to my Medical page!

This page has information about my medical experiences. All information
contained in this web site is intended for
informational purposes only and is not intended to replace and should not be interpreted or
relied upon as professional advise. It is strongly recommended that you consult a
physician to assess individual conditions and needs.

Three Rules in Dealing with Families of Children with any Disability

Three golden rules we have learned to live by and never, well almost never, violate.

Rule one
: you cannot, no matter how hard you try, help everyone.
Rule two; (this is the big
one) you can only make a difference in the ones that truly want to be helped
Rule three; if you have any trouble and get frustrated see rule one

- paraphrased from Brian W.


Information about G-Tubes, J-Tubes, & Nissens

Information about Spinal Fusion

Life with a Trach

Articles written about SMA by Brenda, my nurse

Articles written about SMA by me, MJ

My Equipment

Sample of my Living Will

Medications I am Currently Taking

The articles were written by my nurse and I. Before reusing these articles,
please contact me at
Thank you!

Some great resources!