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Glittery texts by bigoo.ws

You're Listening to "All I Want to Do" by Sugarland

Lilypie 5th Birthday Ticker

My name is Elizabeth Lee Hallam.  I was born September 29, 2003.  My parents are Christen Huette and Brandon Hallam.  My grandparents are Herb & Jeanna Huette, and  My Great-Grandparents are Homer and Rozalind Reed, and the late Bobby J. and Barbara Hurt, and Milford and Janet Noel.

I was diagnosed with SMA (Spinal Muscular Atrophy) on 5-11-2004.  I have Type 1.

Spinal Muscular Atrophy is the #1 genetic killer of children under age two.  It is a group of inherited and sometimes fatal diseases that destroys the nerves controlling voluntary movement.  This affects crawling, walking, head and neck control, and even swallowing.

One in 6,000 babies is afflicted with SMA, and 50% of those diagnosed before age 2 will die before their first birthday.

One in 40 people are carriers of the SMA gene.

SMA can strike anyone of any age or ethnicity.

I have been  flying to California  since June of 2004 to Stanford University with Mommy and my grandmother Jeanna to see if they can help stop the progression of my disease and help children that are born with the same disease.  

Dr. Ching Wang has done research on SMA and is helping me get stronger with my legs and head control.  I am going to help Dr. Ching Wang get FDA approval  for his therapy to fight this deadly disease.

I am a smart, beautiful child and I am special because I am going to help fight SMA by helping with the clinical trials, to save children like me.

I think I was sent here from God to special people who will care for me, love me, and fight to cure me.

Please donate to my mission in this life, which is saving lives.

NOW AVAILABLE !

from 
 
SMA AWARENESS WRISTBANDS 
 

Wristbands are now available for $2.00 USD (aprox $2.50 CDN) 

 To order yours please email  Annette Reed at miracleformadison1@mac.com

 

 

Please donate to Elizabeth's mission and all the other SMA Angels. Laura Stants and her Web Site "SMA SUPPORT" has helped Elizabeth and us so much with friendship, information (when the doctors here could not), equipment to help Elizabeth survive and a lot of help making of this Web site for Elizabeth. Laura also got us to the right doctors. So please help Laura help others like us who thought there was nothing we could do to fight SMA when indeed with Laura's help we found out there are things we can do. Please donate to SMA Support.

Jeanna Huette

 

 


Supported by SMA Support

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