Favorite Links

Spinal Muscular Atrophy (SMA)/ MDA Ask the Experts
Lots of pages of previous questions that pertain to all kinds of different circumstances involved with SMA.

Families of Spinal Muscular Atrophy

SMA Angels/our kids

Alyssa's Cards

Dr. Bach's Website

The University Hospital's Website

The University Hospital's ventilation site

Center for Ventilator Management Alternatives

 UMDNJ-New Jersey Medical

Evaluation & Management of Neuromuscular Disease

Ventilator Alternatives 

  Preventive Techniques in Dealing with Respiratory Tract Infections

 In-Exsufflators 101 A Practical Guide to the Use of an In-Exsufflator

Spinal Muscular Atrophy Type 1: A Noninvasive Respiratory Management Approach

Prevention of Pulmonary Morbidity for Patients with Neuromuscular Disease 

Infants and Small Children: SMA Types 1 and 2 and Congenital Myopathies

Air Stacking

Breathing Latin

Full bibliography articles by Dr. Bach

 Breathing and Ventilation

Every Breath You Take - 1

 Every Breath You Take - 2

Preventive Techniques in Dealing with Respiratory Tract Infections by Dr. John Bach

SMA Type I - a non-invasive respiratory  approach - abstract of article by Dr. John Bach, April 2000 - Full text available at Ventilation Studies

Chest Physiotherapy

To Trach or Not to Trach

 IPV - A Well Kept Secret

In-Exsufflators 101 A Practical Guide to the Use of an In-Exsufflator

More Information about Dr. John Bach

Respiratory and Pulmonary Links Collection

General and Miscellaneous

Welcome to Our Home  - information for home health care professionals (and families too)

FSMA Equipment Pool List

MITEE Message Board: Medical Issues, Therapy, Equipment and Education

Guide to the Evaluation and Management of Neuromuscular Disease, by Dr. John Bach (book)

Home Healthcare for the Chronically Ill or Disabled Child, by Monica Loose Jones (book)

When your Child is Technology Assisted

FSMA Medical Advisory Board

Physical and Occupational Therapy Management for the Child with SMA Type I

Physical Therapy for Spinal Muscular Atrophy - a brief overview

Function Changes in Spinal Muscular Atrophy II and III 

Giving Thanks (story about scoliosis surgery)

Nutrition

Nutrition: A New Understanding 

Swallowing or Chewing Problems

Sleep

Now I Lay Me Down to Sleep

Folic Acid & Vitamin B12 research

Understanding Muscle Metabolism in SMA

Research of Sodium Butyrate and SMA

Free Wheelchairs?

Swallowing and chewing problems

Stem Cells Jump First Hurdle

Foods and What they can do for you

Carrier Testing now available for SMA

Home  Directory

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