Suction machine: for nasal and oral removal of secretions.
In/Ex Suffalator: for simulating a cough, that her muscles are to weak
to do by themselves.
Bi-Pap: for giving lung expansion so that she can take big enough breaths
and really rest at the same time.
C.P.T.: Chest Physical Therapy, performed with an electronic percussor
to loosen phlegm that might have settled in the lungs.
Physical Therapy: Daily Range of Motion and massage to prevent contractures
and keeping the muscles pliable.
Speech therapy: Facial massage to keep the muscles supple and to stimulate
One day after Gilly’s first birthday Rex and I decided to put Gilly
on a raw vegan diet, and it is one of the best decisions we ever made
for her. The saying “You are what you eat” never held so much
truth for me as it does now. Gilly has been on this diet for 8 months
now and is doing extremely well with it. Her respiratory system has improved
dramatically and after 4 months her chest muscles began to work. Her breathing
is totally normal now while she used to breath with her diaphragm as long
as I can remember. After only a week all her yeast cleared up and hasn’t
come back since! This is a great step, especially when about all the children
with SMA seem to be suffering from yeast. Also, Gilly doesn’t have
any allergies, indoors or outdoors. However, the raw vegan diet is not
just for people affected with SMA or various other illnesses. It is a
way of living for everybody who wants to improve their health (see Genesis
The purpose of nutrition is to regenerate
the cells and tissues in the body, and a raw vegan diet will do just that.
Raw fruits and vegetables, nuts and seeds contain enzymes that a human
body needs to function and regenerate cells and tissues. Enzymes are the
life principle in every living organism, thus also in produce. When the
produce is cooked, the enzymes are destroyed and the food has lost its
nutritional value. Dead, cooked food cannot do the work of live food and
instead building the body up, it is breaking the body down, slowly but
One of the important ways to take
in raw fruits and vegetables is by juicing them. Juicing removes the fibers
and therefore are very quickly digested and assimilated without much effort
and exertion on part of the digestive system. Within the fibers are the
enzymes, which are laid bare and end up in the juice and in turn nourish
the cells of our body.
Even though the fibers have little nutritional value, the body still needs
them because they do act as an intestinal broom. That is the reason that
we do need whole raw food in addition to juices.
Vegetables juices are the builders
and regenerators of the body and fruit juices, when ripe, are the cleansers
of the body. It amazes me time and time again that all the different fruits
and vegetables are good for something else in the body. Celery is very
good for the nervous system, lettuce nourishes the nervous and muscular
structures of the body while spinach nourishes the entire digestive system.
Apples stimulate the lower intestines and their juice is very helpful
in the case of fever or inflammation, grapes stimulate the secretion of
digestive juices and pears have a strong diuretic action and are valuable
general cleaners of the body. Like Hippocrates said: ”Let your food
be your medicine and your medicine your food”.
The three food classes: vegetables,
fruits and fatty foods are all equally important. For Gilly I make sure
that the ratio is 40% vegetables, 20% fruits and 40% fats. Fats play a
very important role in the human body and especially children need more
fat in their diet than adults do. I know that we are all afraid of the
fatty acid metabolism disorder but I have found no problem with Gilly
at all. I do recommend to take it easy with fat however and to slowly
build up the dosage. Good sources of fat are the avocado, olive oil and
coconut oil. I always blend a little avocado in the blender along with
juices to give Gilly the fibers that her body needs and that way she gets
a nice satisfactory feeling. Coconut oil is easy to digest and very good
for people who have trouble digesting fats. Furthermore, it contains anti-microbial,
anti-bacterial and anti-fungal properties. A very good source to fight
the yeast problems that so many of our children display.
Proteins are made up of amino acids and every living organism is made
up out of protein. Gilly gets her protein from the raw produce. There
are different proteins in different produce and therefore the amino acids
are also different. That is why it is important to use a wide variety
of fruits and vegetables. That way we can make sure that the body doesn’t
get deficient in certain vitamins and minerals. Whole, complete
proteins are found in animal sources, and the human body isn’t able
to digest this easily. Peas are legumes and they don’t contain complete
proteins. Only when they are fresh and raw the human body is able to handle
Throughout all of this it is of the utmost importance to keep the colon
as clean as possible. There is the saying: “illness starts in the
colon”, and indeed it does. I have found this to be true with Gilly
and at three weeks old she ended up in the emergency room of our local
hospital with a severe bout of constipation. If the colon is not kept
clean, nutritional elements present in the food can not be assimilated
by the body. In fact, the food rots and the body becomes toxic and displays
itself as disease.
Because Gilly is still so young I
can clean her colon by means of a bag-enema. I fill the bag with warm,
distilled water and wash her colon and the crust that has accumulated
on the walls of the colon. Every time I add a little more water until
the enema runs clear.
I must warn here against the use of laxatives, however helpful they may
seem at the time. Laxatives interfere with the peristaltic motion of the
colon and one becomes dependent upon them to have a bowel movement. The
reason that a laxative causes a bowel movement is because they contain
irritants and the colon wants these out.
Nature works in a wonderful exact
way, when you just take the time to look at it. God has created everything
perfect, it is man who messed up in the thought to make it better My
dear friend, Kathie, took the time and the patience to make me see this
and she is an invaluable source for the road that Gilly is on now I thank
God that He has opened up my eyes and heart to know that it is all true.
For further reading I highly recommend the books written by Dr. Norman
Walker and David Wolfe. They are very helpful in my understanding of living,