Resources

We all probably do the same thing:
I have resorted to the expertise of the other families on many occasions. I would like to have their replies posted so if anyone in the future may have the same questions as I, they may get immediate answers. I trust and have full faith in all the other families because we share the same goal, to help our wonderful little children through this the best way that we can. There is a lot of information out there and often it varies somewhat from family to family, maybe because the children themselves are so different in their own little ways, but also partly because the professional world is so ignorant to SMA, that they do their best to treat the symptoms in ways they have been taught for other diseases. Also, professional training is so different from school to school. Nevertheless, personal experience from those who care the most and are willing to put their all into finding out what is the very best, is what I choose to be the best most affective way.

I will continue to add any information I receive in the future as Crystal grows and has new issues or even if there is an existing problem that is newly discovered.