Spinal Muscular Atrophy has many victims. Speaking for Type I, the odds are not good. Depending on your choice to use permanent ventilation or not when the time comes, there is a wide variety of life-spans. Some survive years past the 2 years generally given to SMA Type I children. Most live to be a year old or so, though that age is increasingly going up. Some, like Sidney, never have a chance at life. SMA is the number one genetic killer of children under the age of two. Two children per day are born with SMA and one out of every 40 people is a carrier of the gene. SMA is twice as common as ALS. There is No Cure. Please support fundraising efforts in the hope of finding a cure for this disease.
For more information on SMA, please visit www.smasupport.com www.our-sma-angels.com or www.smafoundation.org.
Following is a list of places to which you may donate to fight SMA:
Miracle for Madison
Families of SMA
Muscular Dystrophy Association
Thank you for supporting us in fighting SMA!