Sara came as an answered prayer, though with a condition.

A very rare one: Spinal Muscular Atrophy.

Potentially life-threatening and embedded in her genes, the disease would not go away, the doctors said.

At first, a hard pill to swallow, but ultimately very therapeutic

As Rusty says, "It doesn't matter.  We're not sending her back."

The diagnosis is old news, now.

Today is what matters-and tomorrows.

Challenges to meet at home, and research in far off places.

And also a lot of fun just living