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Name: Michelle Tierney CommentsYour son is beautiful, thank you for sharing his story. Name: Lynn Thurmer CommentsIt is 4:05 AM I just finished reading your entire family story. I couldn't stop even though I have to work in the morning. I have a niece Jessica with type 1 SMA. She is 7 yrs old and of course on complete life support. She is happy and intelligent, but I have always wondered how parents make these heart wrenching decisions regarding extraordinary measures to keep a child alive. I have my sister's perspective, and after reading about Devon, I have an understanding and complete respect for the decisions you and your husband made. Thank you for sharing your story. Lynn Thurmer Name: Teresa CommentsReading the comment about knowing your baby can only survive inside of you brought back memories for me. In remembrance of Lisa Anya May 9, 1985- Feb. 24, 1986 and Sarah Alexandria Aug. 30 1990- April 18, 1991. I love and miss my girls! Name: sharon &stevie finlay belfast N.Ireland Commentshi our baby daughter sarah joined the angels on the 28 november1999 aged 8 months from sma before sarah we had never heard of sma like sarah devon is a beautiful baby and hopefully someday a cure will be found so no other families have to go through the pain of losing a child to this disease our wee angels will never be forgotten Name: beth CommentsJust wanted to say that I read your story and you are such amazing people. Your strength is an inspiration, as is your pure and endless love for your son. Laura -- you are a beautiful person, please do not have any regrets because you did the absolute best for your son that anyone could. I wish you all the best. Name: flossie sullivan CommentsI'm sorry for the loss of your son Devon but we all know he is with God. My friend's daughter has sma she died at the age of 19 months. Name: maikeika CommentsI AM SORRY ABOUT WHAT HAPPENED TO YOUR CHILD. I WISH YOU THE BEST. Name: D.Erica Alcock CommentsI am enjoying reading of all the love you have for your angel. My son is 7 months old and going to ped neu and ped bone doctor this week because he is not very strong and cant roll over or sit up ect. Please pray for my baby boy . peace and love a mommy in north western NJ feel free to contact me and tell me where to look for check lists Name: Robert Stants CommentsA terrible tragedy to one so young. So much to live for but so little time. Condolences to all the family and praise for the wonderful job you did at keeping Devon's memory alive. Name: Heather CommentsThinking about you a lot lately - and your mama too... and you would have LOVED your little sister!! Love you, "curly-Heather" Name: peg masterson CommentsI lost my son Michael 7weeks ago
tomorrow. Michael had type 1 sma he only lived for 20 days.
Name: michelle lambert Commentshey, i know how it feels to loose a loved one because my lil cuz died of sma type 1 and its really hard to deal with it...my heart goes out to you all... Name: Brandi CommentsIt was with great sadness that I read Devon's story. I enjoyed getting to know him through his pictures and the beautiful months you had with him. What a handsome little guy! You have every reason to be so proud of such a strong and happy boy. Thank you for sharing your heart and your son through your webpage. Name: Kim Burger CommentsLaura, You are amazing. I just visited you wonderful website of your precious angels. I wish I could have met them. I know they were very lucky to have a wonderful Mother like you. I truly believe in my heart that God chooses special people to take care of theses special children while they are here on this earth. You have touched many lives, as well as ours. Please continue to share your story. Thank you for all you do for all of the sma children and families. God Bless you. Name: kristi Commentsthank you for bringing such wonderful memories here for all to see. My nephew, Christopher turned 1 year old last week. The doctors said it would be the only birthday he would ever have. He is a beautiful little boy with a smile that lights up the room. Like your precious children, he has been diagnosed with SMA, news that has put our family at Gods mercy. Some days are good, some not so good, but each day is a blessing with him in our lives. I just wanted to share my sympathy with your beautiful family and ask you what to expect when Chris passes. His mother can withstand the daily heartaches that come with this each day, but what can she expect to happen in his final hours? God bless you. Kristi Name: Cindy Henry CommentsLaura & Steve, I was moved to read through Devon & Sidney's sites by Laura's posting today. I can't begin to tell you how my heart aches for all the hurt you have had to endure. I have to tell you though how very much I admire the way you have coped with everything that God has put before you and how selfless I think you are to continue giving of yourself to all the families who live with this disease on a daily basis. While it brings an ache to my heart it also brings comfort as well. Devon, Sidney & Kaylee have been blessed to have you both! Thank you for SMA Support...this website and the chat is the anchor that I reach for especially on the days where I am having a difficult time dealing with the struggles that my two grandchildren deal with every day fighting this horrible horrible disease. Name: Shveta Gupta CommentsI am 5 months pregnant. I couldn't stop crying while reading your journal. May God give you all the strength and courage to bear this pain. My best wishes are with you. Name: Sarah CommentsHi Devon- I'm just checking in to read your story again! I've never met you but I think about you often. I think about how you must be having a wonderful time in heaven with Sidney, and I also think about how you were such a happy boy when you were alive. You have amazing parents Devon, I'm proud to know them and you must be very proud of them and your sweet sassy little sister! Sarah Name: misty Commentsi just got done reading your son and daughters website, they were both very touching, and beautiful children. i am so sorry to hear about your loss of your son, its so unfair and no mother should have to go threw that. i to lost my first and only baby, but the situation was different, my pregnancy was going great up until i was three months along, i went in to my first ultra sound and found the baby no longer had a heart beat, now i am just to scared to try again. your a very brave women, and once again i am so so very sorry about your loss of your son, he was such a cutie!! Name: Angela CommentsHI, I WAS JUST ON THE NET AND SEARCHING FOR ANGELS FOR A SCREENSAVER AND CAME ACROSS THIS. YES HE IS AN ANGEL A PERFECT ANGEL!! TODAY MARKS ONE FOR LOSING MY DAD AND I HAD BEEN DOWN ALL DAY AND WHEN I READ THIS I REALLY FELT YOUR PAIN I HAVE A SON THAT IS 11 MONTHS OLD AND I DON'T KNOW IF I COULD BE AS STRONG AS YOU WAS. I GUESS I COULD IF I HAD TO I JUST THANK GOD THAT HE HAS GIVE ME ALL THIS TIME THAT I HAVE HAD WITH HIM AND I HOPE I GET MORE TIME WITH HIM. I THINK GOD TEST US ON OUR FAITH THROUGH THINGS LIKE THIS BUT LIKE YOU SAID THAT IS THE ONLY WAY IS TO TRUST HIM AND BE STRONG. WELL GONNA RUN TO DRY MY EYES NOW P.S. I WILL KEEP YOU ALL IN MY PRAYERS!! ANGIE Name: Carolyn Deyarmin CommentsMy son Andrew was diagnosed with SMA Type 1 on January 23, 2004. At the time we were asked to make a decision about the ventilator that they had put him on, my father was in a hospital in another city with a ventilator, and my brothers and I were asked to make the decision as to whether to take him off the machines or not. I have to think that making the decision to take my father off the machines was a simpler one than making it for Andrew. My son is ten months old now, and I have not regretted keeping him on the machine even once. Especially when I look at his beautiful face and his angelic smile. We are back at the hospital now because he contracted viral pneumonia. It was caught early and he's on the road to recovery, but I'm constantly aware of the fact that one day they won't be able to cure it with drugs, and we will be saying good-bye to our precious boy. So I'm very sorry for your loss, I feel your sadness deeply and hope that one day I will be as brave about my son's passing as you have been. Name: Doddie Mom to Angel Christina (SMA1) 04-02-03 thru 03-15-04 CommentsIt is a beautiful presentation of a gorgoreous angel. Devon you make your mother proud everyday. I am sure you are keeping a close eye on her and everyone else in the family as you are taking care of your angel brother Sidney. Name: Amy and Lily Barnett CommentsHey Devon..I was just out 'surfing' the web and thought I would drop by and visit your website since it has been a while. You are most certainly one of the most beautiful little boys EVER...I know that you and your precious brother Sydney are having such a good time running around in heaven with Nathan, I imagine your all best friends by now :) I love your mommy very much, she is a wonderful woman...Lily and I send you and Sidney hugs and kisses to Heaven!!! Name: Kerry Rajkumar CommentsI was extremely traumatized when i saw the picture of Devon. He is extremely adorable and an absolute angel. To his family i extend my sincere love. Name: Sarha CommentsSorry for my first message (I am so overwhelmed with tears after reading Devon's story that I accidentally pressed the submit!) What I wanted to say; - it is always SO sad when a child leaves us, - I can not imagine all the emotions you must have! I truly feel sad with you, and at the same time also understand that God always has a plan with everything that happens to us. Thank you for sharing your story with me. Thank you for reminding me of how precious little moments in life is! Name: Sarha CommentsPlease forgive my spelling. With this message I'm sending you a very big hug! It is always - ALWAYS I truly admire wish that when you read my message, Name: Karen Slavik CommentsLaura What a tremendous story. It certainly had a huge impact on me, reading it, relating to it. I cried and cried. As you know we just lost our precious Jessica and it was a nightmare every time her sats dropped. Her last day her sats went from 88 to 11 in seconds, they did cpr, gave her some heart drugs and 02 and got her back long enough for me to sit and hold her in my lap until she passed. I chose not to ventilate her and the doctor told me it wouldn't have helped her anyway, her lungs couldn't handle the pressure, they were so full, so weak, they would have just collapsed. I am so grateful to you for writing about Devon as you did, he was a beautiful boy and now he is a fantastic, gorgeous angel I too did or didn't do many things that I regret more than anything and it helped me somehow to know, to read that you and others have gone through the same thing....Love Karen Name: Morgan CommentsHey Aunt Laura, We were all just checking out the websites. You did such a great job on these. They're always lots of fun to look at and enjoy. We love you guys so much, tell Kaylee I said HI!!! Name: billy and jennifer durham CommentsI have read ur story and want to tell u that it is very touching. Me and my wife is in the hospital with our sma angel right now. She is so beautiful. she is almost 6 mo. old. We don't know how long she has to live. But we to are hoping for a miracle. thanks for sharing ur story kelly grace dad Name: Kristin Webb and Cole CommentsDearest Devon Although we only know you through stories, pictures and through your amazing mommy, we feel like we know you. Today you are celebrating another birthday in heaven. I cannot imagine how hard this day is for your mom and dad. Be with them today. Send angel kisses on the wind for them to catch. Thank you little Devon for helping your mommy continue to be so strong for all of our families. Without her I cannot imagine how we would manage. Continue to give her strength so that she can continue the angel work you started here on earth. Name: Suzanne & Erinne CommentsWe wanted to be one of the first to wish Devon a very happy 6th birthday.....you are never far from our thoughts....Laura & Steve, I know this must be a bittersweet day for you.......please know that we will never forget precious Devon......we love you guys....... Name: Sara CommentsHi. I just wanted to say that Devon is a beautiful little boy. I cannot imagine how much he blessed your life, even though you had to let him go. He is perfect now...and you were wonderful parents to him while he spent his time here. Even though I don't know you...I just want to thank you for being wonderful parents and loving your little boy so much. Your website for him is beautiful. Name: Karen CommentsI have just read about your family on three or your childrens web sites. You do not know me I am a nurse and at one time I took care of a baby with SMA he was able to go home where I was his nurse, But he only lived for three months. I felt a strong connection with that baby. I am happy to hear you have had the strangth to continue in your quest to expand your family. I have also lost a baby when I was 3 months along. I was crushed. The Dr. told me it was due to severe genetic defects. This made me research all types of genetic disorters that I could think of. I want you to know that I have great respect for you and your family. My thoughts are with you. Thank you for sharing your story. I wish you a lifetime of happiness. Name: Pam Skelding CommentsLaura (and Steve), thanks for sharing the story about your family. What a wonderful keepsake for Kaylee, to read about the lives of her brothers! We lost our grandson to SMA I in March 2000, at age 9 months 4 days. He was a beautiful little boy, and will always be carried in our hearts. Reading your story brought back alot of memories about little Julian and his brief time here on earth. God bless you both and Kaylee. Pam Skelding Name: Leslie CommentsHi...Cassie, whose entry is just a couple below this one, showed me your site after she ran across it. And, like so many other people here said, I'm not one to get emotional easily, but by the time I got to the end of Devon's story, I was crying. He really was such a beautiful little boy in so many ways, & I know that he's an angel looking down on you & your whole family from Heaven...And that God's taking such good care of him, Sidney, & their little brother, too. You & your entire family have been through more than most people could even imagine, & yet you've shown such incredible strength...And And I think everyone can learn a lot from your story. So thank you for sharing it with all of us. All of you will be in my thoughts & prayers. God Bless, Leslie Name: Janine CommentsI was given this website being told that it was very inspiration and it is. I really admire you and your families courage. I'm happy that God finally blessed you with a healthy child and i know that your two sons are watching out for her and you. God Bless! Name: Brian CommentsLet me first start off by explaining a few things, I don't cry often, and I'm emotionally strong enough to take in stories like this - or so I'd like to believe. My sister kept telling me how sad the story was, and how I'd end up crying. Well, I didn't believe her, I always put on this act of having a heart of stone and not caring what happens to me or other people when I really do. Eventually I got around to reading it, and I kept telling myself no matter what I came across, I wouldn't cry. Somewhere in the middle, I could feel my eyes tearing up, and I tried to hold it back. I just wiped the tears on my shirt and kept reading. But once I hit the end, I couldn't hold the tears back anymore and ended up crying on the spot. I'm not really sure what else to say, I'm sure God is looking on Devon in heaven with a smile, just as much as he smiled himself. "Peace, Love, Empathy"-Kurt Cobain. -Brian Name: Cassie CommentsI came across your daughters website while looking for pictures of cardboard boxes on Google. I found one of Kaylee playing in a box, and it was too cute to not click on. I clicked around on her site for a while, and then veiwed Devon's. I, not being one who crys all, bawled while reading his story. I had to stop every few sentences. Devon was such a beautiful baby, and is an angel. His life was tough, but through all of it he smiled. I think everyone could learn from his story, that through everything the best thing to do is smile. I never new about SMA, and really learned a lot from his story. I'm so sorry about everything that has happened to you. God Bless, Cassie Name: Mommy CommentsHi sweetie. Your little sister was lying on me, sick and sleepy yesterday, and I thought a lot about you. Your smile, the glint in your eyes, and the mental image of you chasing butterflies in a beautiful land of wildflowers, sunshine and rolling hills. I miss you, I love you, I hope you are being kind to you little brothers up there! Love always, Your Mama
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