SMA
statistics:
Strength
gain.
Haven't
heard
that
stat.
However,
it
seems
to
me
that
most
of
those
who
don't
decline,
get
(or
appear
to
get)
somewhat
stronger.
Certainly
this
is
true
for
Bernie.
Just
last
week
I
noticed
him
being
able
to
do
something
he
couldn't
a
year
ago,
and
it
wasn't
a
thing
that
could
be
ascribed
to
improved
control
-
just
pulling
a
string
on
a
toy
to
make
it
vibrate.
And
he's
certainly
learned
to
USE
what
he
has,
more
effectively.
I'd
be
interested
in
hearing
if
you
find
the
reference.
I'd
agree
more
with
this
assessment:
http://www.fsma.org/russman97.shtml
-
It
says
'some'
not
40%
bettylou
Yes
they
do,
we
know
that,
but
have
no
idea
where
you'd
get
written
information
on
it.
It's
not
12
though
from
our
info.
It's
that
they
keep
increasing
in
strength
until
the
age
of
6
or
8
or
so.
They
also
appear
to
have
more
strength
when
in
fact
they
are
just
naturally
getting
more
coordinated
as
in
any
child
maturing.
susi
I recall a researcher at one of the conferences (I believe it was Arthur Burgess - but am not certain) who talked about gains in strength. There wasn't a specific time frame that I can recall but there was a significant period of time of improving strength. I can say that over the course of the last few years, Oliver has gained more strength than I could have ever imagined. Now whether that is due to the natural course of SMA or to the diet, exercise and respiratory protocol we follow, I'm not sure. Just our personal experience. Lisa : )
Actually
Dr.
Bach
says
this
at
all
his
talks
---
he
has
many
sma
kids
as
well
as
others
with
neuromuscular
diseases
that
show
great
progress
as
they
get
older.
We
have
seen
this
in
my
niece
--
who
is
a
type1
(on
the
stronger
end)
and
is
5
years
old.
Have
you
been
to
his
site
-
www.doctorbach.com
michelle
On the topic of strength increase...our doctor told us that if type ones survive to three or four years of age they tend to become more stable with less illnesses and increased strength. Of course they are still type ones and very weak, but hey, we'll take improvement wherever we can get it. I don't know how this applies to other types, but I've heard some parents agree that this is true.
Laura Martin
I haven't heard that, except that some children have a slow climb of always doing
a
little
better
until
they
eventually
level
out
while
others
simply
level
out
or
decline
(Dr.
Crawford).
Let
me
know
what
you
find
out.
Dear
Brenda,
I
was
just
informed
that
"the
statistic
that
40%
SMA
kids
(type
2
or
all,
not
sure?)
appear
to
\get
stronger
between
the
ages
of
something
like
2
and
12?".
Has
anyone
else
ever
heard
of
this
before?
That
is
correct
for
milder
type
2
and
3s.
JB (John Bach)
Regeneration
Process:
1.
Total
Denervation-Nerve
cell
usually
don't
regenerate,
however,
other
neighboring
axon
and
dendrites
regenerate
to
stimulate
other
muscles.
(collateral
sprouting)
2.
Partial
denervation-Nerve
cell
usually
regenerate
thru
collateral
sprouting
or
additional
synapse
is
developing
as
a
compensatory
reaction.
3.
Pressure
denervation-Nerve
cell
regenerate
if
the
pressure
is
relieve.
Nerve
regeneration
depend
on
the
stimulus
and
nerve
condition.
If
the
nerve
is
totally
denervated
the
neighboring
nerve
(axon
dendrites)
reinnervate
the
totally
denervated
muscle.
However,
if
there
is
no
stimulus
such
as
tactile,
pressure
vibration
etc.
the
possible
regeneration
of
the
nerve
is
less
likely
to
happen.
More
synapse
or
motor
point
can
develop
from
the
same
nerve
fiber,
axon,
or
neuron
to
compensate
for
denervation.
However
all
of
this
depend
on
medical
condition
of
the
person.
Conrad
de
Jesus