Favorite Links
Spinal
Muscular
Atrophy
(SMA)/
MDA
Ask
the
Experts
Lots
of
pages
of
previous
questions
that
pertain
to
all
kinds
of
different
circumstances
involved
with
SMA.
Families of Spinal Muscular Atrophy
The University Hospital's Website
The University Hospital's ventilation site
Center for Ventilator Management Alternatives
Evaluation & Management of Neuromuscular Disease
Preventive Techniques in Dealing with Respiratory Tract Infections
In-Exsufflators 101 – A Practical Guide to the Use of an In-Exsufflator
Spinal Muscular Atrophy Type 1: A Noninvasive Respiratory Management Approach
Prevention of Pulmonary Morbidity for Patients with Neuromuscular Disease
Infants and Small Children: SMA Types 1 and 2 and Congenital Myopathies
Full bibliography articles by Dr. Bach
Breathing and Ventilation
Preventive Techniques in Dealing with Respiratory Tract Infections by Dr. John Bach
SMA Type I - a non-invasive respiratory approach - abstract of article by Dr. John Bach, April 2000 - Full text available at Ventilation Studies
In-Exsufflators 101 – A Practical Guide to the Use of an In-Exsufflator
More Information about Dr. John Bach
Respiratory and Pulmonary Links Collection
General and Miscellaneous
Welcome to Our Home - information for home health care professionals (and families too)
MITEE Message Board: Medical Issues, Therapy, Equipment and Education
Guide to the Evaluation and Management of Neuromuscular Disease, by Dr. John Bach (book)
Home Healthcare for the Chronically Ill or Disabled Child, by Monica Loose Jones (book)
When your Child is Technology Assisted
Physical and Occupational Therapy Management for the Child with SMA Type I
Physical Therapy for Spinal Muscular Atrophy - a brief overview
Function Changes in Spinal Muscular Atrophy II and III
Giving Thanks (story about scoliosis surgery)
Nutrition
Nutrition: A New Understanding
Swallowing or Chewing Problems
Sleep
Folic Acid & Vitamin B12 research
Understanding Muscle Metabolism in SMA
Research of Sodium Butyrate and SMA
Swallowing and chewing problems
Foods and What they can do for you
Carrier Testing now available for SMA