Elizabeth's Guestbook!

 


Name: MOMMY
Email: christenbran@aol.com
Date: November 28, 2006

Comments

Hey there my little princess. I love you very much. I had so much fun taking you to see Santa. I know that you were a good girl this year, and you will get the Dora stuff that you had asked for.I feel really bad that you got sick the day after you seen him. I feel so bad I had to go to work tonight with you still being sick. I am very proud of you for letting Kay give you and Dora a RSV shot. Dr. Hough was so proud of how well you are doing he had his wife come in and meet you today. I love you so much. MOMMY


Name: Jana and Kyle Gundy
Email: mjtgundy@sbcglobal.net
Date: November 26, 2006

Comments

Hi Lizzy! Tell your nana that she's a great lady and we love her! Kyle is doing so much better on his new food. His tummy really likes it! Kyle is almost old enough for his make a wish. We're wondering what we should do. Kyle doesn't speak yet, so it's really hard.


Name: Kelly Takacs
Email: kellyandjasontakacs@yahoo.com
Date: November 26, 2006

Comments

Hi Elizabeth! We stopped by your website so Ethan could look at all the beautiful pictures of you! :) He thinks you are VERY pretty! Love, Kelly Ethan's mommy www.our-sma-angels.com/ethan


Name: Neeka and Mathieu
Email: momofangeldevils@aol.com
Date: November 21, 2006

Comments

Hi lizzie, Mathieu and I wanted to say hi and send our love!!


Name: the spade family
Email: spadegrenades@yahoo.com
Date: November 19, 2006

Comments

thank you for letting us know about the web site. it will help me out a lot on my revised paper. Linda


Name: Nana
Email:
Date: November 18, 2006

Comments

Princess: Its getting to be the holidays and its going to be so much fun for you!! I can not wait. You are a very special little girl and I love you sooo much.


Name: Missy
Email: ianpaul2@yahoo.com
Date: November 11, 2006

Comments

I sure hope you are feeling better Christen and Jeana! I am so sorry about all the bad luck. I tried to email you tonight, but it wouldn't go through. I guess I am only allowed one email to go tonight.lol Anyways I will try to call you all tomorrow, well today, but later. We just got in, and I am beat. Many hugs and prayers for you guys, and that Lizzy stays doing so well health wise!!! Yes she is one amazing little girl, and we sure missed seeing her this trip, and you guys too! Hugs


Name: Aunt Rita
Email: ritaahoch@aol.com
Date: November 08, 2006

Comments

Hi Lizzy! So glad that I finally got to meet my extra special birthday present. Uncle Jim & Cuiser & I were so glad that you were able to come & spend time with us in Florida during your Make A Wish Trip. We were so glad you liked our presents. Had so much fun going to MGM studios with you too Elizabeth. I noticed how quick you were to captivate anyone who looked into your sparkling eyes & smile. You have such a bright aura around you that anyone who spent time with you would forget the world for awhile & become attracted to your contagious smile! Thank you for sharing your smile with us! Can't wait to hear your cute giggle on the phone. Miss you so much! Love, hugs, & a whole bunch of big smiles, Aunt Rita,Uncle Jim & Cruiser too!


Name: Donna Miracle
Email: dmiracle@clarian.org
Date: November 07, 2006

Comments

Elizabeth: Your website is a wonderful resource of information and hope. Thank you for the opportunity to share in your life. Indiana Mothers' Milk Bank


Name: Angie
Email: angela.l.barrick@osfhealthcare.org
Date: November 06, 2006

Comments

Hi Lizzy Your make a wish trip looked like so much fun. I am jealous. Donna and I thought you looked like you had such a great time with everyone. Take care and we will see you soon. Angie at Dr Blume's office


Name: MJ
Email: TWEETYROLL88@aol.com
Date: November 05, 2006

Comments

Hi Miss Lizzy, I loved looking at all your pictures from your Make-A-Wish trip! It looks like you had a great time! Tell Nana to give lots of hugs and kisses from me. Love you, MJ


Name: Ian
Email: ianpaul2@yahoo.com
Date: November 04, 2006

Comments

Hi Lizzy! I really like seeing your photo's from make a wish. Looks like you had a real fun time. I did too on my make a wish trip. I can't wait to see you next week. Love Ian


Name: Aunt Mindy
Email:
Date: October 30, 2006

Comments

Hey Elizabeth-thank you so much for stopping by KY and seeing us on your way home. I and the kids enjoyed heving you. Adam tried so hard to give you the right toy. I know you like Alli's American Girl doll. I will try and work on that ! Thank you letting me color your nails. You look so pretty! I miss you sweetie! Luv ya!


Name: debbie wiechman
Email: mazda6@mtco.com
Date: October 26, 2006

Comments

hi elizabeth,i saw your mommy awhile ago..she told me not to cry when i looked at your new pictures..but i did..you are such a brave little girl..i cry because i think of all the stuggles just in your every day life..mommy said you are going to disney world..you all need a vacation..be safe little angel


Name: Amanda
Email: ANelson@gktw.org
Date: October 21, 2006

Comments

Welcome to Give Kids the World! I hope you have/had a wonderful stay! It was a joy showing you around your villa. Thank you sooo much for my bracelet. :)


Name: Colleen McCarthy O'Toole
Email: colleenatfsma@hotmail.com
Date: October 20, 2006

Comments

I LOVE looking at all of your beautiful photos Elizabeth! You sure are a cutie and you have the best Grandma in the world! I hope that you have a great time at Disney World. Sending hugs, Colleen


Name: Angie
Email: angela.l.barrick@osfhealthcare.org
Date: October 13, 2006

Comments

Hi Elizabeth Dr Blume and I hope you have a great time in Florida. You deserve it. Be a good girl and say Hi to Cinderella for me. Angie


Name: Jana and Kyle Gundy
Email: mjtgundy@sbcglobal.net
Date: October 11, 2006

Comments

Hi Princess! Kyle is watching Jonah a veggietales movie while mommy catches up on all of her "kids". How has your week been going? Kyle is doing well. It's going to be very cold tomorrow, so no outside time. I can't believe we're already back to that. Take Care!


Name: Aunt Mindy
Email:
Date: October 11, 2006

Comments

Hey sweetie! Wow the website is so you! Thanks for putting us in the photos. You are a special part of our lives. LOVE the photos of your birthday. Sorry we missed it! Sending off your present, hope you like it! love ya-Alli, Aaron, & Adam, too!


Name: Julieanne & Alyssa
Email: julieannebugeja@yahoo.com.au
Date: October 09, 2006

Comments

Hello Dearest elizabeth, what a beautiful website you have and such a beautiful little girl you are. I enjoy reading about your improvements and you really remind me of my little girl Alyssa who too has sma type 1-2. You are very precious and have lovely family who are caring, loving and kind. Love your aussie friends Julieanne and Alyssa XXXXX


Name: Robert Hoch
Email: rjhsolon@yahoo.com
Date: October 04, 2006

Comments

My brother's wife, Aunt Rita sent me an invitation to see her family. I am so happy she did, you all look so very nice. Thank you for all your hard work making this site and may you all have a very wonderful day every day. Bob


Name: jana and kyle gundy
Email: mjtgundy@sbcglobal.net
Date: October 03, 2006

Comments

Hi miss Lizzy! we're praying tonight for your trip tomorrow! we know God and your angels will be taking care of you and your grandma. Stay strong and sassy sweet girl! Hey, how come Kyle isn't on your friends page? he's jealous you know! love jana and kyle gundy, sma type 1, now 23 months!


Name: Andrea Smith
Email: kpax*at*charter*dot*net
Date: October 03, 2006

Comments

Just stopping by to check out your beautiful new website! Many hugs from the entire Smith family! :) Andrea


Name: Liz, Kalair, and family
Email: kalairsmom@yahoo.com
Date: October 03, 2006

Comments

Hi Miss Elizabeth! We just thought we'd try to sign your gb and let you know how much we like your pretty, new site! We tried to write to you on your birthday, but it wouldn't go through. But if you are hearing this now I guess it worked, yay! Anyway, we see MJ's made even more pretty additions to your pages, and they look great! We love all your pictures, you're growing into such a beautiful, little lady! Well we just wanted to say hello, we'll send you some pics soon! (((HUGS)))


Name: Nicole Morici
Email: k.morici@mchsi.com
Date: October 03, 2006

Comments

Elizabeth, I got your website off of an SMA friend's site from Chicago. I thought I'd visit and cheer you and your mom on. Way to go! Lots of luck and love on your life! Nicole


Name: Missy and Ian
Email: ianpaul2@yahoo.com
Date: October 02, 2006

Comments

Oh Lizzy this is great! I love the changes that have been done to your guestbook, and think it is just perfect for you. I can't wait to see you in a couple of days. I am so excited, and Ian is too. Many hugs to you sweetie.


Name: Bernie and Heather
Email: bmcko@ns.sympatico.ca
Date: October 01, 2006

Comments

Hi there Elizabeth and her wonderful family. Just couldn't resist signing your new guest book while in her. AWESOME party and way to go Elizabeth 3 years and many, many more to go. Blessings and keep up the great work. lOVE AND HUGS from Nova Scotia


Name: Linda Rosas
Email: courtneysgrandma41303@hotmail.com
Date: September 30, 2006

Comments

Hope you had fun on your birthday pretty girl! I love your new princess site.


Name: Wendy Persinger
Email: wuchtorff@hotmail.com
Date: September 30, 2006

Comments

Happy Birthday to you. Happy Birthday to you! Happy Birthday, sweet Lizzy. Happy Birthday to you!!! Hope you had a fun birthday, and got everything you wanted. Enjoy your day, special 3 year-old girl! Love, Wendy Persinger and family


Name: Nana
Email:
Date: September 29, 2006

Comments

Happy Birthday!! Happy Birthday to you today!! Love you with all my heart and soul!! Nana


Name: The Mac Pack
Email: macintyre@powergate.ca
Date: September 29, 2006

Comments

WOW, Happy Birthday Miss Elizabeth! What a wonderful day we wish you. Every day past that 2-year mark that we are all given is a blessing and now you are at the 3-year mark. Hooray! Have a great day today and a healthy, fun-filled year ahead. Sounds like it will start off just perfectly for a princess like you with your MAW trip to Disney! Sending you all our love,


Name: Tracy Skylar and Daniel
Email: ses6300@aol.com
Date: September 29, 2006

Comments

HAPPY BIRTHDAY ELIZABETH!!!!! HOPE YOU HAVE A GREAT DAY SWEETIE. LOTA OF HUGS AND KISSES FROM PA!


Name: "Aunt Linny"
Email: colesquilts@hotmail.com
Date: September 29, 2006

Comments

Happy 3rd Birthday Elizabeth!!!! I hope you are having a great time today!! I just love seeing your smiling face on all of your pictures. Love, "Aunt Linny"


Name: Debby St. Onge
Email: stonge@digisys.net
Date: September 29, 2006

Comments

Happy, Happy Birthday Elizabeth! Hope you have a true princess kind of day today. Three years old is awesome! Veronica loves your wallpaper on your guestbook! Debby & Veronica


Name: Dawn and Casey
Email: ddaws@cfl.rr.com
Date: September 29, 2006

Comments

HAPPY BIRTHDAY! 3 years old! Way to go! I love your new website! You are going to have a blast at Disney! You will be the most beautiful princess there! Tell Nana to e mail us, we live so close to Disney! Hope you have a great DAy to day!


Name: MJ
Email: TWEETYROLL88@aol.com
Date: September 28, 2006

Comments

Hey Miss Lizzy, I love doing your website! Tell Nana she doesn't bother me, ok? Happy birthday to you (1.5 hours early), Happy birthday to you (1.5 hours early), Happy birthday dear Elizabeth, Happy birthday to you!!!!!!!!!!! Have a great day! love MJ


Name: The O'neills
Email: theoneills@our-sma-angels.com
Date: September 28, 2006

Comments

Lizzy! Happy birthday to a very beautiful, smart and sassy BIG girl! We'll be thinking of you and wishing we could get in on all the fun you're having! Sue, Gene, Casey and Colin


Name: Nana
Email: red54200@aol.com
Date: September 28, 2006

Comments

Miss Elizabeth you are going to be three years old tomorrow!! I just can believe it. You are my heart, my hope, my life and the most bravest, wonderful, happiest, sweetest,cutest, orneriest 3 year I know and love you so much!! Keep on fighting Lizzy!!! I love the updates to your web-site!! Its says you all over it!! It was time for an update since you are no longer a baby! You are a big girl now!!! Love you with every breath, Your Nana


Name: Kelly Takacs
Email: kellyandjasontakacs@yahoo.com
Date: September 28, 2006

Comments

Hi Lizzy!!! I love the updated website! It looks great! You are such a little sweetheart and I cannot believe you will be 3 years old tomorrow! You are an inspiration for my little Ethan! We love you! Love, Kelly mommy to Ethan, Type 1, 15 months old www.our-sma-angels.com/ethan


Name: Sophia Doebbert
Email: adoebbert@mn.rr.com
Date: September 27, 2006

Comments

Great updates to your site Elizabeth! I am looking forward to wishing you a SUPER third birthday on Friday! love, Sophia


Name: Charlie's Mom (Kim S)
Email: charlies-mom@our-sma-angels.com
Date: September 27, 2006

Comments

Lizzy -- so glad your gma finally updated the site! We can't believe your BIG Third BDAY is just a few days away. We love you pretty princess. Charlie and Lily send hugs (as do John and me). XOXO Charlie and Lily


Name: Ian
Email: ianpaul2@yahoo.com
Date: September 22, 2006

Comments

I hope to see you next month. I miss you so much. I think about you a lot. I can't wait to play with again. Many hugs and kisses. Love Ian.


Name: Princess Kalair Myrick and family
Email: kalairsmom@yahoo.com
Date: September 20, 2006

Comments

Miss Elizabeth!!! Thanks for signing my guestbook, it was so nice to hear from you and your grandma! We can't believe how BIG you have gotten, WHERE did the time go??? Tell your nana that we want to see lots of new updates on your site too! (Last "update" we saw was from 2004. Hint, hint!) MJ and mommy are still working on my site... Are you guys going to be at the FSMA conference next year? We are going to try to make it. It is so close to you all, we hope to see you there. We are glad you are doing so well, we think of you and your family often too. We just wanted to let you know we stopped by and enjoyed looking at all your pictures (but we always want to see more!). Arturo's daddy, Tim, has fallen in love with you from seeing your pictures. He thinks you are a very pretty princess and he especially likes the pic of you with all your puppies. He has a pit bull named Shorty who is his baby and he said he will take a picture of her with Arturo and send it to you, okay? Tell your grandma we are in the middle of moving and the decent computer is already in our new house (we are not yet) so we will have tons of new pics to send her after we get settled in there. Thanks for thinking of us! (((HUGS))) from Kansas!!!


Name: Debbie Wiechman
Email: mazda6@mtco.com
Date: September 02, 2006

Comments

dear Elizabeth, everytime i think i am having a bad day, i think of you and what you and your family are going through. You see I know your mommy and grandma and your aunts..they all love you very much and they are good people who will always take care of you..good night little angel...


Name: Sandy GMA to Saria Clark
Email: clalands@pldi.net
Date: September 01, 2006

Comments

what a beautiful site, you certainly have the best behind you , Laura and Liz. you have a beautiful site. Sandy Clark GMA to Saria Clark sma 1 6/25/01 to 12/02/02


Name: Debbie Wiechman
Email: mazda6@mtco.com
Date: August 31, 2006

Comments

Elizabeth,I was sent your newspaper story-you are famous..I think of you and your family everyday,you are in my prayer...I think of how hard it is for all the people who love you to watch you go through this..just like arielle..I think you are adorable and one of the strongest little girls i know...you are special..and I adore you


Name: Dawn and Casey Daws
Email: ddaws@cfl.rr.com
Date: August 30, 2006

Comments

Hi Lizzy! We stopped in to check on you! It has been a while bit we are always praying for all of our SMA buddies. You look so great. I read your article. It was wonderful! Mommy and grandma love you so much and are doing such a great job! Of course they have the best girl in the world to work with! Keep on doing great! Hugs from Casey and I!


Name: arielle harpenau
Email: goobergrape83@Hotmail.com
Date: August 25, 2006

Comments

shes absolutely beautiful...if you guys ever need anything and i mean anything...let me know...im just down the street....lots and hugs and kisses...im praying for you guys..<3


Name: Debbie Wiechman
Email: mazda6@mtco.com
Date: August 24, 2006

Comments

They say there are angels on earth. I feel like I saw one today on this site. Elizabeth, You and your family are in my thoughts and prayers-God bless you all.......


Name: Linda Rosas
Email: courtneysgrandma41303@hotmail.com
Date: August 24, 2006

Comments

Hi Elizabeth, I love this site as well. You are such a pretty Princess just like our Princess Courtney!Your story even sounds similar to Courtneys story. Talk to you all again real soon. Blessings coming your way. http://www.our-sma-angels.com/CourtneyBrooke/ http://www.tuesdayschild.homestead.com/tcCourtneyBR5/tcCourtneyBR5.html


Name: FELIX
Email: felix_raj@yahoo.com
Date: August 23, 2006

Comments

Dear Elizabeth, I am Felix, father of Justin, 3 months old. He has been suffering from respiratory problem. Doctor has done the Bronchoscopy and recommended for infant BiPAP / infant CPAP Justin needs infant BiPAP / infant CPAP immediately. Could you provide the following details : Infant BiPAP specifications (Pressure setting range) Brand name of the machine (respironics?) Where can I get it? What is the price? Kindly inform the details as early as possible All of you will be in our prayers. We pray for the very best for you Regards, FELIX (Father of Justin (3 months old) felix_raj@yahoo.com


Name: Charlie
Email: charlies-mom@our-sma-angels.com
Date: August 18, 2006

Comments

Hi Lizzy -- Just wanted to stop by and say howdy again... hugs - Charlie


Name: Ian
Email: ianpaul2@yahoo.com
Date: August 06, 2006

Comments

Hi Lizzy, I miss you a lot. It was nice playing with you. I hope we get to play together sometime again in C.A. I love you Lizzy, many hugs and kisses to you. Love, Ian


Name: Mykal Stephens
Email: michaladria2@netzero.net
Date: August 02, 2006

Comments

Keep plugging away kiddo. I,m pulling for ya:)


Name: Charlie's Mom (Kim S)
Email: charlies-mom@our-sma-angels.com
Date: July 31, 2006

Comments

Hi Lizzy! You look so great. Have a safe trip to Stanford this week. Charlie and Lily send hugs and love. XOXO Charlie, Lily, John & Kim www.our-sma-angels.com/charlie


Name: Nina
Email: fightingforlizzy@our-sma-angels.com
Date: July 29, 2006

Comments

Elizabeth you never stop amazing me!! You are growing so much!! You have such personality lately. You are doing all sorts of things we never thought you would be able to do. You are the MDA Ambassador for Central IL!! OH my gosh!! People are watching you and learning from you. We are getting the word out how to help other kids like you!! You are the light of my life and I thank God every night for you being a part of my life. Continue to grow ,learn and show people how wonderful you are!! Love you sweet-heart!! Your "Nina"


Name: MOM
Email: christenbran@aol.com
Date: July 28, 2006

Comments

Miss Elizabeth you looked so big in the new chair that you were fitted for. I had fun trying out the new potty chair with you today. I also enjoyed playing on the computer with you today. Love you a lot.


Name: Sandi Potempa
Email: slm721@prodigy.net
Date: July 27, 2006

Comments

Very nice & helpful web-site. My sister Tina told me about the link. My niece Allu was recently diagnosed with SMA too. We can only be strong & pray for these precious children that the cure will be here soon.


Name: Aunt Mindy
Email: mlflick3@hotmail.com
Date: July 24, 2006

Comments

Had a great time with you on grandma's b-day. Alli, Aaron, and even Adam just adored you. I am just amazed how happy and smart you are. and Your eyes-so big and full of life. Keep smiling sweetie!


Name: Reed Huete
Email:
Date: July 23, 2006

Comments

Elizabeth is very smart and funny. And she is my cousin.


Name: Amber Travis
Email: amber.travis@mchsi.com
Date: July 18, 2006

Comments

I hope that Elizabeth is enjoying the time when she gets to go outside and I wanted to let you all know that I am here for you whenever you need me love to you all. Gabriel & Jacob send thier love too


Name: Mommy
Email: christenbran@Aol.com
Date: July 17, 2006

Comments

Hi My little princess. You are getting so big. I love you so much. Hope you are not going to be stubborn for the MDA doctors and all the nurses tomorrow. You are going to be my little TV star. I am so excited for you that you are going to represent Central Illinois for the MDA(Jerry's Kids).


Name: heidi
Email: mikalahz_mama05@yahoomail.com
Date: June 26, 2006

Comments

i just wanna thank you for helping me and mikalah. elizabeth is just adorable


Name: Joleen Bolen
Email: joleenbolen@hotmail.com
Date: June 19, 2006

Comments

Elizabeth, May God bless you on your journey in helping find the cure sweetheart, You and your family are in my prayers


Name: Kristen Gill
Email: kristengill25@yahoo.com
Date: June 09, 2006

Comments

Hi Elizabeth! I thought I'd stop in and say hello to Ethan's favorite girlfriend. I think you and my nephew are two of the most adorable people I've ever met in my life---and you're two of the strongest, most determined I've ever met too. Your grandma and my sister talk a lot and I think your grandma is very nice...sounds like you have a lot of people who love and care about you sooo much....Keep up the good work sweetie and I'll stop back soon. Love, Kristen Ethan's Auntie


Name: Wendy Persinger
Email: wuchtorff@hotmail.com
Date: May 30, 2006

Comments

Hello Miss Elizabeth! Please tell your mommy that I have spent a good chunk of an evening on your websites, and boy, did I learn a lot! I am so glad that you have such a good mommy, and she is able to care for you AND put together all of this information for us 'SMA beginners'. Hope we get to meet you in person soon. My Autumn would love to have a big sister. Love, Wendy & Brian, parents to Autumn, SMA type II http://www.caringbridge/org/visit/autumn


Name: Helene
Email: az2stay5@msn.com
Date: May 11, 2006

Comments

Your story in so inspiring. Keep up the good work Elizabeth and you are in good hands. My son James Armstrong was diagnosed with sma1 on July 21,2005 he was 11months old then. He is 21 months old now. you can check out his web-site on the "our kids" page. Please e-mail me at the above e-mail address I was interested in clincial trials. I never got any response from this one e-mail address I had. God Bless all of you Helene Armstrong and family


Name: Casey and Dawn Daws
Email: ddaws@cfl.rr.com
Date: May 10, 2006

Comments

Hi Elizabeth! I keep seeing your picture on SMA Support and You look so beautiful! Like a princess! Keep smiling that beautiful smile that lights up the lives of your mom, grandma, papa and everyone who sees you! Hugs from Casey and Dawn Daws


Name: gregory weaver
Email: Gregoryw1@sbcglobal.net
Date: April 06, 2006

Comments

I found this site by accident while searching the net and your story has touched my heart. I have 2 small children 1 who is 3 years old (conner) and a 6 months old baby (zachary). Please know that you will be in our daily prayers and that i wish you the very best. May your days lay before you and may you live the very best and full life. I have not had the chance to meet you but i hope someday you can show the world that with belief and hard work and loving and caring parents anything can be overcome. You have my love and my best wishes little one may you have many years to come....


Name: MOMMY
Email: christenbran@aol.com
Date: March 28, 2006

Comments

Hi there my little princess. I love you so much. You are getting so big. I love to wake up and go to bed every night listening to that little voice of yours. When every I am in the worst mood all I have to do is look at your face or here your voice and you get me in a better mood. LOVE YOU LOTS MOM


Name: Megan & Taylor
Email: reckless_kitty_4_u@yahoo.com
Date: February 17, 2006

Comments

Hi Elizabeth, We just wanted to let you know you are in our heart. We wish the best for you to come over the years, and we hope that someday you can come out and play. We have a picture for you, love always aunt megan & cousin Taylor.


Name: Shelli Becker
Email: rabs.becker@mchsi.com
Date: February 13, 2006

Comments

Elizabeth is definitely a miracle. I am one of the fortunate ones to know Elizabeth personally. She is absolutely beautiful and loved by all that knows her. Christen, you are a good Mommy! Keep up the good work! Lots of Love! Shelli


Name: Amber
Email: jjt_gdt@yahoo.com
Date: February 12, 2006

Comments

LOVE TO YOU ALL PLEASE TAKE CARE AND KNOW THAT I'M HERE LOVE AMBER TRAVIS& FAMILY


Name: Daphne
Email: mrsfletch_8103@yahoo.com
Date: February 12, 2006

Comments


Name: Olga
Email: asma.olga@gmail.com
Date: February 10, 2006

Comments

Hello! I came across your website when I was looking for the word 'BiPAP' in Google. I am originally from Ukraine, and has been living and working in the UK for the last 2 years. So I am sitting here (I work for National Health Service) and key in some data, and there was this BiPAP word... I decided to check what it meant (I am not a doctor). And I found your website! I just want to say that I admire your strength and your wonderful children! May God help you in your fight and give you many more years together. My thoughts are with you!


Name: The MacIntyre's, a.k.a. Hayden's Family
Email: macintyre@powergate.ca
Date: February 08, 2006

Comments

Hi Elizabeth and Family, Still sending prayers for you and your Papa. We know your smile, Elizabeth, will give him all of the strength and encouragement he needs. Thanks for signing Hayden's guestbook (www.caringbridge.org/visit/haydenmac). All our love to you!


Name: Kelly Takacs
Email: kellyandjasontakacs@yahoo.com
Date: February 05, 2006

Comments

Hi Elizabeth! We miss talking to you! We're going to call you this week so we can say hi and see how you are doing. We hope your grandpa is feeling better too. Say hi to mommy and grandma! Love, Kelly, Jason, and Ethan (who sends a BIG kiss!) Takacs


Name: Hope Darby
Email:
Date: January 27, 2006

Comments

I think that it is cool that Elizabeth has a power chair and that she can use it. I hope that she is feeling well. love Hope


Name: Cassidy Ford
Email: Kandicas&yahoo.com
Date: January 27, 2006

Comments

I liked the website and I liked the pictures of elizabeth. I hope that they can find a cure for SMA


Name: Pamela Pickard
Email: ppickard@twcny.rr.com
Date: January 27, 2006

Comments

Hi, I'm Billy Spiegel's grama, here in Fulton, New York. Billy has Type 1 and lives with his mommy and daddy in Knoxville,Tn. That is so far away, for all of us. We visit whenever we can. Billy's birthday is March 7 and we will be traveling down. He is so excited! Grama and Grampa are coming! (so what about my birthday! Soo cute!) I just love these beautifully sweet pictures of Elizabeth! She is so precious! I will have to read more of her pages, but I do so hope the therapy for her is going well. For her, and all these wonderful children. Love to Elizabeth and your family, God's Blessings, Pamela


Name: Stephanie Miller
Email: StephanieLaneMiller@hotmail.com
Date: January 14, 2006

Comments

Hi Elizabeth! We are glad to hear you are feeling much better! We hope spring comes soon so you can zoom around outside in your powerchair. Love, Stephanie, Aaron and Aleena Hope Miller


Name: kelsey ohare
Email: kels87_spongebob@hotmail.com
Date: January 02, 2006

Comments

this is such a cute website. it really makes me think. your a great mom christen .. keep it up and dont forget to :)


Name: Prudencio
Email: pbesona@lpch.org
Date: December 20, 2005

Comments

Elizabeth Hallam and family, Have a Merry Christmas and Happy New Year. I hope to see you guys soon. Prudencio


Name: melanie
Email: melanie_ann1982@yahoo.com
Date: December 19, 2005

Comments

hey guys this is a very cute website and i enjoy looking at it I showed my aunt renee today and she wants me to send her the web address so she can purchase some stuff off it and let people in houston texas know about SMA. so i will let her know before she goes back home hugs and kisses mel


Name: Ruth Ann Henry
Email: spreadnatter@yahoo.com
Date: December 16, 2005

Comments

I read this. And you hold on to that little angel as we are praying for her. We used to live in Pontiac and we now live in Arkansas. I came across this out of the blue. Will have everyone down here to pray and have THE LORD to wrap HIS arms around her and keep her safe.. Thank-you for not giving up on our LORD as HE does do miracles. May he give you strength and guidance thru all of this.


Name: John
Email: servant_1953@yahoo.com
Date: December 16, 2005

Comments

I wish you and yours a wonderful Christmas! www.witnessing4jesus.org


Name: MOM
Email: christenbran@aol.com
Date: December 14, 2005

Comments

Hi there my sweet little girl. I love you so much. I hope you to start feeling better real soon.I am so sorry we haven't been able to spend much time together lately. LOVE MOM


Name: Kim
Email: dkgoodlove@earthlink.net
Date: December 14, 2005

Comments

I have been reading about Elizabeth since 8-16-05 the day my family found our that my 3 month old great-niece had SMA type 1. Hailey was with us for 5 months and 1 day she passed away on 10-18-05 one day after her 5 month birthday. She is our precious angel. Reading about Elizabeth gave us hope that Hailey would be with us longer than she was. But it was her time and now she is in heaven with no pain. I pray for a cure everyday. God bless you all.


Name: melanie and marie
Email: melanie_ann1982@yahoo.com
Date: November 29, 2005

Comments

hey elizabeth-- we just looked at your guestbook I love you and hope you are feeling great.. tell your mom to call me so i can come see you love aunt melanie and marie


Name: melanie and marie
Email: melanie
Date: November 29, 2005

Comments


Name: aunt tina
Email: momma_simpson81@yahoo.com
Date: November 17, 2005

Comments

hey there beautiful i just wanted to let you know that i love you and that i still thank of you everyday and that i have learned of your current trip to california and it is ggod to her that your doing good i am sooooooo proud of you keep up all of that good work ....hey and before you know it you will be as tall as your dad....ha ha lol anyway keep smiling and keep your head up your doing GREAT and i love you .... Aunt Tina Uncle Tony Garrett Payge Kaitlee Laine


Name: lana
Email: lmbuthe@sbcglobal.net
Date: November 09, 2005

Comments

This is a wonderful site, and elizabeth looks adorable! thank you for the info! The Buthe Family


Name: Nana
Email: red542000@aol.com
Date: November 08, 2005

Comments

Elizabeth you are so amazing and I love you very much!! I pray our trip goes well next week!!


Name: MOMMY
Email: christenbran@aol.com
Date: July 30, 2005

Comments

Hi there Lizzy.I am sorry that you haven't been feeling good. I think what Mary and Stephanie told Nana and I about the diet will help you feel a lot better. I love you from here to the moon and back. (I hope that everyone that looks at your site will sign your guestbook ) AND lets put some weight on


Name: Cliff and Cindy Schott
Email: ccs_shakey19@hotmail.com
Date: July 28, 2005

Comments

Hang In There Sweety


Name: Lakentra Evans
Email: Kentra21@hotmail.com
Date: July 23, 2005

Comments

Hello, My name is Lakentra Evans and I have SMA type 2, and first off I would like to say God Bless you in so many ways. The Lord has Bless me for 21 years of my life I've been here. I was diagnosed when i was 9 years old with SMA 2. And the doctors was stating to my parents they couldn't see why I lived pas two but only God hold answers like that. I really don't know that much on SMA; but I'm researching. Now that I'm 21 years old I want to research and talk to people that have the same disease that affect me. My disease is not getting any better but I do feel now it's getting worse. I see a doctor at the Muscular Tower every year and they tell me it's not getting any worse or better but I know how I feel. I have two children of my own and everyday I pay attention to them praying that they don't have to go through what I go through. But I want to Bless you and I will keep you and little Elizabeth in my prayers forever. GOD BLESS YOU AND YOUR FAMILY....


Name: Bill Tolbert
Email: tolbert@mchsi.com
Date: July 18, 2005

Comments

This past weekend I was at the home a good friend. They were discussing Elizabeth and Her battle with SMA. My family and I are on board to help sell the believe in miracles bracelets, so we made up flyers to post at my place of employment. and we mention Elizabeth to all are friends. May God bless you.


Name: Dale & Twyla Hertz
Email: tdhertz@famvid.com
Date: July 10, 2005

Comments

Our hearts go out to you all.


Name: MOMMY
Email: christenbran@aol.com
Date: July 05, 2005

Comments

hI THERE LIZ-BETH. I HAD SO MUCH FUN WITH YOU TONIGHT. I LOVE ALL THE COMMENTS YOU HAD TO SAY ABOUT THE FIREWORKS(WOW,WHAT'S THAT,AND MORE). I LOVE YOU SO MUCH. GOODNIGHT MY SWEET LITTLE GIRL.


Name: MOMMY
Email: christenbran@aol.com
Date: July 05, 2005

Comments

hI THERE LIZ-BETH. I HAD SO MUCH FUN WITH YOU TONIGHT. I LOVE ALL THE COMMENTS YOU HAD TO SAY ABOUT THE FIREWORKS(WOW,WHAT'S THAT,AND MORE). I LOVE YOU SO MUCH. GOODNIGHT MY SWEET LITTLE GIRL.


Name: Heather & Kaige
Email: motherlyisis@sbcglobal.net
Date: July 04, 2005

Comments

Looks great... Lizzy .. I hope you are doing well... you sure do look great!!! Kaige and I loved looking at your pictures Heather and Kaige Dunham Type 1 sma

Name: tammy and josh davis and family
Email: tammy_davis13@yahoo.com
Date: June 12, 2005

Comments

kristen i dint know about any of this i hope everything works out and goes great sorry to hear everything u and elizabeth have been through i know it is tough if u need anything please let me know


Name: jetseng
Email: jetseng@fukumaya.com
Date: June 10, 2005

Comments

Hi, Your daughter is so beautiful...as all the babies with SMA are! I can't believe that life can be so cruel...yet perhaps God is trying to teach us all something. For me, I have learnt through this website to never take things for granted anymore. I pray that all will go well for Elizabeth and that she will soon be well enough to travel. You are such a wonderful and courageous mother. Hopefully, a cure will soon be found for all the babies afflicted by this terrible disease.


Name: Aunt Mindy
Email:
Date: June 09, 2005

Comments

Just checking in on all the nEW PICTURES. The quilt is so beautiful. Sorry we didn't get to see you when we came to Pontiac. Maybe next time. You are always in our prayers and love looking at new pictures. Luv ya sweetie!


Name: Reed
Email:
Date: May 28, 2005

Comments

roses are red violets are blue i'm stuck with you like glue.


Name: Mom
Email: christenbran@aol.com
Date: May 28, 2005

Comments

Hi, Elizabeth I hope you start to feel better soon.. I know that it is no fun getting shot .. I love you so very much .. MOM


Name: Dr.Muge Maga
Email: muga@maga.com
Date: May 26, 2005

Comments

Love you baby.


Name: JULIET WILLIAMS
Email: dndlobban@aol.com
Date: May 16, 2005

Comments

You are truely a blessing, i pray that God will continue to bless you with his loving grace. You are a beautiful baby and have a graceful smile, keep on smiling boo.......... I am a mother of four beautiful children which two them are diagnose with sma type 1. They are blessed just like u. They both are on a ventilator,feeding tubes etc. but they are doing great. I would love to hear that your dr. finds a cure for you and everyone that is diagnose with sma. Stay BLESSED, love juliet


Name: Kathy
Email: kathypop1011@yahoo.com
Date: May 16, 2005

Comments

Brandon and Christen, I know this is hard on you and I really know how Grandma is handling it. Stand strong. I know you guys are doing an awesome job. Sorry to hear she's been so sick lately. Hope everthing is getting better. We will continue to keep her in our prayers. Thanks for the updates! Awesome site!!!!.....Kathy


Name: Aunt Dawn
Email: jcotter@mchsi.com
Date: May 10, 2005

Comments

Hello Lizzy, I am so happy you are doing so well. I love your little spirit. Caitlyn says you are her baby and she is going to take you home and keep you. You are always in my prayers and I love you. Aunt Dawn


Name: Mom
Email: christenbran@aol.com
Date: May 09, 2005

Comments

Hello to my little sweethart. I had so much fun playing with you today. The most fun thing of the day was when you were hugging and kissing me. You made this Mother's Day so wonderful . Love ya MOM


Name: Myrna Huette
Email: tanjidec13@yahoo.com
Date: May 04, 2005

Comments

HI THERE SWEETIE, JUST THOUGHT I'LD CHECK IN ON YOU, I HAVEN'T SEEN YOU OR HEARD ANYTHING FOR A WHILE, THIS SITE IS VERY INFORMATIVE. YOUR UNCLE QUENTIN AND I LOVE YOU SO MUCH. HOPE TO SEE YOU SOON. AUNT MYRNA AND UNCLE QUENTIN


Name: Stephanie Miller
Email: stephanielanemiller@hotmail.com
Date: April 30, 2005

Comments

Hi Elizabeth, We hope you are feeling better real soon. Aleena sends her love and hugs. Love, Aaron, Stephanie and Aleena Miller


Name: ashley
Email: sexy_girl_132002@yahoo.com
Date: April 30, 2005

Comments

i hope ur doing well


Name: Diane Grisso
Email: griss1ed@cmich.edu
Date: April 25, 2005

Comments

Please know that all of our SMA angels are watching over you.


Name: Joan-marie and Kenny Lockwood
Email: sky_35_99@hotmail.com
Date: April 23, 2005

Comments

Elizabeth and family- we are always thinking about you!! You guys are doing an amazing job.. Christen you are so young and dealing with this so well.. we love you!!


Name: amanda lockwood
Email: lockhead@hotmail.com
Date: April 23, 2005

Comments

elizabeth- you are a very pretty little girl!!! always remember that Chloe love you!!!


Name: Annette aka Katelyns nana
Email: katelynsnana@nc.rr.com
Date: April 22, 2005

Comments

Love your page...it is so well laid out. Hope Elizabeth is doing good. Give her a hug for Katelyn and I.


Name: Angela- www.caringbridge.org/ma/heathergrace
Email: AlisonHeathersMama@gmail.com
Date: April 22, 2005

Comments

Elizabeth is a beautiful girl. She is in our thoughts and prayers. www.caringbridge.org/ma/heathergrace


Name: JONNY Maga
Email: jonnyjustcome@maga.com
Date: April 22, 2005

Comments

Nice Site.


Name: Jacqueline
Email:
Date: April 21, 2005

Comments


Name: melanie lockwood
Email: mel_chris01@yahoo.com
Date: April 17, 2005

Comments

hi princess i love ya love aunt mel


Name: Heather & Russ & Kaige (stanford study)
Email: Motherlyisis@aol.com
Date: April 07, 2005

Comments

Hello, I came across your website and to find out you are also on the study at Stanford. I would love to talk to you. Our son is KAIGE he is a type 1 and was the first one on the study for DR.WANG. IF you have the time I would love to talk to you. I am just now learning of this AA diet. If you have more info PLEASE PLEASE share.Kaige is almost over with the open label part of the study and we (Dr.WANG and ourselves) are looking to the next step..maybe adding something to the hydroxy. E-mail me if you can. Thanks a bunch. I know your Elizabeth is doing great.And I am so happy for that. Tell her Kaige says keep up the GREAT work he sends his love along with my self and my family.I look forward to your e-mail


Name: SMa
Email:
Date: April 06, 2005

Comments

I hope elizabeth gets beter...i have sma type 2/3 and i am about 11...im wishin all the best for her


Name: Aunt Jessie
Email: jessabugg82@aol.com
Date: March 31, 2005

Comments

Hi Lizzie! I am so proud of you and I am glad you are home from the hospital now. You gave us all a scare, but you are such a fighter that you pulled through it. Loves and huggs and all the kisses, Aunt Jessie


Name: Elizabeth's Nina
Email:
Date: March 26, 2005

Comments

Elizabeth you are my heart. I hope and pray that you will get strong again and show these doctors just how strong you are! You are a fighter my girl and I hope you continue to fight. You have been through a hard time again and we all have learned from this ordeal what not to put up with from arrogant doctors who think they know you better than us!! You showed them didnt you baby girl!! You are one tough little cookie full of love. Keep shining Elizabeth you are my angel and my love!


Name: Deb Hallam
Email: sweet_ldy41@yahoo.com
Date: March 24, 2005

Comments

Hello sweet girl! I am so glad to hear that you are back home. We have missed you so very much. The weather is getting warmer now, I pray that will help you stay healthy.You are the sweetist, bravest little Angel! All our LOVE! Gramma, Grampa, Meg, Tricia,Jennifer


Name: Deb Hallam
Email: sweet_ldy41@yahoo.com
Date: March 24, 2005

Comments

Hello sweet girl! I am so glad to hear that you are back home. We have missed you so very much. The weather is getting warmer now, I pray that will help you stay healty.You are the sweetist, bravest little Angel! All our LOVE! Gramma, Grampa, Meg, Tricia,Jennifer


Name: MOM
Email: christenbran@aol.com
Date: March 15, 2005

Comments

Hey there our little sweet girl. I just want you to get better..love ya MOM and DAD


Name: Deb Hallam
Email: sweet_ldy41@yahoo.com
Date: March 14, 2005

Comments

Really missing you LIzbeth! Hope you are doing well in Wisconsin! Please come home to us real soon!!!! ALL MY LOVE, Grandma


Name: Tina - Hayden and Lauren's mom
Email: tina.macintyre@sympatico.ca
Date: March 11, 2005

Comments

Elizabeth, we're out here praying hard for you. Hope you are doing better. Look forward to good news!


Name: hope darby
Email:
Date: March 10, 2005

Comments

i think this is so sad i wish there was something i could do to help but there is not so all i can do is pray for all the children with this terible disease AND HOPE THAT THEY FIND A CURE QUICK i also think this is a nice website


Name: andrew hallam
Email: darklydevoted@yahoo.com
Date: March 10, 2005

Comments


Name: Cheri
Email: cacareyfulton@fuse.net
Date: March 09, 2005

Comments

Hello, I am a friend of your aunt Mindy's from Kentucky. I had never heard of SMA until I met Mindy. She told me about your site and I have been reading your story. What a brave, strong and beautiful little girl you are. I wish you the best of luck and will pray for you. Love and Prayers.


Name: Charlie and Kim (Lily too)
Email: charlies-mom@our-sma-angels.com
Date: March 09, 2005

Comments

We hear you are in the hospital. We send you loads of get well hugs and wishes. blessings and love - Charlie, Kim & Lily


Name: Charlie, Kim, Lily and John
Email: charlies-mom@our-sma-angels.com
Date: March 04, 2005

Comments

elizabeth -- we hear you are under the weather. we have you wraped in lots of prayers. get well soon. hugs and kisses - charlie, kim & lily


Name: Debbie Moser
Email: dmoser2003@houston.rr.com
Date: February 26, 2005

Comments

Hi, I found your site from reading my cousins Kims site on Charlie. I will pray for Elizabeth & you. It is so sad that the airline & hospital are not more informed on SMA to have helped you out. Elizabeth is a beautiful liitle girl. Sincerely, Debbie Moser


Name: Jennifer
Email: millertime31560@yahoo.com
Date: February 24, 2005

Comments

Love your website.


Name: Charlie and Kim (Lily too)
Email: charlies-mom@oursmaangels.com
Date: February 24, 2005

Comments

Thank you for letting us know about your updates. I like the memorial you put on for Taleah and Jacob. Hugs from all of us


Name: LauraJ
Email: lsoucy@primus.ca
Date: February 24, 2005

Comments

Hello Beautiful! I came by through Jacob's site. And I wanted to read about this pretty little girl and pretty you are! I hope you get rid of all them nasty bugs. Stay strong and fight sweetie! Big hugs and kisses from Canada. http://www.caringbridge.org/canada/aaron


Name: JILL MCCULLOH
Email: harleyridingfd@yahoo.com
Date: February 24, 2005

Comments

I have been thinking of Elizabeth and wishing you all well!!! Keep fighting!!! Love Jill


Name: Vincent Lennon
Email: vincent.lennon@it-tallaght.ie
Date: February 07, 2005

Comments

You are a very special person, surrounded by very loving and caring people , who in turn have learned so much about themselves through you ..... " ta tu go h-alainn" you are beautiful our prayers are with you and your family


Name: Aunt Mindy
Email:
Date: February 04, 2005

Comments

Hello, I just can't tell you how impressed I am. Your determination to show the Dr.s in Chicago about Elizabeth's condition and sticking to your guns is truly inspirational. Every challenge had made this whole family stronger. I want to thank Christen for keeping us updated with Jan. events. Alli, Aaron, and even Adam pray every night for you. We love you!!!!!!!!!!!


Name: calib baxter
Email: absolutesound01@yahoo.com
Date: February 01, 2005

Comments

hey little bit its uncle kay kay i just wrote to tell you that you are a very special baby girl and i love you tremendously. when i see you smile it brightens my whole day and all the rest of the world doesn't matter for that second in time love ya tons kiss kiss hug hug until i see you again love uncle kay kay ps stinky aunt dana loves you to


Name: Joanne Forstall
Email: BridgeMar1@aol.com
Date: January 28, 2005

Comments

I sure am glad that you are home safe and sound now little one! Joanne


Name: GMA Sandy to Saria Clark
Email: clalands@pldi.net
Date: January 28, 2005

Comments

I LOVE Elizabeth's site. You guys are doing a "great job" with her. Give her Hugs from SMA Family in Oklahoma, USA!!


Name: Bernie n Heather
Email: mcko@ns.sympatico.ca
Date: January 19, 2005

Comments

Hi there: Just dropping by to see if there are any updates on the wee angel. Still praying and hope everything's coming around. God bless hugs from N.S.


Name: Destiny Hope
Email: adragonfly99@aol.com
Date: January 15, 2005

Comments

Love you and so happy to hear you are getting better . Keep them Doctors on their toes .


Name: Kim and Charlie
Email: ksykora@sbcglobal.net
Date: January 10, 2005

Comments

Elizabeth -- we are glad to hear you are getting better and that you are teaching more people on the best way to care for you! Keep up the great work! Hugs - Charlie, Lily and Kim


Name: Ashley & Destiny Hope
Email: adragonfly99@aol.com
Date: January 08, 2005

Comments

We are praying for you sweet Princess . We hope that you are soon better . We have lit a candle with for you today . We love you !! Butterfly Kisses , Ashley & Destiny Hope


Name: Karen - Mom to Connor type 1 almost 3 yrs
Email: threereillyboys2002@yahoo.com
Date: January 08, 2005

Comments

Elizabeth - we heard you had a rough time on your return home on Friday and ended up at the hospital. We just wanted to let you know we are praying for you!!


Name: Kellie Byrd
Email: kellie_byrd@hotmail.com
Date: January 02, 2005

Comments

The strength that you and your family have is amazing to me. You are a very special little girl.


Name: Kim and Charlie
Email: ksykora@sbcglobal.net
Date: January 02, 2005

Comments

Thanks for keeping us updated. I'm so glad to hear that Elizabeth is doing so well. Happy New Year. Hugs - Kim, Charlie, Lily and John


Name: Bernie and Heather
Email: bmcko@ns.sympatico.ca
Date: December 25, 2004

Comments

A VERY MERRY CHRISTMAS TO A SPECIAL LITTLE ANGEL FROM WE HERE IN NOVA SCOTIA LOVE AND BEST WISHES


Name: Jeaneen
Email: tables@cox.net
Date: December 22, 2004

Comments

Sweet Elizabeth, I want to take this time to wish you a very special Merry Christmas. I just love looking at your new snaps and seeing that precious smile and all the wonder in your eyes. Bless you, little one. love, Jeaneen


Name: Linda Koenig
Email: ldkoenig@mchsi.com
Date: December 21, 2004

Comments

THe web page always amazes me. What you are doing for Elizabeth is extrodinary. You are all always in my prayers. God bless her and all like her. You are all these babies gardian angels yourselves! God Bless you all!!!!!!


Name: Linda Koenig
Email: ldkoenig@mchsi.com
Date: December 21, 2004

Comments

THe web page always amazes me. What you are doing for Elizabeth is extrodinary. You are all always in my prayers. God bless her and all like her. You are all these babies gardian angels yourselves! God Bless you all!!!!!!


Name: Ashley & Destiny Hope
Email: adragonfly99@aol.com
Date: December 20, 2004

Comments

Wishing you a sleigh full of wishes and dreams come true !!! We love you !!!


Name: Tina MacIntyre
Email: tina.macintyre@sympatico.ca
Date: December 13, 2004

Comments

Hi Elizabeth! I heard you were just at Stanford and thought I'd drop by to say "Hello Cutie!" It sounds like you're doing really well. Way to go! Hayden is recovering from his G-tube surgery and is doing great too. Let's pray for a healthy Christmas for all our SMA buddies.


Name: Ashley & Destiny
Email: adragonfly99@aol.com
Date: December 09, 2004

Comments

We are praying that you all have a good trip to the doctor . You are both in our thoughts and wrapped up with God's loving angels arms during this week . We love ya'll !


Name: Destiny Hope
Email: daddysgirl5399@aol.com
Date: December 08, 2004

Comments

I loved your picture with your tree , hope you are feeling well . Love always , Destiny Hope


Name: Elizabeths Dad
Email:
Date: December 06, 2004

Comments

HI iam Elizabeths dad you dont really know who i am but i take part in her life every day and spend time with her every day probably not as much as i should but none the the less i see her every day i work second shift and that makes it hard some time to spend time her with like i should and i do a lot of 12 hour days


Name: Ashley & Destiny Hope
Email: adragonfly99@aol.com
Date: December 01, 2004

Comments

Well , we leave for our trip tomm. we pray that you will get well soon . You will be in our thoughts and prayers . We love ya little princess !! Hugs and thoughts of you ...


Name: Doddie, Mom to Angel Christina
Email: dslack@charter.net
Date: December 01, 2004

Comments

I hope you start feeling better soon. I hate winter it is hard on everyone. Prayers are coming your way.


Name: Ashley & Destiny Hope
Email: adragonlfy99@aol.com
Date: November 30, 2004

Comments

We sure are enjoying all the pictures of you that you have been emailing us . We think you are just a doll . We love ya . Keep Mommy in line ! LOL.


Name: Poonam McAllister
Email: poonam.mcallister@osfhealthcare.org
Date: November 26, 2004

Comments


Name: MOM AND DAD
Email:
Date: November 25, 2004

Comments

HEY THERE OUR SWEET LITTLE ANGEL. WE ARE THANKFUL FOR YOU THIS THANKSGIVING. WE ARE SO PROUD OF HOW WELL YOU ARE DOING. WE LOVE YOU SO MUCH (MONKEY). LOVE MOM AND DAD.


Name: Lisa and Lindsey Muszkiewicz
Email: lmuszkie@cox.net
Date: November 23, 2004

Comments

Miss Elizabeth you are so very beautiful. We love your web site and your photos are just adorable! We are so happy that your g-tube surgery is already paying off...that you are becoming stronger and healthier. Lindsey was nervous about her g-tube last Spring and she has gotten so much healthier from it. Thinking of you sweetie and keeping you in our prayers. Lindsey thinks that you are "just soooo cute!" Lots of Love, Lisa and Lindsey (SMA II/III age 6.)


Name: Bernie and Heather
Email: mcko_2@yahoo.com
Date: November 22, 2004

Comments

Just a perfect little angel as seen from the beautiful website dedicated to you. Your mommy and dad must be so proud. God bless you and your family and please try and hang around a long time so you can truly come to know love from humanity. Stay well little one and may God protect you and your family always. love B and H


Name: Ashley & Destiny Hope
Email: adragonlfy99@aol.com
Date: November 21, 2004

Comments

We hope you all have a wonderful and memorable Thanksgiving . We have so , much to be thankful for with our SMA babies . We love ya'll . Lots of kisses and hugs to Miss. Elizabeth !!


Name: Candy Slagel
Email: cslagel2000@yahoo.com
Date: November 21, 2004

Comments

My prayers are with you and your family.


Name: Carlen and Rory Reed
Email: rreed10579@aol.com
Date: November 19, 2004

Comments

very nice site....


Name: April H
Email: harrisapril75@bellsouth.net
Date: November 16, 2004

Comments

Elizabeth's family, I am so glad that she is doing so well.I came across her site through SMA Angels and read her story she is a real trooper. and what a cutie Pie. It so great they are so much closer to a cure. Thats awsome!!! We used a Kid Kart with our Little Mikayla and she loved her chair it made her feel so much more supportive. May God Bless you and we wish you the best. God Bless. April H www.geocities.com/angelmomfriends5/kayla1.html www.caringbridge,org/tn/kayla


Name: Ashley & Destiny Hope
Email: adragonlfy99@aol.com
Date: November 14, 2004

Comments

Sweet little Elizbeth , hope you are feeling better soon get soem rest from your trip with the doctor. We think of you everyday . Our prayer are always with you .


Name: Ashley & Destiny Hope
Email: adragonlfy99@aol.com
Date: November 09, 2004

Comments

We hope you are feeling well . We love your new pictures . You are so , beautiful !! Hugs ..


Name: Aunt Dawn
Email: jcotter7897@hotmail.com
Date: November 05, 2004

Comments

Elizabeth, I know this is my first time writing, for some reason I never wrote before. You are a very special child and we all love you in every way. I see you fighting in all of your struggles and I hope some day I will be as strong as you. Caitlyn loves to spend time with you, since you are her Elizabeth. I know you will grow-up together and be the best of friends. God has a job for you and I know that is why you are so special. You are our Angel. Love, Aunt Dawn


Name: Jennifer Russell
Email: rer3family@cox.net
Date: November 01, 2004

Comments

Good luck with the clinical trials Elizabeth - keep fighting the fight! Prayers and hugs to you, Jennifer Russell, mom to Nathan, 15 months old, Type I


Name: Jennifer Russell
Email: rer3family@cox.net
Date: November 01, 2004

Comments

Good luck with the clinical trials Elizabeth - keep fighting the fight! Prayers and hugs to you! Jennifer Russell, mom to Nathan, 15 months old, Type I


Name: Destiny Hope
Email: daddysgirl5399@aol.com
Date: October 31, 2004

Comments

Happy Halloween Elizabeth !!! Lots of hugs to you .


Name: Olivia's mama
Email: Blueyedaze@aol.com
Date: October 28, 2004

Comments

Elizabeth is such a beautiful lil peanut =)


Name: Ashley & Destiny Hope
Email: adragonfly99@aol.com
Date: October 28, 2004

Comments

I saw your little Elizabeths picture on the Sma angels web site . She is a doll . Our little angel is 5 and has Sma 2 , her name is Destiny Hope . We loved Elizabeths site also . God Bless .


Name: Aunt Jessie(Christen's sis)
Email: jessabugg82@aol.com
Date: October 26, 2004

Comments

Lizabeth! I just thought I would check-out your updates! You are such an angel!! I am so proud of how well you are doing after all you have gone through these passed few weeks. You are going to be so cute for Halloween!! Nina sent me your pictures in an e-mail. You the sunshine on a cloudy day, you have a way to brighten up anyone's day, no matter what kind of a mood they were in before they saw you, they will walk away will a smile after being greeted by your sparkling eyes and beeming smile!!! I love you all the way to the moon and back!! Your are truely and ANGEL!!!! LOVE, Aunt Jessie


Name: Linda and Dan Koenig
Email: ldkoenig@mchsi.com
Date: October 26, 2004

Comments

Hi. You guys are doing a wonderful job. I am truly impressed with all this. And Elizebeth is only getting more gorgeous with every new picture I see of her. God surely knew who to send this baby to. He knew you could help her and love her the way she deserves and the way he meant for her to be on earth. She truly is one of God's angels. No doubt there! Great job. Our prayers are with her every day, Jeanna. Know that, please.


Name: Angela Goodrum
Email: lucy_locket38375@yahoo.com
Date: October 24, 2004

Comments

You have so much going for you. You'll all be in my prayers!


Name: Liz, kalair's mom
Email:
Date: October 24, 2004

Comments

Hi Jeanna, for some reason all of my emails are being rejected. Here is the email I just sent which also bounced back. ~~~ I hope this email goes through. I tried to respond to your email about Aleena and Stanford, but my replies bounced back. Is Elizabeth getting any supplements now? Poly vi sol? A multivitamin, calcium, and l-glutamine are all good to start with. It's up to you where to start first. She needs about 500 mg of calcium and you do NOT want a cal/mag supplement because those are formulated for adults and you would have to give way too much mag to get enough calcium. Glutamine, make sure it is pure with nothing else in it, and start with 500 mg for a week or two, then try working up to 1000 mg or one gram. That should get you started, let me know if you have any questions.


Name: Liz, mom to Kalair (4.7 yrs w/SMA one)
Email: www.ourSMAangels.com/Kalair
Date: October 24, 2004

Comments

Jeanna, all my emails to you are being returned. Not sure why are what I can do about it, but I wanted you to know I'm not ignoring you. Hopefully the problem will resolve itself soon, but let me know if you have any ideas. How is your Lil'Bit today?


Name: Tina MacIntyre
Email: tina.macintyre@sympatico.ca
Date: October 23, 2004

Comments

Elizabeth, Your grandma Jeanna told me about your site and I'm so glad she did. This way, I get to "meet" you and hear your story and find out for myself why everyone thinks you're such a wonderful, pretty little girl! We will fight this disease, together. You are in our prayers, sweetie.


Name: Rachel Phillips
Email: rphillips_96@hotmail.com
Date: October 20, 2004

Comments

Elizabeth is very lucky to have such a loving devoted family. I wish you luck in overcoming SMA! Christen, your baby is beautiful and you're doing a great job as a mommy!


Name: Teresa
Email: teresaghill@hotmail.com
Date: October 16, 2004

Comments

You are a beautiful baby. I saw your mommy last night and you sure seem to be the apple of her eye. I hope that you get better real soon with the clinical trials that you are going through. Christen she is sure gorgeous. I pray for the best for you and Elizabeth. Please let me know how she gets along.


Name: JILL MCCULLOH
Email: harleyridingfd@yahoo.com
Date: October 11, 2004

Comments

WHAT A BEAUTIFUL LITTLE GIRL! MY HUSBAND AND I HAD THE PRIVILEGE OF MEETING ELIZABETH AND HER MOMMY THE END OF SEPT. AT A PLAY GROUP THAT I FACILITATE. ELIZABETH HAS THE MOST BEAUTIFUL EYES THAT SPARKLE AND SPEAK TO YOU. YOU CAN TRULY TELL THAT ELIZABETH IS LOVED SO MUCH. WHAT A SPECIAL LITTLE GIRL!! JILL AND RANDY


Name:
Email:
Date: October 04, 2004

Comments

Hey sweetie! this is your "great" Aunt Mindy. I am so glad to make the trip for your birthday party. You looked so pretty and so happy. I don't think you know not to smile. Mommy is so lucky to have a quiet and happy baby. I am so jealous that I don't get to enjoy you daily. You would be my daily "perk-me-up." You were so fun to shop for. I hope you like your movie. I hope you still talk on the phone with your new word-of-the-day. Thanks for making my vacation worth it.


Name: Amy Fictum
Email: Amynole@tampabay.rr.com
Date: October 01, 2004

Comments

Hello Elizabeth, My name is Amy and I am friends with your Aunt Rita. She is a very special lady and she loves you very much. You are such an inspiration to me and I want you to know that you are in my prayers daily, sweetheart. Much Love and blessings to you, Amy Fictum


Name: Amy and Lily Barnett
Email: lilyandnathansmom@yahoo.com
Date: September 29, 2004

Comments

Happy Birthday to you...Happy Birthday to you, Happy Birthday Dear Elizabeth...Happy Birthday to YOU! Lily and I hope you had a WONDERFUL fun filled day full of love and being spoiled ROTTEN! Happy First Birthday sweetie!


Name: Elizabeth's Nina
Email:
Date: September 29, 2004

Comments

Happy Birthday to my little angel.Its been a rough year and you still have done so well!! I love you with all my heart!!!


Name: judie bowles
Email: judbwl@aol.com
Date: September 28, 2004

Comments

Happy Birthday Elizabeth. I know you are in sunny California on your big day. Hope you are feeling better than a couple of weeks ago. Have fun celebrating with your parents and grandma. Sophia Doebbert (my littlest Angel) sends her wishes along with her mommy, Andrea. Happy Birthday!!!!!!!!!!!!!! Judie Bowles (Sophia's Nana)


Name: Angela Trick and Jacob 13 months type 1
Email: angela.trick@gmail.com
Date: September 28, 2004

Comments

Hello again. This is my 3rd time trying to sign your guestbook? It seems to disappear? So if you get 3 well now you know why! I wanted to wish you a HAPPY 1st Birthday Elizabeth!!! I know how important and special this day is... Glad to hear you are doing so well. Hugs and butterfly kisses...Angela http://www.caringbridge.org/canada/babyjacob


Name: Angela Trick and Jacob 13 months type 1
Email: angela.trick@gmail.com
Date: September 28, 2004

Comments

Hello everyone! Wanted to wish sweet Elizabeth a very happy 1st birthday! I know what it feels like to have that very special day. Cant wait to read the updates. Have a great time. Happy to hear that she is doing soo sooo well. I wish Canada had these drug trials? Anyway hugs and butterfly kisses... Angela


Name: Cole and mommy
Email: thewebbs@sbcglobal.net
Date: September 15, 2004

Comments

Hi Elizabeth and family. We were just visiting your site and realized that you have BIG birthday coming up!! Happy day little one just a little bit early from us. Jeanna, could you email us. We are trying to pick a picture for Elizabeth's quilt on the website, but am not sure which one you would like us to use. AOL keeps rejecting my email attempts ( I can never send to AOL first but can only reply) Biggest hugs to your biggest girl!! Kristin and Cole www.our-sma-angels.com/cole ~ www.our-sma-angels.com/colesquilts


Name: Jim & Rita Hoch
Email: ritaahoch@aol.com
Date: September 14, 2004

Comments

Our thoughts and prayers will always be with you and your family. We love you.... Aunt Rita & Uncle Jim


Name: Aunt Jessie(Christen's sis)
Email: jlh8201@aol.com
Date: September 13, 2004

Comments

I am visiting our Aunt Rita in Florida and wanted to know how you were. I am so proud of all the things you are doing and thankful for all the love and support our family and friends have given you. You are my shining star!! I have never seen a baby as sweet and smilely as you. I love you more then words can exspess. I am looking forward to seeing you when I get back from my trip! Lots of hugs and kisses. LOVE, Aunt Jessie


Name: Rhonda White
Email: wads@dtnspeed.net
Date: September 05, 2004

Comments

Hello, I heard about your web-site from Brandy Reynolds, she is my soon-to-be siter-in-law. Your site is beautiful, hold on let me wipe the tears from my eyes. I have been through some trials and tribulations with my 3 little ones and know how hard it is to see someone you love so much suffer. I will keep your darling baby in my prayers. God Bless!


Name: Lisa Hayes
Email: LAHTRBL73@AOL.COM
Date: September 05, 2004

Comments

Hello Elizabeth, you don't know me but i have heard about your sma from Brandy Reynolds which is my cousin. I will pray and keep on praying for you precious little angel.


Name: brandy reynolds
Email: bran_n_gav@mchsi.com
Date: September 04, 2004

Comments

Elizabeth, you truly are a blessing. through your journey in life may god be by your side. were all praying for you and your family. love brandy


Name: Kenya
Email: smamom2three@yahoo.com
Date: August 23, 2004

Comments

Hi! I wanted to thank you so much for stopping by Aschdons site and leaving your person on his guest map. He just loves looking at where every one is from. I love your daughters web site. I hope to be able to stop by and visit when I can. Bugs and hugs (new way to say bye)


Name: vicky
Email: vickylauth@hotmail.com
Date: August 19, 2004

Comments

Hi everyone. I just wanted to let you know that we are praying hard for you. If I am correct you left for California on tues. and I am sure you are in the best hands God could place on earth for you. Always know that God's hand is the true touch of love and joy. I want to cry sometimes when I read about you or see you and think to myself "thank God my kids are healthy." But do you know what? I thank God that he puts inspiring young angels like you on earth to always touch our hearts and remind us that everyone is perfect in His eyes. All my love and prayers to all of you.


Name: Angela Trick, baby Jacob
Email: angela.trick@gmail.com
Date: August 19, 2004

Comments

Hello, nice to meet you... I wish under different circumstances. Elizabeth is so beautiful. What a smile and eyes she has. My son Jacob has sma type 1 also and is going to be 1 in 1 more day. You are so right about Laura and sma support. I have been with them since Jacobs dx Jan 9/04 I am involved in the chat group and support group with sma support. Prayers are with Elizabeth for continued strength and love and hope Angela http://www.caringbridge.org/canada/babyjacob


Name: Aunt Rita
Email: ritaahoch@aol.com
Date: August 09, 2004

Comments

Little Bit, I think about you every day & get chills & tingles every time I hear you talking, singing & cooing in your own special way whenever I talk to your Mommy & Grandma Nina on the phone. From the day you were born I told your Mommy & Nina that you were a peace maker. I was & am still excited that your Mommy went into labor with you on my birthday & had you the next day. I feel an extra special atttachment to you in my heart & I know that you are such a blessing to our family! Uncle Jim & Love you so much & we both Light up & smile with each new picture we see of you! Love,smiles, prayers & hugs, Aunt Rita


Name: Kathy Popovich
Email: kathypop1011@yahoo.com
Date: August 09, 2004

Comments

Dear Christin, You have a beautiful daughter. Stay strong and believe that God will heal her. He can do anything. She is in our prayers as well as you and Brandon. Love you guys. I'm here if you need anything...just call. Kathy


Name: Donna
Email: Trout_8@hotmail.com
Date: August 08, 2004

Comments

I have always been lucky with five healthy kids, noone should have watch their children go through anything like Elizabeth is going through. I truly feel for you and yours, I hope everything turns out good for you all. God has his way of taking care of everyone of us. Donna


Name: Christina Fisher and boys
Email: mdfjrf2@yahoo.com
Date: August 07, 2004

Comments

Christen and Branden, I know you guys have to be going through some hard times right now and i just wanted to let you guys know that if you need anything or someone to talk to that i am here for you! She is so beautiful! And our prayer's are with you always! Love, Christina and Boys


Name: Ali, Jeremy, Timmy, & Tatum Runyon
Email: alir21@aol.com
Date: August 03, 2004

Comments

Hi, Elisabeth, I met you at your cousin Caitlyn's birhtday party. You liked me because I gave you a Dora hat to play with! I loved making you smile, it just made my day! You are a cool little girl and we are all pulling for you. You are in our hearts and prayers. Love, Ali


Name: Cousin Alli
Email:
Date: July 31, 2004

Comments

Elizabeth is a cutie. Keep sending pictures. I loved looking at them. I pray for her everyday. Hope she liked the monkey book.


Name: Aunt Mindy and the Flicks
Email:
Date: July 31, 2004

Comments

Hi! Just want to say that we love our "sweet pea." When there is something wrong with your child, you do everything in your power to know about the problem and try to "fix-it". I give Jeanna and Christen all the praise. Their determination and family support is what we need to find SMA a cure. We pray every day and know Elizabeth is in good hands. Thanks to all those who help her.


Name: calib and dana baxter and family
Email:
Date: July 29, 2004

Comments

we love our earth bound angel


Name: AUNT TINA
Email: TJS_SJS_92003@YAHOO.COM
Date: July 28, 2004

Comments

JUST BECAUSE I DO NOT SEE YOU ALL THE TIME DOES NOT MEAN THAT I DO NOT LOVE YOU AND THAT I DO NOT CARE CAUSE I DO I THINK OF YOU EVER DAY I TALK TO YOUR MOM ALL THE TIME TO MAKE SURE THAT YOUR OK I HAVE ALL YOUR PICS I CARRY ON OF THEM WITH ME EVERY DAY I JUST WANT TO KNOW THAT I LOVE YOU VERY MUCH AND I WANT YOU TO KNOW THAT I WILL THINK OF YOU EVERYDAY AND I HOPE THAT YOU ARE THE ONE THAT YOU CAN TEACH THESE PEOPLE THAT THIS CAN BE BEAT....... LOVE AT TINA AND UNCLE TONY AND THE KIDS


Name: MEGAN JOHNS
Email: reckless_kitty_4_u@yahoo.com
Date: July 28, 2004

Comments

ELIZABETH IS A WONDERFUL AND BRILLIANT YOUNG GIRL AND I HOPE FOR THE BEST OF HER CONDITIONS.


Name: Jeaneen Bennett
Email: tables@cox.net
Date: July 28, 2004

Comments

Elizabeth, You are such a beautiful child with a very loving and caring family. My prayers go out to you all. Stay strong and make the most of everything you can. Special good wishes to Grandma Jeanna too. love, Jeaneen


Name: Karen Slavik, Jessica's mom
Email:
Date: July 27, 2004

Comments

What a gorgeous website! Just perfect!


Name: vicky lauth
Email: vickylauth@hotmail.com
Date: July 26, 2004

Comments

Dear Elizabeth, I am best friends with your great-aunt Mindy. You are a true blessing from God and you make your family sooooo proud. I am so sorry that I don't have any money to donate to you right now, but I want you to know that I am donating prayers every day for you. God truly hears and answers prayers in your best interest. I pray that the doctor will be able to cure you or at least give you a better chance at a full life of happiness. I also pray that your family remains strong in their faith in God!! We will think of you often and pray for you always!! love Vicky Lauth and family


Name: jenny miller
Email: millertime31560@yahoo.com
Date: July 26, 2004

Comments

She is beautiful.


Name: Rita Moore
Email: ritamoore462003@yahoo.com
Date: July 26, 2004

Comments

I will pray for you Elizabeth. You are a sweet,beautiful baby. All my prayers are out there for you. Hope and Luck !! Rita


Name: Melody Litz
Email: melody.litz@twc.state.tx.us
Date: July 26, 2004

Comments

Elizabeth is such a beautiful child. She is one month younger than my first grandchild. You are in my prayers.


Name: deb reynolds
Email: angelwings_92@hotmail.com
Date: July 25, 2004

Comments

elizabeth, you really are everyone's little angel. we love you very much! your mommy and grandma are special angels, too, also loved very much!!!!


Name: Debbie Merlino
Email: debbiemerlino@hotmail.com
Date: July 25, 2004

Comments

we love you elilzabeth and mommy and grandma too