My name is Logan Harman,
but most people call me Logibear. I was diagnosed with spinal
muscular atrophy type 1. It is the #1 genetic killer of children
under the age of 2. My parents wouldn't listen to doctors and they
have fought to keep me here. I am the only child of Chris and Shelle
Harman. I am totally spoiled and deserve every bit of it.
SMA as it is commonly known is a very fatal disease, but it can be contained. Currently, there is no treatment or cure for SMA. We are praying that be changed soon. Through hard work, determination, donations and the dedication of families and doctors, there are currently three avenues of cure and two for treatment of SMA. Hopefully, within 5 years SMA will no longer be an incurable disease. I use a suction machine for secretions, a feeding tube for eating, a BiPAP for sleeping and when I'm sick, a pulse/ox to monitor my sats in case I choke and a wheelchair. Even though I can't sit up, eat by mouth, hold my head up, use my arms, walk, or even crawl, I'm the happiest child you will ever meet. SMA doesn't affect the brain, therefore I am totally smart and highly intelligent. More so than average is what statistics say. Don't feel sorry for me or my parents. We love each other and God put me here for a reason, so be happy for us. We're in good hands!