult. Colleen Edwards Washington State

Name:
Cheryl Wulff
Email:
cwulff26@hotmail.com
Date:
October 04, 2004
Time:
09:29 PM

Comments

God Bless You All---You are in my thoughts and prayers. What a beautiful family you have. Love Cheryl

Name:
Jan Hobbs
Email:
jhobbs@mail.de.state.az.us
Date:
October 13, 2004
Time:
05:18 PM

Comments

Evan you look great in your new pictures, so glad you enjoyed Disneyland!

Name:
Terri
Email:
Im2nr2trn@cox.net
Date:
January 04, 2005
Time:
10:21 PM

Comments

What a great website. You seem to be great fighters. How is Evan now? He is really adorable.

Name:
Grandma Lorraine
Email:
lostin@telusplanet.net
Date:
January 09, 2005
Time:
11:06 PM

Comments

Hi Evan: How are you doing? Just talked to your Mom today and she said that you were all fine, that is such good news to hear. How is school going? I am sure that you are doing a great job in school, and I know that you will enjoy getting back in this New Year. I am doing fine, but there is alot of sickness going around up here, but so far I have missed having it, I think that I am pretty healthy and I hope that I don't get that flu. Are you enjoying your new movies that you got at Christmas? I bet you are. Grandma has to go now, so keep in touch o.k., and I love you very much, also love your Mom and Dad very much to, Take Care GOD BLESS LOVE GRANDMA LORRAINE (iN cANADA)

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
January 17, 2005
Time:
02:36 AM

Comments

Hi!!!! Sorry I haven't signed your guest book in awhile. I hope you are doing ok and are enjoying the winter so far. I have a new website! It is <a href="http://www.mjthesmaqueen.com/"> MJ - The SMA Queen</a>....If you want to check it out. If you don't see your website on my friends page (and would like to) e-mail me, and I will put you up ASAP. I hope you have a <img src="http://www.mjthesmaqueen.com/valmiscani.gif">! and remember, <img src="http://www.mjthesmaqueen.com/valani3.gif"> MJ

Name:
Ginny Love
Email:
loveelect@wildapache.net
Date:
January 17, 2005
Time:
09:43 PM

Comments

Very well said. I learned about sma and how one would attempt to cope with something so much bigger than we are. Your faith in God is bigger than sma. Your family will be in my prayers. I will join you in asking for a miracle!

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
February 02, 2005
Time:
11:52 AM

Comments

Hi !!!! <img src="http://www.mjthesmaqueen.com/image006.gif"> Mickey and I wanted to say HAPPY FEBRUARY!!!! I hope you are doing well today. Big hugs to you and your family! Love, <img src="http://www.mjthesmaqueen.com/MJButterfly.gif"> http://www.caringbridge.com/ny/mjpurk - My Journal http://www.our-sma-angels.com/Margaret/ - My Original Website http://www.mjthesmaqueen.com/ - My New Website

Name:
Cheryl Wulff
Email:
cwulff26@hotmail.com
Date:
February 03, 2005
Time:
11:03 AM

Comments

Hi Evan! How's school this year. It is good to hear how well you are doing. I miss coming to your house. How is that puppy? You have such good warm weather in Bullhead. Our family traveled by car to South Dakota and Minnesota for Christmas and it was below zero! We are glad to be back in our warm Arizona. Hello to you Mom and Dad.

Name:
Email:
Date:
February 04, 2005
Time:
08:31 AM

Comments

God Bless you. My family and I will pray for you and your son.

Name:
Grandma Lorraine
Email:
lostin@telusplanet.net
Date:
February 13, 2005
Time:
09:42 PM

Comments

Hi Evan: Glad to hear that you are doing well. think of you so very often, hope that you are having fun at school and I am sure that you do have fun all the time when you are at school. How is Mom and Dad?Say Hi to them for me. Hope to call you on the telephone one of these days. until then take care and be a good boy, of course you always are are good boy arn't you? At least in my books you are a very special little fellow and I love you a whole bunch. Love Grandma Lorraine

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
February 14, 2005
Time:
12:05 PM

Comments

<img src="http://www.mjthesmaqueen.com/polarbear_val.gif"> I hope you have a very happy Valentine's Day! Love, MJ

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
March 08, 2005
Time:
10:59 AM

Comments

Hi: I know that I am early, but I wanted to wish you and your family a <img src="http://pic17.picturetrail.com/VOL815/2822478/6549091/88274216.jpg"> & <img src="http://pic17.picturetrail.com/VOL815/2822478/6549091/88272883.jpg"> I hope you enjoy your Spring!! Love, <a href="http://www.mjthesmaqueen.com/"> MJ </a>

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
April 12, 2005
Time:
10:28 AM

Comments

Hi my friend!! Did you know that <img src="http://www.mjthesmaqueen.com/snags/ItsSpring-jumpingFrog.gif">??? I hope that you had a very happy Easter! I got to go to Ohio and spend time with my family and friends. I put pictures up on my website so <a href="http://www3.caringbridge.org/ny/mjpurk/photo.htm"> check it out </a>, if you want to. I'm so glad that <img src="http://www.mjthesmaqueen.com/snags/srungturtle.gif"> Love and warm Spring hugs, <a href="http://www3.caringbridge.org/ny/mjpurk/"> MJ </a>

Name:
Cheryl Wulff
Email:
cwulff26 @hotmail.com
Date:
July 06, 2005
Time:
09:55 AM

Comments

Hello Evan and family! I enjoy your journal. Have a great time in first grade! We have moved out of Arizona, so keep in touch. Love and prayers, Cheryl

Name:
MJ
Email:
TWEETYROL88@aol.com
Date:
December 12, 2005
Time:
12:24 PM

Comments

Hello! I thought I would share this beautiful website with you and your family. <a href="http://www.wisehearts.com/CmsMF.htm">Merry Christmas to My Friend!</a> Wishing you and yours a wonderful week! <img src="http://www.mjthesmaqueen.com/schlittencujo.gif"> MJ http://www.caringbridge.com/ny/mjpurk

Name:
Sara
Email:
Date:
January 31, 2006
Time:
10:35 PM

Comments

Hi Evan and family, I'm so sorry to hear you have been feeling bad. You've been on my mind lately so I thought I'd check in to see how you are doing. Hope you can get back to school and all your activities soon. Be strong little man. -Jakob, Wyatt, and Sara

Name:
Lorraine Stinson
Email:
lostin@telusplanet.net
Date:
March 05, 2006
Time:
01:07 PM

Comments

Hi Evan: Just wanted to send an email to you and say that I LOVE YOU very much. Hope that you are feeling o.k. again and yes, you are a very strong boy, I know that the Good Lord will give you more strength each day, and keep going strong, you are going to be a great soccer player, and I know that you must enjoy this game. I wish that Grandma could be down there while you are on the soccer field, I am so very proud of al of you, just keep on praying and keep the good work up, you are going to be a hero for sure. I have to go now, but I love you all, and keep in touch please, I always love to hear from you guys I miss you so much, wish you were here and we could have some great time together. Love: Grandma Lorraine.