Name:
Alison
Email:
Date:
01 May 2002
Time:
03:22:21 PM

Comments

Thank-you very much for sharing the stories of your beautiful angel sons and your daughter. The gift of the cross is a true miracle and I pray that God will continue to watch over your family and shower you with his blessings.


Name:
Stephanie Wilson
Email:
malias_mom@webtv.net
Date:
04 May 2002
Time:
03:34:59 PM 

Comments

Hey Devon, I know you are playing and laughing up there with Sidney and Malia, but be sure to play with your new angels Adrianne and Conner. They had to leave their mommy and daddy to come back home to heaven and we are missing them terribly. I wish I could have met you before you had to leave, but one day I will hold you and give you a big hug and kiss. Love, Stephanie


Name:
Heidi
Email:
dajmom0507@aol.com
Date:
06 May 2002
Time:
07:34:27 PM 

Comments

I am so sorry for the loss of your precious angel. Please know you are in my thoughts and prayers!


Name:
Josie Dowler
Email:
bdowler@pacbell.net
Date:
07 May 2002
Time:
01:54:01 AM 

Comments

I am truly sorry for the loss of your beautiful baby. Sincerely, Josie Dowler


Name:
Auntie Mike
Email:
heathertodd654@cs.com
Date:
15 May 2002
Time:
07:05:46 PM

Comments

Happy fourth birthday, little guy! Your Mommy and Daddy sure do miss you! And you would LOVE your little sister, Kaylee. You will never be forgotten, little Devon Richard. You've changed our lives forever - even those of us who didn't get a chance to know you well. Our lives will NEVER be the same because of you... Happy birthday... Love, Aunt Mike


Name:
Suzanne & Erinne Williams
Email:
ErinnesMom@aol.com
Date:
16 May 2002
Time:
01:07:50 AM 

Comments

Happy Birthday, Devon! You may be gone from our lives, but never gone from our hearts. We cannot celebrate a birthday with Erinne, without also thinking of you. From one birthday buddy to another, HAPPY BIRTHDAY! This green balloon is for you! XOXOXO Erinne


Name:
Michaele Aldridge
Email:
michaele@glenndale.net
Date:
16 May 2002
Time:
11:33:04 AM

Comments

Remembering you on your 4th b/day little angel. I miss you but know that you are running free in heaven.


Name:
Cat
Email:
myfunnybunch@yahoo.com
Date:
16 May 2002
Time:
05:25:57 PM

Comments

Happy Birthday to you, Devon! Hugs to your family on this day! Cat & Calvin


Name:
John Fleming
Email:
Honston23@hotmail.com
Date:
19 May 2002
Time:
11:30:00 PM

Comments

Laura & family, I'm sorry for the loss of your sons. This is the first time I've read the site & its kinda hard to put in to words what im thinking - except for i HATE sma.


Name:
Melissa Gonzalez
Email:
laborready@lykesmeat.com
Date:
20 May 2002
Time:
01:25:09 PM

Comments

I commend you on your strength and courage! I am sad to read that you lost both of your sons and was very pleased at seeing the pictures of you daughter. You just remember that your sons will live on in you daughter and may god bless you always!


Name:
Kim Davis
Email:
kddavis@us.ibm.com
Date:
22 May 2002
Time:
08:56:38 AM

Comments

I came across the SMA website because I was surfing the web for info on another illness. I read your story and looked at all your photos and a part of me feels like I know you. I can't imagine going thru anything like you have and still remaining "sane" !!! :-) You have touched my heart and I admire your strength and courage. May the rest of your life bring much joy and happiness to you and your family. Sincerely, Kim Davis


Name:
Karen Ferrell
Email:
klf@elvis.com
Date:
28 May 2002
Time:
12:22:06 AM

Comments

Devon is a beautiful little angel.  May God Bless You.


Name:
Kristy Henry
Email:
Khenry76@excite.com
Date:
June 29, 2002
Time:
03:38 AM

Comments

Wow what an absolutely HAPPY beautiful son! I have a nephew that was just diagnosed with sma 1, although the blood test hasn't come back to confirm, so I have been visiting many sites to get information and just see all of the beautiful angels and they truly are ANGELS. Thank-you for sharing. Kaelan Bradlee's Auntie


Name:
joanne howard
Email:
jhoward@netzero.com
Date:
July 09, 2002
Time:
03:52 PM

Comments

Your site was wonderful. My son at 6weeks was diagnosed with SMA I see and know this will be the way our little angel will be to- It amazed me that your story is the same as mine as of now We still have Daniel but he struggles everyday. Thank you for sharing your experience. I wish you the best with everything. Thank you Joanne Howard Macungie PA.


Name:
Kimberly
Email:
momtoanangel@yahoo.com
Date:
July 09, 2002
Time:
04:58 PM

Comments

Oh my gosh......Devon's story is just so heart breaking. I am crying while I type this. What a beautiful little man and what a fighter! And from reading what you wrote I know that little boy couldnt have asked for two better parents. God Bless You both! I am going back to read more of your pages a bit later. I also have a Devon, Devon Ray who was born 3/23/1997 and died 3/24/1997 during surgery to correct his congenital heart defect. No parent should ever know the pain of losing a child..... Many hugs, Kimberly~


Name:
SHERI HUDGKIN
Email:
brandon@pulsenet.com
Date:
July 22, 2002
Time:
07:26 PM

Comments

THANK YOU FOR THE WONDERFUL STORY OF DEVONS LIFE AND DEATH. I CRIED THROUGHOUT THE WHOLE STORY. I FEEL LIKE I KNOW YOUR FAMILY AND I FELT LIKE I WAS THERE WITH YOU AND DEVON IN HIS STRUGGLE AND FIGHT FOR LIFE--YOU ARE ONE OF THE STRONGEST WOMAN ALIVE AND DEVON WAS SO LUCKY TO HAVE WONDERFUL PARENTS LIKE YOU. AFTER ALL THAT LITTLE BOY WENT THROUGH THE BEST THING THAT COULD OF HAPPENED WAS TO BE ABLE TO TAKE HIS VERY LAST BREATH IN HIS MOMMY'S ARMS-FEELING YOUR LOVE RADIATE TO HIM--- DEVON: I'M STARING UP INTO HEAVEN NOW BLOWING YOU A BIG KISS AND WATCHING YOU RUN AND PLAY THE WAY YOU SHOULD HAVE BEEN ABLE TO DO ALL ALONG-KEEP PLAYING BABY AND HAVE FUN WITH ALL YOUR NEW FRIENDS THINKING OF YOU AND YOUR MOMMY AND DADDY SHERI AND BRANDON (AGE 2)


Name:
Megan Piper
Email:
bogee5@aol.com
Date:
July 30, 2002
Time:
10:58 AM

Comments

My little Benjamin passed away July 18, 2002, only a month and 4 day's old. (Born June 14th. Your story is so touching and so real to my heart. I know exactly those same feelings at the beginning. I feel more for the families that have to go through more than i did (such as yourself). Benjamins life was much shorter than many, but i do feel his time here was peaceful and filled with SO MUCH LOVE. He was (is) my first child and i'm not sure how you go on with out your child, but he is with me every second of the day and i know he ALWAYS will be. i would love to talk anytime if you want....412-828-7744 (my parents #, i haven't been able to return to my house yet, pittsburgh PA). It gives me peace to talk about my little guy...my little angel. Thank you for sharing a part of yourself with so many....Megan Piper


Name:
clare lewis
Email:
clarelewis@msn.com
Date:
August 10, 2002
Time:
05:35 PM

Comments

my thoughts and prayers are with you all. We too lost our little angel, my grandson Joshua. he was and still is the light of my life. I know in my heart that all the babies and children that are taken from us are in heaven and we will see them again.


Name:
ERICA CRAMER
Email:
echome4good@msn.com
Date:
August 19, 2002
Time:
09:53 AM

Comments

You are very courageous people. God bless you!


Name:
Faith & Todd
Email:
ban.ads@verizon.net
Date:
August 28, 2002
Time:
11:15 AM

Comments

You guys are too cool! We loved the pictures, the information and all the "journaling". This was very touching. Love, Todd & Faith


Name:
Shelley
Email:
shell_86_ey@yahoo.com
Date:
September 12, 2002
Time:
09:08 PM

Comments

God Bless you Devon. Could I put a link to his website onto mine? http://shellby_15.tripod.com/


Name:
Michelle
Email:
newbaby_2001@hotmail.com
Date:
September 15, 2002
Time:
10:17 PM

Comments

I am so sorry to hear about your incredibly handsome little boy. You are a very strong person, and I do not know how I would have lived though everything you have been through. I have a 19 month old daughter, and I could not imagine losing her. You and your family are in my thoughts and prayers. Michelle


Name:
Nicole Hess
Email:
proudmommynet@aol.com
Date:
September 16, 2002
Time:
05:19 AM

Comments

As I sat here reading Devon's story I cried like I have not cried in a while. It brought back so many memories to me and it hit just so close to home. I lost both my sons Nathen and Ethan. I am now expecting me 3rd child. I can relate to so much of the pain of losing your son. Thank you so much for sharing Devon's story and his remarkable life! Please visit my son's sites. http://www.angelfire.com/nv2/ethantyler Much Love, Nicole


Name:
Sharon
Email:
mikayla_cutiepatootie@yahoo.ca
Date:
September 16, 2002
Time:
04:13 PM

Comments

What a wonderful website you have created in honor of your two precious angels. What a wonderful tribute. And Kaylee you are such an sweetheart... Your pictures are adorable. You truly are a blessing to your family. Please feel free to visit our family.@ Mikayla and Devin's corner www.geocities.com/mikayla_cutiepatootie


Name:
Jami Sue Murphy
Email:
mkaylanjustinmom@aol.com
Date:
September 16, 2002
Time:
05:46 PM

Comments

i got your web site link from a friend and i read the words you had to say for your precious baby boy and saw all his precious photos...i'm sorry for what you had to go through my heart goes out to you and as i read his story it broke my heart....it touched me deeply...if you ever need anything at all i'm here for you thank you for sharing such a brave beautiful little boy... love and prayers jami mommy to angels mkayla and justin...http://iam.homewithgod.com/angeljeh/Murphy1.html and http://iam.homewithgod.com/angeljeh/muprhy2.html take care my prayers are with you and your family hugs to you!!!


Name:
Mary Ann "Sunnie" Hall
Email:
Hallshine@hotmail.com
Date:
September 16, 2002
Time:
06:37 PM

Comments

God bless you Devon! Your Mommy, Daddy and Family are blessed to have known you. I know you have added a star to God's Heaven.


Name:
Gloria Hernandez
Email:
hernandezjuanillo@netzero.net
Date:
October 08, 2002
Time:
02:06 AM

Comments

Hi Laura, I'm AIMEES moms and today a read all DEVON'S story and I fell that GOD give angel's only to special people. One time a person told me that but I did not know why? It's so hard looking to our babies that it is sick and that we cant do nothing. But 2 years past and with are love and faith my baby AIMEE is here. I thank GOD for each day ,and I know that my baby is only a dream because we dont know for how long I will have my angel. I dont have any more tears in my eyes because I love my baby .And it hurts when we hear that we dont have cure for SMA. I hope someday we can find cure for SMA. Laura when you fell sad just think that: God give only angels to special person's you are a very special person...... GOD BLESS YOU ALL AIMEE send you a big kiss! Thanks


Name:
Melissa Garcia
Email:
mtorres 946
Date:
October 12, 2002
Time:
06:55 PM

Comments

HELLO I also have a daughter with S.M.A 1 and is very hard I still can't except it I feel as if I'm going to go crazy I don't know what to do I'am scared my little angel is now 9 months she was born january 16 02 her name is Tatiana ashley I have read so many stories of S.M.A familys and kids it helps a little I'm just still shocked she is my first child I don't understand why her I wish I can give her my strength I feel so bad she has been threw cpaps ,bipaps ,ventilaters and now the Gtube I am scared I refuse to give up on her she's strong she is still with me I sometimes think i'll never be able to let go.I am sorry for your lost godbless you.


Name:
Dee Krueger
Email:
deekrueger@worldnet.att.net
Date:
October 17, 2002
Time:
01:32 AM

Comments

Devon, I think you are a beautiful little man, in spirit as well as looks. My Molly Grace left me to begin her further journey on Sept 20, 2002. She was almost 15 mos old. Much of your stories were the same, even the favorite song. She picked that one at age 2.5 mos. I'm so glad I visited your site and just found out today about another SMA angel in my area (WV). I hope I can help Camille and her family. Love to all, dee


Name:
Roberto Camiro
Email:
rcamiro@hondaplaza.com.mx
Date:
October 17, 2002
Time:
08:20 PM

Comments

Im with you. SMA father.


Name:
Carol Briggs
Email:
BLikeURSelf@aol.com
Date:
October 29, 2002
Time:
09:21 PM

Comments

Devon - Even though you are not here, I want you to know that your mom has been an angel to my prayers. I have a little niece that has the same terrible disease that you had. Every day she is fighting for her life, just like you did. My words will never be able to express how thankful I am to have found your mom and all the help that she has given my nephew and his family. I pray that you are now in God's hands with your little brother watching over your family because they really love you so. Sincerely, Carol


Name:
Fran Fa'avae
Email:
lilxris4u2@yahoo.com
Date:
November 20, 2002
Time:
04:55 PM

Comments

I was on another website and I seen this link to SMA Angels and it really grabbed my attention. I am very glad that I visited this site, because as a mother this type of information is very helpful. I read your story and I cried from start to finish. I am so sorry for your loss. I have 2 sons of my own and like you I am forever taking pictures of them every single chance that I get. I am grateful that I was able to visit this website. It has touched me in a way that I can't quite explain. Thank you for sharing your information for parents like me, who've never even heard of SMA!!!! Thank you once again!!! **smiles** :) :) :) :)


Name:
Nua Rose
Email:
nusheer@attbi.com
Date:
November 24, 2002
Time:
01:15 AM

Comments

I'm so sorry for your loss. I pray that in time you both will realize that the Lord takes his most precious angels first. I pray for the Lord's continuous blessings upon Devon and you both. May your hearts be comforted knowing Devon is at the Lord's side.


Name:
Mary G.
Email:
Date:
January 15, 2003
Time:
03:42 PM

Comments

Thanks for sharing your story......it has touched me and put my own life into perspective. God Bless you and your family.........


Name:
Celia & Ta'Bria
Email:
AKACelia@aol.com
Date:
January 15, 2003
Time:
05:00 PM

Comments

To Devon & Sidney's Family. I met Laura a week ago and had the courage just today to be able to read about the lives of two very wonderful and special children. I want to take this opportunity to thank you and our Heavenly Father for directing me to you and your sites. Right now I have gained more strength and courage I thought was ever imaginable. In the midst of this most challenging lesson, may God continue to bless your family abundantly. You are indeed an extraordinary family. But then God doesn't make junk. Tell Kaylee Hi and tell her Ta'Bria sends hugs and kisses.


Name:
Stephanie Moy
Email:
moyinc@erols.com
Date:
January 16, 2003
Time:
05:39 PM

Comments

I was looking at the SMA site when I came across your page. I am a 33 year old female recently diagnosed with type IV SMA. Your story is very touching. I have only read part of it so far because I couldn't read for crying. Devon is definitely an angel and I know that he has his wings and is watching over you and your family at this very moment, with his little brother, Sydney, by his side. God bless you and yours!!! Your courage and faith is an inspiration to us all!!!


Name:
Mary
Email:
mmyres@one.net
Date:
January 24, 2003
Time:
11:07 AM

Comments

I came upon your site while I was doing a search for "dairy intollerance". When I began reading I expected to learn about your little guy's experience avoiding dairy - oh how I wish that's all you'd had to deal with. I'm just so sorry for your loss. God bless you, your family, and little Devon!


Name:
Jessica C.
Email:
Jeffreybaby@hotmail.com
Date:
February 07, 2003
Time:
09:57 PM

Comments

I'm very sorry about your loss he looked like a very happy little boy.


Name:
Terry Holden
Email:
holden21@juno.com
Date:
February 19, 2003
Time:
04:04 PM

Comments

We feel your pain. Our son Jacob was diagnosed with type II SMA last January. He passed away January 24, 2003. It was very sudden and we still have not gotten any results back from the medical examiner. Fortunately he really never did have to suffer. He never had pnemonia, nor did he need a feeding tube. He began to have diarhea the night before and began to throw up late in the evening. We figured it was just a bug and thought if by the next afternoon he wasn't feeling better we would take him to the Dr. The next morning my wife laid him down to watch cartoons and he just stopped breathing. The paramedics were there within 2 minutes and never even got a pulse not once. It has almost been a month now and sometimes it seems like an eternity since we've seen him and sometimes it feels like it was just yesterday. Our faith and family have really been all that has kept us going. We feel for you and all families that have to deal with these special children. May God Bless you and your family. Terry, Maranda, and Tyler Holden


Name:
david miller
Email:
dmill63@optonline.net
Date:
February 25, 2003
Time:
11:19 PM

Comments

I found your website by happenstance. Devon was absolutely beautiful and your account of his life is breathtaking. I wish you and your family all the best of luck and future health.


Name:
Kerry Lietzke
Email:
lietzkek@kirtland.cc.mi.us
Date:
March 02, 2003
Time:
10:00 PM

Comments

I happened upon your site while looking for information for nursing school. I took care of a beautiful little girl in my clinical that has Wernig/Hoffmans disease. I began reading through your journal but couldn't finish it. It is a beautiful thing that you did this for your son, Every time I pick up my son or hug my daughters I will think of you. My prayers are with you and your family, don't give up hope your angel is waiting to be held by his mommy again someday. God bless you.


Name:
Chris Peralta
Email:
RRaiders64@aol.com
Date:
March 06, 2003
Time:
03:30 PM

Comments

May the Dear Lord continue to Bless you and keep you safe!!!


Name:
PJ
Email:
pam@heckyeah.net
Date:
March 06, 2003
Time:
06:39 PM

Comments

You've created such a wonderful place to remember your children, I'm so glad I surfed in.


Name:
Smile Quilts
Email:
sprite@tds.net
Date:
March 14, 2003
Time:
03:53 PM

Comments

http://www.smilequilts.com/  http://www.theheartremembers.com/mickeyinvite.jpg" God's Blessings! hugs


Name:
Ellen Hawes
Email:
hawes3@myvine.com
Date:
March 21, 2003
Time:
02:12 PM

Comments

Dear Laura and Steve, What a touching experience it has been to hear your story and become acquainted with Devon. Thank you. Ellen


Name:
sam smith
Email:
smithhouse144@tiscali.co.uk
Date:
April 22, 2003
Time:
07:28 AM

Comments


Name:
Tracy and Skylar
Email:
Date:
April 27, 2003
Time:
05:15 PM

Comments

Hi Devon, we were just stopping by looking at all the beautiful kids. You are such a handsome boy and I bet you make a gorgeous angel. I could really see that your little sister Kaylee looks quite like you. You keep up the good work looking after her and your amazing Mommy. And if you get the chance to see my brother in Heaven please give him a big hug for me and tell him I love and miss him tons.


Name:
Emma Peterson
Email:
emmapeterson88@hotmail.com
Date:
May 06, 2003
Time:
08:08 PM

Comments

Hi my name is Emma Peterson , I would like to say how Sorry I'am to hear what happened to your little son Devon . I was also sick when i was born . And my mum nearly lost several of times . I had a hole in my heart , my arteries were the wrong way and I now have for the rest of my life a Heart Merma .  I now go to the Royal Children's Hospital in Melbourne . When I was born I use to there every year but when i got to 7 or 8 years old i went there every 2 years then I when I was 12 i got told by doctor that I have to go there every year then they can keep a eye on me because at this stage now I can get really sick . Now I know that on my 15TH birthday next Friday , May 16th I can think of little Devon as well . I can celebrate our birthday together . No matter what I will always think of Devon as my little brother and he will always be in my heart . LOVE ALWAYS YOUR FRIEND EMMA PETERSON XXXXXXXXXXXXXXXXXXX OOOOOOOOOOOOOOOOOOO


Name:
Sandy Clark
Email:
clalands@pldi.net
Date:
May 14, 2003
Time:
12:53 AM

Comments

Laura and family stopping by early to let you know I will be thinking of you on the 16th of May. Your Friend Sandy


Name:
Michaele
Email:
michaele@glenndale.net
Date:
May 16, 2003
Time:
09:19 AM

Comments

Remembering you and your sunny way of brightening up everyone that knew you today and always! We miss you, The Aldridges


Name:
JENNIFER
Email:
jenniferleighhirsch@hotmail.com
Date:
May 16, 2003
Time:
08:08 PM

Comments

I HEARD THAT YOU LOST HIM I AM SO SORRY THAT YOU DID


Name:
Erinne & Suzanne Williams
Email:
ErinnesMom@sbcglobal.net
Date:
May 16, 2003
Time:
10:14 PM

Comments

HAPPY BIRTHDAY DEVON! When we celebrate Erinne's birthdays, we celebrate yours too! 5 years old today ---- what a big boy you must be! Did you see all of the balloons sent up to you today from all over? You are loved and missed! Watch over your Mom and Dad and Kaylee. God Bless you, Devon! XOXOX Erinne and Suzanne


Name:
Kendra Drummond
Email:
kendradrummond@comcast.net
Date:
May 17, 2003
Time:
10:53 AM

Comments

Laura- Thank you for posting this website. I had never read about Devon or about SMA and sat here this morning reading your entire story and looking at the full website. It was both happy and sad, and so complete. I thank you for taking the time to put it up so that everyone had the chance to feel as though they knew Devon. What an amazing person he and your family are.


Name:
Jennifer Luttermoser
Email:
jennyandcorey@charter.net
Date:
May 17, 2003
Time:
10:11 PM

Comments

Laura, I am in awe of your strength and courage. Devon was a gorgeous little boy, I can only imagine how handsome he is now. I sat and read Devon's story tonight, and bawled the entire time. I pray that one day you will hold Devon in your arms again. Love always, Jenny


Name:
Tracy and Skylar
Email:
Date:
May 20, 2003
Time:
11:14 PM

Comments

Hi Devon.. Sorry I am late in signing your book... but HAPPY BIRTHDAY in Heaven!! I hope you partied hard and had a great day. You are such a perfect angel, and even now, you touch so many hearts.


Name:
Cathy A. Stanley, RN
Email:
catrn@hotmail.com
Date:
May 23, 2003
Time:
04:40 PM

Comments

Thank you for having this web-site. Even as a Nurse, I knew nothing much about SMA until I began to work for a Pedatric Nursing Service that cares for children with special needs in their homes. That is how I met my special little sweetheart! Madison is a beautiful 2 y/o who was dx'd with SMA Type 1 at 5 months of age. The doctors can not believe she is still fighting the fight. She is truly special, sweet and a strong willed little girl. I pray daily that we find a cure for this horrific disease, and pray that it is in time for my little Madison! Her mom, Tenille, is also a fighter. It was she that informed me of this web-site and has taught me all I know of SMA. She has said again and again how this web-site and all the other parents have helped her! I know that I shall return to this web-site again and again! Sincerely, Cathy A. Stanley, RN


Name:
sherry
Email:
spr186725@msn.com
Date:
May 25, 2003
Time:
09:32 PM

Comments

After visiting this site, I am amazed at your courage. My heart bleeds for the lose of your children.I have never heard of sma until I ran up on this site. Your little Devon is beautiful. I hope Heavenly Father will bless you and your family with his peace and love. I will Pray for your family.


Name:
kayla
Email:
kaylakkc@hotmail.com
Date:
May 26, 2003
Time:
11:23 AM

Comments

hello you baby boy is the cuttiest.


Name:
Gwen
Email:
Date:
June 02, 2003
Time:
03:34 AM

Comments

Just wanted to comment you all on a WONDERFUL website... I read thru it all with tears streaming down my face. Your Devon was nothing short of an angel on earth, and I hope you realize how he's continuing to touch people's lives who never even had the chance to know him in person! What an amazing spirit! Love to you all, Gwen, mom to another special baby named Claire, 22 mo. old with microcephaly


Name:
Danielle Uronis
Email:
duronis@earthlink.net
Date:
June 13, 2003
Time:
10:43 PM

Comments

I'm sorry


Name:
"Aunt Steph"
Email:
huskerhawk@earthlink.net
Date:
June 22, 2003
Time:
05:24 PM

Comments

Devon, It was not that long ago that you enter Heaven. You will never be forgotten. I love you and miss your incredible smile. I know "Uncle Steve" is taking good care of you. See you someday. Until then, I will think of you often. Lots of love, Aunt Steph


Name:
Julie Katz
Email:
jkatzpa@comcast.net
Date:
June 23, 2003
Time:
09:18 AM

Comments

Just wanted to let you and your parents know that I'm thinking of you today. You are a true angel. Love, Julie, Jordan, and Brett (in N. Wales, PA)


Name:
Jamie Smith
Email:
jamieleigh96@yahoo.com
Date:
June 25, 2003
Time:
12:54 AM

Comments

Thank you for sharing in Devon's life. I admire you for your faith and am inspired by Devon's strength. Life is so precious! Reading about Devon really puts things into perspetive, we should always show those around us how much we love them. I found a sense of peace and healing in knowing some of Devon's life... he is truly an Angel!


Name:
Debby
Email:
debby_phil@hotmail.com
Date:
July 05, 2003
Time:
01:20 AM

Comments

I have just found out that my 7mth old nephew has SMA 1. I found your story very touching and sad, and it has given me a new appreciation as to what my brother and his wife are going through and how lucky I am to have healthy children, even though one of mine also has a (non life threatening) genetic condition. Thankyou for your strength


Name:
Louise filiou
Email:
weezielu@optonline.net
Date:
July 09, 2003
Time:
08:55 PM

Comments

God bless your family! Your boys are angels and will not be forgotten! I am so deeply touched by your story! Louise


Name:
Gwen
Email:
Date:
August 15, 2003
Time:
07:22 PM

Comments

Hi, You have a beautiful webpage here. Devon is so adorable, I cryed when I read he passed away. So incredibly sad. I pray for your family and I hope you all are doing good. Tons of love!


Name:
Natasha
Email:
Bay925@aol.com
Date:
August 22, 2003
Time:
08:59 AM

Comments

Such a Cutie....So Adorable. Your family are in my prayers.


Name:
angela cagley
Email:
texascueball@hot.rr.com
Date:
August 29, 2003
Time:
05:20 PM

Comments

your son was absolutely adorable and im sorry for your loss.  But take comfort in knowing you will be reunited with him again in heaven.


Name:
Rebecca Miles (Pamplico, SC)
Email:
rockangel437@yahoo.com
Date:
September 30, 2003
Time:
07:26 PM

Comments

I'm sitting here at work and I just looked at Devon's site. I used to come look at the SMA Angel site all the time mostly because my friend, Nicki Ard did. I just wanted to let you know that I read your thoughts about Devon being diagnosed and dying with SMA and you are a strong woman! Devon sounds like he was a VERY special boy..


Name:
REBECCA
Email:
thebudds@instant .com.au
Date:
October 04, 2003
Time:
06:35 AM

Comments

I'm writing to you from Queensland, Australia. I have recently lost my baby daughter Brooke on 27th August 2003 to Werdnig Hoffman's Disease which had been diagnosed when she was only 4 months old. Brooke passed away when she was 7 1/2 months old and I am missing her terribly. I actually read Devon's story while Brooke was still with us and was amazed that she seemed to be going through the same things at the same time. But Brooke suffered respiratory failure early on and is now flying with her angels in heaven. Thankyou for all the information on your website.


Name:
Annette
Email:
tbear27623@aol.com
Date:
October 20, 2003
Time:
12:48 AM

Comments

I enjoyed your website. It has given me some insight on the conditions of my granddaughter.


Name:
Vonsina Clark
Email:
vonsina_clark@msm.edu
Date:
October 28, 2003
Time:
09:32 AM

Comments

I happen to stumble into this website by error. But nothing is by error when God has anything to do with it. Devon's Spirit and the love you all shared was just wonderful. Devon's web page makes me love and appreciates every moment i spend with my children, even more. May God bless you and yours and Thank you for sharing Devon with me on this day. Vonsina Clark


Name:
Tracy
Email:
Sylvrsprng@aol.com
Date:
December 22, 2003
Time:
05:11 PM

Comments

OMG I'm so touched by Devons story. What a beutiful little boy. I too have childeren with SMA a boy and a girl although at 6mos they were diagnosed with SMA type 1 and i was told the same, under 2 years life expectancy, my son Bruce is now 23 turning 24 in february. My daughter Chrystal passed away at 16 from respiratory/cardiac complications. I to this day do not know if they were even diagnosed right although the drs say they were. They tell me they have never seen a child with SMA type one live beyond 2-3 yrs old. Every day is a struggle and a blessing in itself. My heart and prayers to you and your family through the holidays and every day.


Name:
Lynn Plumadore Canning
Email:
lcanning@twcny.rr.com
Date:
December 28, 2003
Time:
04:15 AM

Comments

words can't express your pictures of Devon - other than he was and absolutely beautiful baby boy - you as parents - I give much admoration !!!


Name:
louise
Email:
Date:
January 07, 2004
Time:
05:24 PM

Comments

I found this web site through a friend of mines babt girl who was diagnosed with SMA 1 in 2002 thank you for sharing your story devon ..... well what can i say what a cutie please take a moment to read about my friends baby Abbie ....www.abbiepennington.co.uk you are all in mt thoughts x x x x


Name:
Andrea Smith
Email:
kpax@charter.net
Date:
January 19, 2004
Time:
04:07 PM

Comments

No one I know has SMA. I'd never heard of it before December, but Devon has become an inspiration to me! I can't put it any better than that.


Name:
carol donnelly
Email:
donnellyc@iopener.net
Date:
February 21, 2004
Time:
07:36 PM

Comments

I have never been to or shall I ever be invited to a more beautiful web. I have never heard of this childs disease before, and am thankful for my friend that she introduced us. I have two healthy sons and nine healthy grandchildren.I feel I am so lucky, yet all of you almost seem like you are the lucky ones. God Bless you. I truely loved "A CHILD of MINE" I have made copies put on a beautiful background (with a Cross and beautiful blue clouds) that I may pass this on to others when need be. Thank you for sharing Devon's life with me. Carol


Name:
Kimberly Neel
Email:
kneel@adelphia.net
Date:
February 26, 2004
Time:
02:18 PM

Comments

I want you to know that we all miss you Devon and that we are thinking about you! We love you!


Name:
Anna
Email:
annmas@cypress.ab.ca
Date:
February 26, 2004
Time:
04:37 PM

Comments

God Bless all of you for sharing your story. It made me remember once again how very blessed I am in having healthy children. I pray for your happiness and good health to all of you and your loved ones.


Name:
Lena
Email:
lenalaa@aon.at
Date:
March 02, 2004
Time:
08:46 AM

Comments

Thank you for this page. Your story shows what being human really means. All the best from Austria ---Lena